Guys/gals if your doc tells you to do something, DO IT. im winning the DOTY ( dumba** of the year) award for 2015 broke both ankles the right one 2x lol. was under strict orders for no weight bearing on either leg. i now have an appointment with an oncologist and my surgeon on the 4th. of september. id say ill be fine. just that cancer runs in the family. scaring the begeez out of me. ( protein levels were/are out of whack.) had it not been for complications this past week id probably not have known my diabetes threw me a number. so inclosing do what doc says Eh? even if you dont like it. DO IT. :)
Good advice. Got a clear scan yesterday. Thought my riding days were over before they'd started again. All the best mate.
Sent from my iPad using Tapatalk
freaks me out. have to address this fridaywas kinda weird when i first saw how much weight i lost... IN A WEEK. went from 151 to 124 .. on my pb acct under gstwin. i weighed in nearly 155. on my 97 in the dragon. going to get a selfie of me anf photochop it on my old gs. size difference is weird lol
up to 129 :)
:cheers: :angel: woo hoo up to 132. my metabolism is FAST
up to 137 lbs now. heading in the right direction. have an 830am appt with surgeon to evaluate right foot. if it is not fusing in the right direction i may lose it. am petrified over this. i do not want to be a monopod if i can avoid it. i have ridden my last gs using one foot ( had ankle sprain a few years back. when i rode thru dragon. when i would come to a stop would use left foot to prop self up.) but damn i dont want to be perm this way. this is why i am that scared. am def. NO WEIGHT ON IT AT ALL. ive not heeded these instrux. have done my best, but still have to bear weight on it at times. i.e. bathroom etc. looking for work i can do in a wheelchair. i need yalls prayers on this. if i become a monopod so be it. i can handle that. yours truly,
Aaron
Yep, death is in the chase.
I had a (surprise) heart op (MVR) back in March, WOW!!! Didn't expect that.
Later, got diagnosed with emphysema, and then, last week, lung cancer. Aw this is gonna be a fun ride!
All this came after I gave up smoking! (U.S. readers, this is that thing called IRONY!)
Nahh, got to laugh, don't lose the sense of humour, we're here for a good time not a long time. Do right by other people, that's all.
After the heart op I needed to ascertain whether I could do 2 things: Root, and Ride in that order. Yep, done that, all good (But I need to keep practising to get it right).
That will also be my measure of success after the lung operation. I'll see. (May let you know, may not).
Brrm brrrm, suzi in the shed waiting...
I'm lucky, my cancer is small and doesn't seem to have spread, so with a bit of luck my surgeon will be able to slice the little alien out before it does too much damage.
damn bro. dealing with same issues almost.bdiagnosed with COPD 6 mos ago. cut smoking down to less than half pack a day. hoping it doesnt progress. having severee pain now in right leg. have to see surgeon at 830bwill be there at 700 (only ride avail.) going to try to wheelchair to asian buffet to eat like no tomorrow. lunch buffet almost 50% cheaper. only if it is close to hosp. if not theres kfc close by lol. costs of items for leg adding up. anyhoo my friend please do post details of your issues whether via post or pm. please. our issues are quite similar. i dont mind if this thread stays as a support forum for all. for yourself, myself, for whomever needs it. i wont be working for the forseeable future. i can tend it :). yours truly,
Aaron
at surgeons office. hoping he can stop this damned pain. nervous as can be. after im done here if not hospitalised, im going to get updated xrays and try to find lunch. luck, karma, prayers, and all requsted. :). will update afterwards. xrays posted here this sunday. will somehow make it to church and use my office computer. interesting stuff lol :S
getting destapled now. then casted. provided no further damage has occured. i get castexd then come back in a week. but damn this burns right now
this blows. got casted bright orange. why not Eh? am in UT area lol. but in this for 3 weeks. no load bearing whatsoever. after this it is removed proved no more damage., then i go into another moonboot. a nike air model lol. not really but it has air bladders i can inflate. so im lookin at 6 weeks of no income minimum, then i begin physical therapy to get use of ankle back. then i can put weight on it as tolerated. then provided no further damage, i can be cleared to seek work. all the while debt piles up.lol.. other than that, tis beena decent day
just realised something. on sundays my nickname will be sore thumb. because i will stick out like one.
my wheelchair is black as are my pants. maybe shirt too. yet cast is safety orange. ( coulda went with hot pink lol SERIOUSLY) i may go to church blacked out tomorrow. everything black cept for orange cast. normally have white shirt on. think im blackin out once for giggles. lol. gotta have some fun i guess. not much else to do
time to pass out will talk at another time :S :) lol
time to pass out will talk at another time :S :) lol
cast applied today covering my foot to just below my knee. damn now it takes me 5 mins to make the bathroom. cant move for nuthin lol :(. didnt eat hardly. night isnt over yet though
Hope you get better my friend.
Cool.
Buddha.
Yeah, hang in there friend.
never realise how much you value your ankles being able to pivot in angle until theyre locked at 90 deg. either in a splint or in a cast.. in my case both. moonboot on left and cast on right lol. takes me 5 minutes to walk the length of my home to pee lol. this blows. or better yet you never realise how much you value those power doors in a doctors office
damn no appetite lol. gotta work on that. going to try making home made mac and cheese for tomorrow :)
Is there another word for synonym? :dunno_black:
probably. lol cant sleep. windowshopping for another phone i can postwhore a tad easier with than this old pig lol
frig that airboot hurts worse to wear it on tib fracture side , than not wearing it at all. cought myself in a brief stumble in kitchen cought myself but stepped hard. no apparent worsening of limb damage :) i take the moonboot off when i can to exercise my left foot ( it had the tibia fracture) right foot had the fibula fracture and subsequent surgery. staying off my feet until med appointments early this week. damn cant wait to get useage of my feet back lol
timeline: 3 weeks to get cast removed, then re imaged then if all goes well the moonboot from left leg tib fracture will be applied/used on right side. for 3 addl weeks non load bearing. then we begin phyisical therapy. provided i handle this well, can then begin employment search :) looking forward to this. hate being lazy. forced or otherwise
yup left side ( tibial fracture) still bruised and slightly swollen. really dont want to put the moonboot on cause it locks foot at 90 degrees. may have to though. getting round best i can. weight slowly returning to normal range. still planning a pig out at AYCE buffet. When funds permit. watched just about every show on the 6 channels ive got. EXCEPT for talk shows. LOL heck no i wont go there. id end up yelling at tv like it would help Eh?
Damn Yama! You run a dang mean thread.
I guess it helps you keep your sanity. :icon_rolleyes:
Regardless, if doing Nothing helps you heal, then you better do nothing for a while.
First gain health, then job, then a bit of money will be rolling in.
You are no stranger to these difficult times.
Keep posting. Keep sane. Stay off your peds. Yes, I said "peds" :laugh:
meh will have to obtail ride tomorrow to pawn the av system ( the onkyo reciever and jbl northridge speakers. to cover the phone acquisition and 1 prescription ins calls optional lol. most of the time i can get them to approve things. but one minor prescription. beyond that ill be at home. but damn hurts to remain sitting. dont want to attempt horizontal rest cause that will end up giving me a raging case of insomnia at that point lol. my body was used to rising early for work.
not looking forward to today. 1 of two things is going to happen... either im able to chain this phone to my desktop and use it as a usb modem ( as long as my computer will support this) or i have to somehow make it a quarter mile down the road to old workplace to use their computer. why? i won a phone on ebay. a windows mobile unit. an lg vs750 fathom. reason being i cant pre register with this phone for some reason for upcoming surgeries. ( one more on leg and a spinal cord stimulator implant in my back.) 16 bux shipped was pretty good i think. problem is this phone wont let me finalise payment via pp and ebay. so am going to try and set this phone up as a usb modem on my desktop. if she wont see her, then i must make my way down to old work place. its maybe 1500 feet from my home. and use their computer. got to get this done today though. got the moonboot o nthe left leg and csat with boot on right. if i can make it there theyll givem e a ride back. its only 1500feet. i can see their roof from my place. legs will kill me tomorrow but aftert hat i am idle as can be. on a good note, gainingw eight again. up to 136. canttseem to go past this. although my norm was 148 to 151 so this isnt to terribly off. might be my new norm.. more updates to come. cant wait to begin physical therapy. once i passe inspection on my legs in 3 weeks i begin pt. 3 weeks of that, then i can start walking without t he boots and other supports :)
anyhoo more updates today.
Aaron.
Bad news lol. my comp wont see the usb modem in this phone. wont allow me to download the required drivers. this means ive got a trek tomorrow :( will do it early before heat sets in. but ill call first and see if cathy ( friend and ex boss) will give me a lift up there. i sharpen her kitchen knives anyways. so may not have to chair it. but she must be there, cqause only she knows the password. will try to get a lift both ways. but either way i have to be there today. shooting for 10am. if i have to hike it or wheelchair it in, ill be there by 1030. will prolly use the chair since i have no load orders. but theres brief walking involved. i deflated my bicycle tires so that temptqation isnt there. took the valve cores out and put them in a baggie in my fathers car. along sith the tire pump. wish me luck Eh? hoping for a ride both ways. will see my friends. will see :). updates later on. will update as i head out, and as i return. yours
Aaron
frig i cant sleep. legs had a fuzzy feeling which was like a major painkiller. what the spinal cord stimulator surgery ( minimed unit) oct 27th is supposed to do. guess i couldnt sleep cause it was a psych thing. guess i didnt want to miss it. lmao. guess a nerve on one side rubbed the plate.? idk. calling dr reat later on regarding this. besides no need to sleep now id have to be up in an hour to get to old work place ( pizza express) to use their comp. i can crash later on after returning. wont have to chair it up there, i can drive using left foot i bring moon boot and walker with me. and im golden. not supposed to be driving ( health suspension 6 years ago. ) but ive been cleared for short trips like this, and to beat all, ive got a good rapport with the pd here. they know if i drive its either to this place or to pharmacy. both as the crow flies a quarter mile from house. my plan is i put boot on, ( protects tibia fracture) walk using walker down to car load walker inside. climb aboard ( mazda tribute) remove moonboot which is allowed for brief periods. get there, put boot back on .. btw this me driving thing is a last resort. trying to get sister to run me up there. i do not want to use the chair to wheel up there. made that trip one time took 40 minutes. Armstrong propulsion system at its finest. lol. anyhoo enough blab had to update my semi dysfunctional family here. love yall. small update here later this eve. BTW going to move thread to tf. since its mainly a daily gstwins journal :) and i feel bad about cluttering O&E up lol. ( btw on a humorous note, my title i changed until the ebay phone arrives ill revert it back to what it was. if you saw the phone im using now, it is about the size of a 2/3rd scale colour game boy. cant wait for replacement to get here. finally will be able to zoom in on pics. until this evening,
Aaron
update got ride to do what i needed to do so didnt have to left foot drive. made it home. however if the pain doesnt subside in left foot now, ( tibia fracture) will end up in ED or will deal with it until i can get into ortho. used walker to GENTLY lower myself from car. plus had moonboot on. to beat all. pain is different in this one. a combo of pain like an akle sprain as well as a sharp pain like a fracture. but not as intense. da*n thks is getting old. ive had the best luck for 40 years now all this mess in the space of a month. will put it up on an ottoman and ice it and observe. kinda want to keep my ankles attached to me. want to own and ride another gs. that is my goal. dont want to have to fabricate hhand controls and a sidecar if i dont have to. although a side car gs would be fun lol. a lady was complaining loudly at convenience store earlier. being all sorts of colourful in language. i mentioned " make you a deal, ill trade you these 2 broken ankles and all of its assorted inconveniences for your bad day. heck ill trade them for a dozen. she just shut up and walked off. lol. venting is fun sometimes. anyhoo. feel exhausted. so will try sleep lol. be back later. heres hoping for better luck.
Aaron.
close examination no obvious swelling which is good. :) just a bit of a bulge over where the fibula would be. putting moon boot on to let dog out after that im done on my feet except for rr breaks. tis 3pm so may just stay awake until this eve. will leave boot on. going to follow docs orders to a t from this point on :) its a no load as is right, but he allowed supported weight bearing for SHORT duration. not going to chance it, dont want to risk having to stay in a rehab center while it heals. on a good note, weight is at 137. ill settle for that and build slowly back to the 151 :D. anyhoo time to armor up and let the dog out.. back in a bit. ohhh :D figured out how to get this phone to copy urls so ill put pics from my pb acct. have to obtain copies post surgery want to see how they set up the plates and internal rods . will try to get those this coming week. pics shortly. they are sfw. if anything its a visual reminder not to be an idiot like me lol or a clutz lol. anyhoo back in a bit. dog getting ornery
heres one shot with it angled slightly away
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/th_Picture0908151526_1_zps3894fc9a.jpg)
heres a pic with it evident. this was date of original injury dont think it was ortho pic. that one is next.
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/th_Picture0908151524_1_zps8fae8071.jpg)the next one WAS at ortho day before ORIF. IT shows bone separating kinda cool in a weird sort of way. i have it as a wallpaper on my phone lol. ppl say what happened? i show them that lol. pic to come phone copy kinda tiny. but id say it shows larger on a proper screen. but its clear. anyhoo locating dvd back in a few
heres a closeup. best i could get off this camera lol these films WERE done 8/19 . 14 hours after fall and i dont see it fracture of left ankle/lower leg and an aha moment.. anyhoo the closeup:
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/th_Picture0908151615_1_zps827933a2.jpg)
Good god man!
Your posting all this with a simple cell phone?
You must have expert digits! :icon_eek:
now heres the mystery one. well it was to me. im wondering why this thing hurts like it does and i cant see anything obvious. a moment of divine inspiration later, get a strong urging to read the reports. classified as an "oblique aortic distal fracture of the tibia". ( main weight bearing bone) heres the aha moment if i could find one lol "diagnosed by the widening of the space between the tibula and fibula and fractures in a vertical plane. gap is obvious. that much space? errm not sposed to be like this. long story short is my left leg is trying to split apart like a wishbone lol anyhoo the pic. ( you will see the gap) btw it is sfw:
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/th_Picture0908151617_1_zps62b2ea55.jpg)
doing my best to stay off of it as much as possible. absolutely no weight bearing on either accd to doc now :/ out of commission for a couple months if unions are successful. dont want to risk it. problem is easy to get around on foot if one or the other. but both? times i do have to put pressure on it. now i know why its raging lol. its barely 3 weeks out trying too much waaaaay too soon. the lol moment regarding this soon to be replaced phone. its a 2/3ds scale color gameboy. hence my self imposed title for a week or so. then i revert back. what scares me is if these or perhaps subsequent repairs arent successful i wont ride a gs again. risks are low around 18% for complications . for a diabetic with neuropathy, and circulatory issues its north of 60%. i find out in 2 weeks whats next. :"(
correction i misquoted term for the i dont see it fracture. it is whats known as a "oblique aortic fracture of lateral aspect of distal tibia " i.e. the tib and fib should be joined/touching. not spread apart. swelling is all but gone. except where the fib is spread out, its a tad noticeable. almost afraaid to remove airboot. was fine earlier when i would do this now its omg. something aint right. only been 3 weeks still though. going to try making it through night and see what its like first thing. and go from there. beyond that i should have read into this earlier. my own fault. for not listening to common sense :(
weird no appetite at all today. maybe ate 3 small prezels ( those tiny ones in a snack back. beyond that nothin. left leg on fire and right side with plates other than the radom stabbing pain from plates and screws thats it. cold weather is around the corner and im supposed to be recovering. this wont be fun. lol. anyhoo thats the extent of todays drama. going to wait 12 hours and see if things improve. if not will figure next plan
back down to 132 inweight. course eating nothing since essentially yesterday will do that :( keeping close eye on this. no appetite to speak of. which is weird for me lol :(
finally deciphered this medicalese the left ankle. i filtered out what was telling me which way the xray/radiograph camera was pointed.
it is........
a fractured distal tibia (large main bone supporting weight) fractured close to ankle joint (distal towards end) along with the articular surface. ( top of ankle bone directly below tibia) small ankle joint effusion. basically saying fluid buildup. combined with intra articular extension, not only was top of ankle joint impacted the fracture spread down INTO ankle joint. meaning this one will be problematic also meaning i must stay off of it cause leg longbones are trying to play wishbone on me if im not careful. add to that being a diabetic with neuropathy as well as circulation issues. so the deck is stacked. lol. although this explains why my left leg is/was feeling the way it was. what im dreading besides the ortho visit in 2 weeks, is that my body will be attempting to heal while colder weather moves in. yay arthritis lol. provided no further work needs to be done, have doubts this would also time the beginning of physical therapy. lol but bonus is most usually have a pool of sorts. idk. thought right one would have been the problem, but seems the left one will. ahh well Cest la vie. never thought id be swaying this but i hate watching tv.i detempted the bicycles as well as the gas scooter. so now just gotta not walk lol. but am glad i found out this stuff :) its ironic only clue something is amiss visually is the spacing if you look closely lol. beyond that you have to see the other angles and look closely.. i guess its why ive been a bit rough on it. doing best to keep weight off plate side. now will have to rotate use of one or other but not both. cause i have to be on my feet albeit very briefly. throughout the day. ( rest room etc) i googled the chainof diagnoses, got 4 pages of pdfs which i cant download . yet.bi soo want to be able to get into a pool. lol would make standing easier. baahhoping on feet soon :)
update: wicked pain both nerve and physical. and now this
my weight is back down to 128 muscle tone gone. and the damndest thing, no friggin appetite. cant even force myself to eat. between yesterday and today a few pretzels and a dorito or two. ala junk food. gotta keep on goin though. at least thru monday. ( hqve to pay a bill) after which if by then weight and issues are there, hospital here i come.. updates to follow
Aaron
still at 128 ate a bit ( weird thing) whel
n left leg flared, appetite shut off. got ahold of docs voicemail will see what he says in am. sig addition and avatar text are needed reminders im NWB on bolth sides. but a neccessary evil it seems kept to a minimum. btw working on setting up a blog via google or wordpress or something. will migrate all of this there . fun day sleepless night :( . oh will get latest films i kinda want to see what it looks like
Aaron
Appetite or not... you better keep eating mister!... it's all healing fuel!
yup. need it in spades now . just hear a LOUD pop inside the cast. same sound qs if you popped a knuckle juwst far louder. i give up lol. had plans today. screw that calling ortho at 9 . then have to figure out whaat to do . swear this blows. its numb now. i was wiggling toes and foot it fell asleep then pop wtf.. cant win for losing. i think i set record for fractures in 30 days time at 4. and a bonus 1 was while inside cast.. gettibg charger for phone and stuff together. being the fibula i can put weight on it if need be. lets hope for the best Eh? i wanted to get copies of the xrays but damn not this way.. will update as able. but am going to eat first before calling ortho
To quote a britney spears tune an acient one " i think i did it again" wiggling toes and foot ever so slightly to calm an itch i hear a loud pop. and foot goes numb. now numb going away and pain taking over. WTF got a sinking feeling ill never ride a gs again except with a sidecar lol. :( well freetime abounds time to draw up plans. going to finish eating this then call meatwagon think i just set record for individual fractures in a months time. at 3 with 1 bonus. one INSIDE a cast. lol believe plate let go it sounded IDENTICAL to popping qa knuckle Just 10x louder. well time to pack stuff up and get ready lol. will update if i can later on.
Aaron.
can feel the discomfort almost to kneecap. i give up lol
awaiting ambulance :/ never heard of someone fracturing bone INSIDE a cast. go figure
yesssss false alarm just popped a giant knuckle it seems.. :)
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/th_Picture0910151921_1_zps9d86c24a.jpg)
pretty much all of em at this point. got to call ortho in am figure out what they wanted at 645. plate shows GOOD lol
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/th_Picture0910152206_1_zpsaee1ee62.jpg)
heres one for ya, am i weird when i say i cant wait for physical therapy to begin? reason being dealing with muscle atrophy in legs.
taking thumb and middle finger on each hand i can encircle my upper thighs normally not possible.. cant build muscle back up ( from non use) until cleared for pt.
This thread is truly an adventure. :confused:
left ankle raging now. thought about er but tbh going to try to wait until monday.
have to go to ortho to pick up prescription. im a human barometer lol. just like my dog i found out i can tell when the barometer is dropping. weight is mid 130s now that i can settle for. until im cleared for weight bearing.
ear surgeon visit went well. leaving tubes in place until the issue with casted foot pans out. weight is low 130s will update with count tonight :)
got doc reat to call in 2 prescriptions. one was tramadol for my arthritis. other was a foul smelling antibiotic for wound on casted foot. ( trying to stop cellulitis from occuring) will NOT post a pic of that one. its NSFW. THE ANTI SMELLED LIKE PICKLED EGGS. if it smells that bad it had better work lol.
health.blurtit.com/244760/do-cephalexin-capsules-normally-have-a-bad-odor-to-them-smells-like-rotten-eggs-newly
idk about rotten eggs. to me smells like pickled eggs. and this is normal lmao
:( okay a not so good rather alarming update. i do believe i have a fullblown case of cellulitis on top of my foot half concealed by the cast. the sore is ugly its draining, the red warm area around wound has grown. but am unable to gauge its size due to the cast. i had doctor reat call in a course of keflex because of this wound. i started this at 4. wound has been there a week previous. if i dont knock this out the infection could lead to a non union of the bone which had the titanium plate put in on the 24th of august. the wound could become gangrenous, could be lethal if not attended to. foot is swollen slightly compared to other one. im gauging the size of the redness using a sharpie. tomorrow will be the day when i figure out what to do next. this blows. ive been in the hospital more times over this in past 3 weeks. will go sooner to er if i start becoming disoriented. anyways my friends, will update as things progress. all i can say is thank GOD for good insurance. im tired of this and frankly scared. :( as i said will update as things change. will check in once more tonight..
Yours,
Aaron
Will be waiting for the updated report. :icon_sad:
I will be in the hospital tomorrow. foot is deteriorating. feeling lethargic and having hard tinme thinking straight. the red area has expanded more. wound is 1.5" by 3/4" and its still draining and bleeding reason im going to try and wait til 9am is because thats when myy surgeon starts his rotation. as long as its not osteomyelitis or gangrene risk of limb loss will be minimal. will update first thing and throughout the day as im able. :(
Aaron.
Best thoughts with you brother! ... :thumb:
waiting til orthos office opens before doing anything. that way they can have records of the procedures up. ( that and i dont want to repeat myself to them. will get a copy of any imaging done today. the photo NSFW lol. ct scan if they do one would be interesting. anyhoo its 8:09 EST for some reason have no energy so going to take a catnap for an hour and a half. will then get this ball rolling. updates to follow.
Aaron
at er waiting for triage when they change cast gonna shoot for some loud colour combo. will touch bases later on :)
Aaron
well the wound freaked the nurse out. she said the antibiotics wouldnt touch it :( got a feeling ill be here a while. time to postwhore :( lmao
Now im scared. theyre admitting me. drew alot of blood. stab lab left after 5 mins.
took cast off. blade from cast saw nicked me and cannot get my glucose level to go qbove 48 :S theyre still figuring out whats next. lost some weight tho. back to lowish 130s. will update.
Aaron
p.s. 3 days to a week for antibiotics via iv.
least ill have cable tv lol
good GOD histamine reaction from the morphine lol :"( left arm itchin and right leg. im a mess :"( a few days of this i may be able to look fwd to coming home maybe mid week.
day 1 is complete :).
day 2 begins. morphine headache :(. and more antibiotics. but today i transfer upstairs to continue this..
Aaron
xray on right foot again. no longer on iv anti. :) so i can move around a bit :D
closing of day 2. 2 more days tentatively :(
Aaron.
mid day 3:
they stopped my pain meds and anti clotting meds and blood thinners because my bp was low last night.
90/48. bored like hell. wished theyd let me go outside. ive got my wheelchair with me. fresh air would be perfect right now.
Aaron
My dad had an episode in March and got a pacemaker fitted. I finally got home to see him a few weeks after - he was down to about 150. He was about 180 most of my life, 165-70 recently.
It was the first time I'd ever seen him look...helpless.
Take care of yourselves folks. Good health to all.
dealing with mild sepsis infection here. bodys fighting that stressing my organs., in turn causing my diabetes to go haywire. bp up and down bs up and down. goin nuts here, waiting to get me off the iv pole so i can be allowed to go outside with wheelchair. since im non weight bearing on right foot cant walk. since bp is unstable they stopped my pain meds. baah :"( bored :(
Aaron
p.s. cwj i know the feeling of seeing loved ones after incidences like this. its a whoa feeling.
finally got back on pain meds yay :( .
found out that both vancomycin and piperacillin/tazo when used together have a nasty potential side effect. of acute kidney damage. (+-50%) im closing on day four of this regimen. orders through tomorrow :(
m.pharmacypracticenews.com/Article.aspx?ses=ogst&d_id=50&a_id=20974
Quote from: yamahonkawazuki on September 20, 2015, 02:33:41 PM
dealing with mild sepsis infection here. bodys fighting that stressing my organs., in turn causing my diabetes to go haywire. bp up and down bs up and down. goin nuts here, waiting to get me off the iv pole so i can be allowed to go outside with wheelchair. since im non weight bearing on right foot cant walk. since bp is unstable they stopped my pain meds. baah :"( bored :(
Aaron
p.s. cwj i know the feeling of seeing loved ones after incidences like this. its a whoa feeling.
:-/ He's also managing diabetes...he had been doing a pretty good job of that (the reason for the initial weight loss). During the past year he'd been feeling progressively worse. The PM was expected, but the "episode" pushed up the date. He has been feeling progressively better since getting it, though. It did scare him for a while though.
The worse thing I've personally dealt with is a torn ACL.....stay off those legs and do the rehab when it's time. ;)
i know :) only on it when transitioning to wheelchair or going to bathroom. this hosp bed is COMFY lol. am i weird when i say im looking forward to physical therapy? ive lost 30% of my physical size. looking forward to gaining this back.
Aaron
trying to get a timeframe for release. out of the cast. still nwb on that foot but damn neet to get back to work lol. im bored
Not weird - take all the PT you can get. I probably should have done more, only 30 days on company HMO.
It is scary seeing the weight loss. It felt like it took two years to get back the size in my leg that took two weeks to melt away.
Makes you appreciate work, though. :thumb:
am fighting to keep kidneys going atm. theyre testing blood daily. the combo of antibiotics is somewhat toxic to kidneys 50% of the time. im trying to get out early lol. last time i went through arf. ( acute renal failure) in 2007 i was in hospital for 2 weeks. on an annoying note, there must have been fifteen babies born here today. every time they play twinkle twinkle little star on the pa system
Finally am home. beat the sepsis infection. next 48 hours will determine if kidneys were harmed at all from the antibiotics. have 4 doc appointments in5 days. got to find bus fare. :(. then 3 more following week. one of the main ones is the ortho. have to see how bone union is doing and when i can begin walking and for PT.
Aaron
one day at a time... :thumb:
Septicemia is a mother to treat. my mind was scrambled from the infection, and the treatment protocol. on 2 more weeks of antibiotics. if i dont follow it exactly, it could return and prove fatal. doctors werent kidding. so i will. next 48 hours will tell me if treatment was toxic to my kidneys. this happened before in 2007. kidneys shut down. for 24 hours. man im a mess. lol. heres to getting and STAYING better.
Aaron
while i was being treated for the septicemia ( which started from a staph infection), i was put on a 2k calorie diet. noticed the effects from this. not all skin and bones from waist up. bottom half of me still is from muscle atrophy. that will be a long drawn out process. but as soon as im cleared to bear weight on it/them, in about 6 weeks, will then start seeking employment. unless i can find something sooner that doesnt require me moving around. have to call ortho tomorrow ( or wait til appt friday) and get an ankle brace for left foot. which had the pillion fracture. its hurting like hell when i use it. he had me transfer the moonboot to right foot since they removed cast. will try to get a brace of some sort friday. btw weight went up to 141. going to try to keep it at 140 maybe 135, until im on my feet. this killed me financially, but im stubborn, ill make it once i clear these medical hurdles. :) heres to survival. prayers needed on the septicemia issue. if i do it right the last round of antibiotics SHOULD take care of it. 2 pills every 6 hours for 2 weeks.
Aaron
not liking this 6 hour dosing schedule. but as dr chuk and pharmacist said in plain english " do it or die" so i will. have to for 10 days then see a nephrologist an endocrinologist and their dr. ( hosp) at same time. plus i have to avoid at all costs getting sick. this septicemia killed my immune system. so i have to take it extremely easy for 10 days. i will beat this i hope. am too stubborn to give up lol.. anyhoo mind is kinda confused atm so bed time for me. talk to yall tomorrow err today later on :)
Aaron
up early for the antibiotic use. cant miss this. so i got bored and googled something. i finally figured out what a "hospitalist" was. Dr. Chukwumba is one. saw alot of him over past few days :(
Aaron
Ortho rescheduled appt for tomorrow instead of late friday. said something about what they saw in CCU past saturday. will update when i know something tomorrow.
Aaron.
p.s. will update some more tonight from labs if i can get into patient portal. will have the films tomorrow as well.
Go Yama, Go! :technical: and then :woohoo:
Good luck & God Speed man.
EJ was getting ready to pm you lol and figure out what or where you were my friend. tomorrow after pain doc i go to ortho to discuss legs. figure out how far back the septicemia set my bone unions back. major update tomorrow. cause i pick up my xrays and labs. including the last ones which were done day of parole lol. these records are free. which is cool. i have time to kill between docs so i can get them then. if ortho tells me of a non union, ill return and grab those.
scrounging up bus fare. i want to see if ortho will allow me to work in some limited fashion. cause this boredom is killing me lol. anyhoo updates to come. weight is climbing. will be back on trqck when PT begins and i build muscle again.
Aaron
Remember what i said about kidney issues? im concerned. ive drunk almost 64 oz of sugar free kool-aid yet only peed maybe 6oz in 24 hours. and ive got 7 days left on this antibiotic cycle. no choice there. but ortho called me in early anyways so ill know something by 3pm. will update further :( :) :( :) :( :) :(
Aaron
Enroute to first of 2 appointments. possibly 3 depending upon how second one goes :)
Aaron
good news on pain doctor. that went well. confirmed surgery date on spinal cord stimulator. will have to get the mri safe leads because of bad news from ortho surgeon. no evidence of bone growth. only thing holding fibula fracture together is the titanium plate and screws. no growth at all. doc was worried. IS worried. i return in 3 weeks. if nothing then i go under the knife again. the high platelet count very high. along with damage from the septicemia has screwed me. 3 weeks more of non weight bearing MINIMUM. dammit now im petrified. either they use a bone growth stimulator or they remove the fibula entirely and i make use of the tibula alone, or a bone graft. damn i didnt need this. needed to get back to work lol. still do :(. still have that course of antibiotics to finish. if that fails im screwed there. i picked up my labs, my xrays and all reports. it all started with a pressure ulcer. dont think i can blame anyone on that. except for myself. Dr reat is one of the best in the country. my bones are not/will not cooperate. will update with that xray from the 19th when i went into CCU. da*n i didnt need this.only positive note on this is that with cast off i can take a warm shower. still am petrified tho. will update with images and labs later on. there was 21 pages of it. :(
Aaron
Quote from: yamahonkawazuki on September 23, 2015, 09:17:31 PM
EJ was getting ready to pm you lol and figure out what or where you were my friend.
Aaron
I been on a away-job so communications is sketchy. I just been checking here when I can get a wifi feed and a few minutes of slack-time.
Expecting some relief from all this work in mid November.
By Thanksgiving time I should be home again and have a few bucks to spare.
Obviously you have your hands full.
Keep us posted,
-Ej-
when they go back in, im going to request the titanium plate and screws as a souvenir lol :(. only thing holding it together it seems since day one was that plate. will have pics up tonight after dinner.
Quote from: yamahonkawazuki on September 24, 2015, 03:48:01 PM
"if you come in with the bottom of your cast black,
neither one of us will be happy"- Alan Silverman MD
Now I understand your tag-line. I finally understand. :bowdown: :thumb: :cheers:
ive come to the realisation theres a good chance that i may become a monopod out of this. mentally ive nearly given up. theres a few options doc was telling me of. it healing is minimal. no signs after 4 weeks.. now repair wise they could remove the fibula. ( bone with plate) or use a bone growth stimulator using electromagnets. however if bone is not even trying this may not even be worth persuing. theres a bone graft using bone from hip, surgery again with another plate. but with bone not trying well :( with the gap in the bone its likely to develop osteomyelitis. a bone infection. cause marrow has a direct connection tobacteria. if that happens it can become lethal. qquickly. there amputation , ie a monopod which would give me a good reason to build a gs with sidecar :D, ill be ib chair for 3 more weeks minimum MINIMUM. when i figure out how or why the pics arent uploading to my pb acct, ill post the tibia side it shows the gap clearly. and why ortho was worried. got to call dr reat in am and get chair okayed for another month. i dont have avail. funds to cover rental. but with note, insurance will. i need to find work NOW. to keep mind sane. this was news i saw coming tbh. am surprised CCU at hospital did not. hell i found it while doc was out of room. if anything my financial ship is sinking fast. i may find a volunteer position at hospital. ie something i can do while im wheelchair bound. anyhoo more to come later on tonight. am still looking over reports. i was looking at films while doc was out as he came back in i said dr reat um theres evidence that bone is not doing anything at all.
Aaron
i need to take a mental break for a couple days i hope yall can understand. after the news and hassle i went thru yesterday, i need to gather ny thoughts abd recharge ny batteries. yours truly
Aaron
Update: ortho, no progression of bone union as of yet when i went to pick up ankle brace for left ankle ( pilion fracture) the appointment which was scheduled for thursday was not moved for thursday. next opening was for monday. i said " i dont see a problem with this ill take it" as i was preparing to leave , nurse paged me saying due to critical nature of the non progression of RIGHT ankle spiral fracture they got me in in 5 minutes. my mind is gone. i swear im glad i dont drink anymore :( will update soon.
Aaron
I used to be quite the beer drinker back in the day.
Don't have the stamina for it any more. But ha... I have some great memories (I think). :cheers:
3 weeks to go til we figure out whats next on the table ( besides my left ankle. ) i wished ortho had said nothing except " okay will see you in 3 weeks" he says " it shows no signs of union ( growing together) , nor do i forsee anything happening. " im like DUUUUUUDE stfu . i dont feel as though there is anything amiss unless i ambulate ( walk to bathroom. a distance of 40ft and ankle moves to inside or out. course there was some nerve damage as well. so it may be a blessing or a curse. or a cursed blessing. im at the point of mentally giving up. and dont want to go there lol. but when ortho came in and had :( as an expression and not :) or :D ( he always smiles. something isnt right. Am sorry my friends to unload my lifes story on yall like this. but youre the only friends ive got that arent after my pain meds lol. and those ppl are no longer welcome in my home. anyhoo next major update will be day i find oujt what plan is. how this will be repaired if it can be repaired. if they have to replate it i DO want the old one lol. anyhoo major update in 3 weeks unless im either called in sooner or im in hosp again. its pretty bad when im on a first name basis with most of the staff there. :( or better yet if it gives you a time frame, out of the month of august, i was in hosp. just shy of 2 weeks. ( postwhoring from CCU due to septicemia a blood infection. thank GOD it wasnt osteomyelitis sepsis infection of the bone. :D. course with the non unionising bone its wide open for this to happen. if i dont halt any infection in right leg which is what in working on now. then i always have it seems an episode of DKA ( diabetic keto acidosis) basically my bloodsugars go from 120ish to north of 1500. so have to stay vigilant there too. and now i AM doing my best to follow Dr. Reats instructions. to a T going tomorrow to stop use of pain meds for 48 hours. so i can get an accurate gauge of pain levels. anyhoo bout got lab numbers crunched. will update that asap. some interesting stuff there. :). Until next time,
Aaron
Dang Yama! .. you're being a warrior with all this health issues bro! Best of thoughts your way as always. .. just remember "As long as your heart beats and your brain works then everything else can be dealt with! Improvise, Overcome & Adapt!
... I note your mention of gs500 with sidecar. . Cool!! ... however I'd like to throw the concept of gs500 trike in the mix also! :thumb:
I remember the trike because of one DISTINCT piece. it had the wedge can from my 5th and 6th gs on it. ( owned same bike twice lol) i knew it was my pipe because of a distinct scrape on it... and it was for sale locally. heck might have been the same bike for all i knew. tbh a trike WOULD be easier to engineer. most of the parts are off the shelf for other motos. and 1 quad. an adaptation of a 400EX slightly longer rear axle and gs spec wheels and tires to reduce mass.. and a slightly lower geaqr maybe -1 up front maybe even -2 i know its hard to inagine all this cr*p not even 2 mos ago. i wonder if i caused it somehow. i ran across a gal at dollar general in clinton griping about how she cant live with a sprained finger. I said are you serious? ill trade you these 2 broken ankles one having a very real possibility of being removed from my ownership for a slight finger sprain anyday. and no the pain drugs they give at the hospital are worthless so dont use that line lol. you wont be able to work for maybe 6 weeks to 6 months ( mines towards the latter IF they can figure out how to fix it. TN has no temp disability neither does the fed govt. gal didnt know what to say . she just left. gal at dol gen, the mgr offered me a job . i said heck yeah except for one slight issue. i may end up beibg a monopod shes like a mono what? i said a mono....a person with 1 leg. can you accomodate that? she said sure can. just get cleared to work. if they do that part, ill do mine. im like " its a deal. ill be in touch one way or the other. :) ( weve always gotten along famously ) late night update to come :)
Aaron
Guys and gals, ive not been myself recently after baring my soul and having a meltdown to a good friend, a MAJOR wtf moment id say. ive been looking at this the wrong way. i tried looking thru those goggles again and realised WTF . SO WHAT IF I BECOME A MONOPOD. im still going to be me. and janxsbidea of a gs trike, if i become one, id PERFECT. grafting the axle/swingarm from a 400ex lengthening the axle for stability. using gs drive wheels. this gs will be a honzuki maybe a yam headlight and kawi suspension. and it will be a yamahonkawazuki :D a stiffer clutch to handle the addl weight and -2 up front handles the increase in mass. bearing changes as well as brake changes will handle driveline issues. OH and a trip to a sign printer/decal maker to have to yamahonkawazuki decals made up. on paper this is doable. kinda stoked lol. will work on a rendering over next couple weeks depicting this. ( had this idea for a while. but no need for it.janx thank YOU reignited this plan now with a potential valid reason to actually make it happen. it WILL be an E model
and it will be a 97 i think because that was frankenbike the 400EX swingarm is perfect except for the too short axle. which ill lengthen. but the driveline itself lines up nearly perfectly. and ive got weeks if not months of time to come up with a design. have a friend in oak ridge who is a machinist by trade so axles are covered.. today is day 1 of the new me no matter how it works out legwise1 leg or 2. my load handling has been or will be altered. only thing ive not figured yet is exhaust. maybe a punched gs can on horizontal plane under the bodywork. thats will be the last bit to come up with :) but ill be on a gs again. a yamahonkawazuki but central part, the main, the heart of her will be that gs E. updates to come later on :)
Aaron
the latest xray pics youll see trhe hole in brace unhealing crack is between it and screw above it. more evident on frontal shot
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/Picture0927150951_1_zpswzdphwlt.jpg)
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/Picture0927150952_1_zpsbhak1i4t.jpg)
lol i cant see the pics uploaded st church today. :( course ive got the originals yet sometimes pics are there sometimes not idk lolol
The fascinating thing to me is... Your doing all this posting and such off of a small cell phone?
I would have gone blind by now. :whisper:
Oh, and BTW: If dumping all your issues here on this thread give you some sanity, then dump away. This is probably the first time in Forum History that a thread has been use as a therapeutic device. :thumb:
will be 2 weeks from thursday find out whats next
this is ORIF surgery ( Open Reduction Internal Fixation) this also has some NSFW tones to it because it shows images during process. only difference between this procedure and mine was i didnt have a screw put UP thru the bone along with the plate. you can see the screw going thru the bone. up thru the middle of it. everything else is spot on. again this could have some NSFW or appetite lol
www.drdegroot.com/newPages/MinInvasiveAnkleCase.htm
Aaron
WTF. after reading for an hour on this ( distal fibula fracture/spiral) if it doesnt join together whoopty friggin doo. tbh it bears no weight well minimally at best) as i said if it doesnt join together so be it. just make sure the ends are sealed somehow to avoid osteomyelitis. ( bone infection) . if this isnt possible, just remove it. problem solved. other than some muscle problems, i dont see an issue. PT can help build up muscle, = problem solved. if it must remain. then either screw it into tib for support or just leave it be. if bone starts to necrotise ( die off) yank it. i can still ride at some point stability of ankle might be affected but either a lace up ankle brace or a high top shoe = prob solved. am i overlooking something? it seems so simple. idk. when i see ortho in 2 weeks will discuss this with him.
Aaron
NVM the fib DOES have some use. BUT can be done without .
www.innerbody.com/image_skelfov/skel27_new.html
Aaron
Calling ortho again today. THIS TIME for left ankle tib fracture.bwell occured on 19th aug. you will see the vertical plane i.e it goes up/down or angles greater than 30deg from horizontal. had an ill be damned moment. ankle pain on left woke me up. had my dvd from hosp. with reports and all since 12th august. pulled 19th up zoomed in. ill be damned there it is. now for some reason this happened on outside of distal tib. at fib mortise. however today noticing when i wrapped it either using provided lace up ankle brace it put pressure on the medial distal tib. and it hurt like help. ( and it fails / hits a positive) on tib/fib squeeze test. :/ and hurts WORSE to elevate. wtf lol. i know it wont be painless but was fine since almost day 1. until a few days ago. granted i wasnt 100% compliant as far as NWB but it was minimal. still am NWB (non weight bearing) on right ankle fib fracture distal. repaired using ORIF a titanium plate and screws. bone is not growing together but it can wait for now. the left concerns me. what sounds funny is the only way it feels remotely better is to stand up. :/ meh will update later on as soon as i know something
going over the labs from last hosp. 2 weeks back. then cross referencing issues of my life/health. triple time for union IF it even starts.:
Im a diabetic with peripheral neuropathy diagnosed 4mos ago ( been ongoing for years), then theres vascular issues i have ( pvd/pad Not totally but diminished levels documented.) then theres smoking. i quit almost 2 years ago. BUT I DO SLIP UP. time to quit again. stocking up on an ecig if/when ortho puts me in hhosp again.
Heres a link to relevant info. i shouldnt dwell but i feel better going informed versus going in knowing nothing.
www.ncbi.nlm.nih.gov/pmc/articles/PMC4175856/
Aaron
Intersting update :) i got an ad from photobucket. a 17"24" print of any photo in my collection. thinking of rounding up szome cash its like 17 shipped. going to put it besidee my family crest which interestingly enough has a bunch of DUCKS on it. one of which is one legged.. ill round up some stuff, sell it and order this canvas print. got a 2400x1700 from the dicon program hosp gives you if you ask. going to rais funds and clean house. doc says no load bearing on right. ( non union issue still.) sooooooo ill get on ground level. ill crawl. has to bbe done. hes kinda pissed at me ( adr reat my ortho) restriction is ambulation only for bathroom and food prep. nothing else. im imposing a NWB on left tibial fracture. leaving brace onband clean house. will be fun to order that print. when i raise funds to get it ill take cd over to old workplace and upload it to photobucket get that print and put it beside the family crest. as a visual reminder of not following docs orders. also he suggested wheelchair still does. when they call me today will ha e them prescribe another month rental on chair. ( insurance). today will be fun. set
stereo up it programmed itself. sounds great lol. thanks to janx idea of a gs trike, ill do it adidasguy style. starting with a titled frame amd build it up. im considering installing an airshift. lol am in a good mood for once. today will be fun. illl follow docs orders but ill clean house lol figured how to do it AND follow/abide with restrictions. will crawl if need be or use my walker. today will be good. im in a good mood. cant work due to this so imm be busy cleaning house. :) anyhoo enough rambling. 630am time for bed lol.
Aaron
p.s. more updates later on :) adieu for a few hours. will return shortly :)
Fascinating. :confused:
Aint it though? took aircast off for the night. ace bandaged right ankle.
Aaron.
More to come tonight :)
Got a package delivered. it contained medications for precancerous lesions on skin. was prescribed to me. okaaaay? ive no precancerous lesions. or skin that this med takes care of. i called them. they said apply it to affected area. i said what affected area ,the one your doctor pointed out. i said well nobody pointed out anything. who prescribed it? they said robert daniel. hes an FNP i used to see. last about 4 mos ago. i have to return to them on 5th because of hosp issues. anyhoo ive not seen him since heck a long time. what do i do with this stuff? i have to call the pharm directly tom.
Aaron
called pharm. again. who mailed it. its a pain relief gel. like super strength ibuprofen. i said ok that will help :)
Aaron
popped anoth ankle joint knuckle. damn that was painful. lol. had a weird idea. i take all images at life size ( using mckesson horizon rad station program.) somehow print them onto transfers and put them on a tshirt lol. along with words "Listen to your doctor Eh?" these would print around shirt front to back.
Aaron
Had another dumba*s moment. removed bracing and aircast. elevated legs turned on stereo found a catchy tune. started tapping along to it and singing lol. tapping was heel to toe err toee to heel on right foot. noticed after tapping heel id get these fiery reminders not to do that. couldnt feel it from plate down to top of foot. until almost thru song. tapping is habit of mine. got to NOT do this lol. or do it with left foot. well no cant do that either. well hell ive got hands. could use those lol. weather playing havoc with arthritis now :( winter will be fun :( )
Aaron
They got "winter" in Tennessee? :whisper:
I sure as hell know they got Red Necks!
yeah it will be fun. found out how to get the pics from dicom viewer to pc. i used an old smartphone. a moto x.. took pics then plugged into pc and offloaded them. workin on a weird tshirt idea
Aaron
Think i buggered up my left ankle. this one was cleared for weight bearing as tolerated. well tib was broken on left. but enough was left to not need further attn. now right side burning left sidde burning with occAsional stabbing. :/ wtf. will wait and see.
Aaron
baah weight stuck at 135. have to gain mass to provide room for implant in november. :/ can get belly room but implant goes on backside near weight. any ideas? most of the weight gainers will not work for a diabetic.
Aaron
A slight aha/wtf update. i pinpointed cause of first fracture aug 12th. ( sleeping med side effect= blacking out or fainting. half second BAAM. and i come to) idk if atty will persue this or not. will give them a call and find out. prolly not worth persuing. but never had fainted as far as i know.
Aaron
Disregard. dont have a legal leg to stand on. no worries. :)
Aaron
Went for Hosp followup today. got anoth CBC amongst other panels. checking white could theyre hoping infection was killed. if not :S then back for more antibiotics lol :(
Aaron
saw Dr.Thakur my PCP yesterday. she ordered the blood panels again. my white count may be elevated. if so i get a second opinion at cheyenne in oak ridge tn. if its elevated shes going to put me on bed rest. :( but will have cheyenne insert an iv portal so i can do this at home. its either that or i spend another week in the hospital. which i dont want to do. mainly because on the 11th i have a church function i MUST be at. if hosp. is necessary they would let me out long enough to handle that business. then return. but if i can do it at home ( iv stuff) im good. now tomorrow i have wound care which will start the LOOOOOOOOOONG process of taking care of the septic ulcer on foot. mainly involving some painful outpatient stuff. and maybe hyperbaric therapy. i begin this at 830 well at 9 it begins. if they use a toe block it numbs half my foot. which is dangerous if i dont wear the aircast. i stumbled last time ( last year lol) now my left foot. which had the aortic ( vertical) tibia fracture. ive damaged it further. i feel. it broke on outside between tib and fib ( fracture on outside but i feel on inside. going to try and wait until i see ortho on 15th. might have to get a ct scan. something was damaged further but that leg was for most part overlooked. if it is relegated to NWB im screwed. got to go pay a bill tomorrow. which will be painful. but after thatbim going to deep couch city for a while. weight is still at 132 ( slight drop.) btw anyone know of a weight gainer a diabetic can use safely? i have to put on some mass in my mid section before the implant surgery which is on the 27th for the trial. perm one is maybe 2 weeks later tops. more to come in update land. oh going to make a tshirt out of my rays oldest to newest. saving the 20 to do that. i have in germanba saying which would be " listen to your doctor Eh?" will post the layout here when finished. cause people keep asking how it happened. that and im weird lol.
Aaron
Ps. a good update. Dr. Thakur is also an endocrinologist which i was in search of. she asked me if i wanted to go back on insulin pump. which i was OH HE*L YES. she was an endo with the NHS in the uk. this will help stabilise me so i can fight the infections in my body from the wounds. plus if they or when they go in to do a bone graft or whatnot it will help there. ( plus i will ask them for the old plate. which is titanium im going to make a few things out of it. rings and whatnot. which was part of my anatomy lol. yes im weird lol.
Aaron
Over at wound care. i cried when i had to take off the left ankle brace. the one not giving much trouble save for the last 2 weeks. change of plans... 1 brace removal brings tears to eyes. and nurse notices swelling. Soooooo going to go across st to ER. WILL UPDATE
Well broke left fibula now. just got out of ER. they didnt give me anything for pain. but meh that happens sometimes. the bone broke near the tib fracture. an honest to goodness tib/fib fracture. this has set me back a month healing. this blows. :technical:
Aaron
Baah sometimes just want to give up, but im too stubborn. if my left leg has to get plated and screwed so be it. BUT i do want to figure out how this happened. this fracture was a few days old :( before diagnosis. but ive no idea how it happened :(
Aaron
Lookin over the dvd images rackin my brain, cant figure this one out lol. had been minimal use of legs. and no jumping, or anything beyond a cane assisted walk 10 feet.
:technical:
Aaron
My idiot self sceduled the ortho visit for tomorrow. it being a holiday mass transit is not happening. but latest fracture im guessing is close to 2 weeks old. :( so 1 i figure out its next step, as well as next step on right ankle as well.
Will update further. if left side gets plated like right did, ill be like my flatware ( triple plated lol)
Aaron
Just left ortho, evidently the fib on this tib/fib was overlooked. no wonder i couldnt place it. he didnt check the no growth right one yet. ( the Ti plate) that one will check in 3 weeks :). said trying to avoid usage of a cast. ( referencing the incident 3 weeks previous) anyhoo made my way into the nether regions of this hospital to get a copy of my films. idk its a mystery to me lol. still NWB on either side. so other than ambulating to and from kitchen or bathroom im chillin lol. :) updates to come :)
Aaron
Good GOD This one is gnarly. thr fib slid fwd a quarter inch. still waiting for effusion ( swelling) to go down. got a feeling this will be plated. couldnt upload to pb for some reason. this one is still a mysetery lol. been almost lazy will see what he says next time.
Aaron
You're becoming an expert at this stuff. :whisper:
unfortunately. trying to upload pic to my pb acct. in ascii format fx looks like //. lol. will try and forward from my gmail acct. this would explain the pain beyond normalcy. will try and edit with pic. this phone blows i cant upload pics it seems to pb anymore
weight back down to 131. pain in left ankle ungodly today. not sure where to go with that. ortho wont see me again untilnearly the end of this month. i removed the aircast. far less pain. my phone wont allow me to upload pics from this geezardly pos. anyone willing to host it for me? ill email 2 of them one from the 19th of aug.. showing just broken tib. and one from the 7th of this month, at which point was feeling severe pain for 2 weeks previous :/
Aaron
Tens machine, one pad below side ankle bone and one just below knee on same side, low intensity and slow pulse.. . ?
i go in for a minimed spinal cord stimulator on the 27th of this month. this implant is anbout 2.1" square and a bit over a half thick. since ill be getting many MRIs over next few years, have to also get the leads that wont short. the leads will be placed in the epi area of spinal cord. which will then trick the brain into thinking pain feels different. have 2 choices on powerr. a 10year cell or arLi-ion pack. been setting this up with insurance for close to a year. theyre covering it at 100% ( of arounkd 50k) talking with surgeon to see if they can also set it up to handle the arthritis from ankleso.h also getting another insulin pump soon :). life is getting back on track :). only bad thing is fib fracture on lefts ide is hurting loads worse over past 24 hours. may have to have it looked at monday. ( what im aiming for
Aaron)
Although not much er could do... i do have an unset fracture atm. have to wait for it to calm down before ORiF. so not really much that can be done. frig tho this hurts like day 1 of fracture. unless tendons or ligaments are damaged any worse. or bone just shatters. i understand what my ortho has to do. frig tho. i hate waiting lol. cause the bone ends are picking up on this weather front coming in..
Aaron
Righto :) ... whiskey/bourbon/rum/absinthe? ;)
I dont drink anymore. unless my kidneys act up then i might partake of a beer. last thing i need with 2 broken ankles 3 bones total is to be drunk lol. i.e. a round of drunken frogger a few years back scared me lol.
Aaron
Think i messed up L ankle again. i GINGERLY stepped down into the den, SLOWLY felt the 2 fibula pieces grind on eachother my GOD this hurt. foot is numb AN COLD ALONG with a burning sensation. an odd combination. the posterior of the shin feels like am wearing a soccer shin guard back there. and now the medial side of ankle joint is burning. Feels like day 1 again nearly slightly muted but that pain. no mistaking it. BUT hosp would tell me to go see ortho. who cant/wont do anything because its still not set and waiting for swelling to go down before procedure. other ortho wont work on top of another orthos work. i seriously was taking it easy. used walker did everything i should have ( except the bearing weight part a no no. my home however wont qllow wheelchair usage throughout. Keeping eye on this throughout weekend. if i have to ill wait til my ortho is on duty at hosp. and go then. hoping i dont have to go tho. :( weight down to 136. Didnt eat today. no appetite (pain). will try to eat though. will update :"(
Aaron
Just read through this lot. Man, could you have any more bad luck. With the way things have gone, stubbornness and perseverance are your best assets.
My thoughts and prayers are with you, and if it helps keep posting. There's not a huge amount we can do practically, but know that we're all here for you.
The very best to you,
Take lots of care,
Barry
thank you.. if i have to look at it this way, im pretty nuch out of bones to break lol so i can focus on my wellbeing and climbing back up lol :)
Aaron
Foot still numb, cold and burning. aka nothings changed. i tryot o move my foot while its elevated so it doesnt totally go dead. ie fall asleep. will see a new level of pain tonight with temps in upper 30s F. will update tomorrow on that. this will be my first taste of what winter shall feel like :"(
Aaron
How odd. . . It doesn't heal, yet it doesn't atrophy.
It's quite the conundrum your in. :icon_neutral:
Tell me about it. ill be glad when this is over with :/
Aaron
unpleasant days in ankle land. more info to come next few days. weight down to 138 with bracing on (4lbs?) its the lack of muscle. going to find a wading pool. can build up some muscle that way.
AMA i took a stand up shower, predomantly balanced on plate leg. got maybe a chance for 2 more before tuesday ( spinal cord stim trial setup) after that sponge bath until trial is removed. ( 5 to 7 days) which runs close to ortho on 2nd unless i go in earlier. ( going to try to hold on until then idk.) course if i shoot for say wed the 28th then ill be good. then there will be work on L ankle. prolly plate and screws. perhaps with a SYMB screw too idk. will see. more to come :S :).
Aaron
I'm not sure how much help this will be or whether it will apply to you, but....
I just had a hip replaced. Full replacement too, so for the better part of three months I have been unable to walk properly/at all. To take a shower I rented a special bench (a bath transfer bench) that went over the side of the tub and I could sit on it and slide over into the tub/shower and there take a shower and slide back out, all without putting any weight on my feet. It worked really well for me and I felt (and smelt) better.
Just a thought.
Good luck with your appts.
Barry
got one of these in home from mom when she was alive :( just the tub shower its pressure sucks. i had converted a 3x3 closet in bathroom to a stand up shower. although the bench WOULD fit in there. fun part is getting that thing out of the basement.
Aaron
Quote from: yamahonkawazuki on October 25, 2015, 06:33:17 AM
. . . fun part is getting that thing out of the basement.
Aaron
1.) Do NOT try to haul that monster up the stairs!
2.) If you DO try it, be sure to have a camera running to film it, (and wear a 911 pendant). :thumb:
Cool!
its not terribly heavy. since the ethra fiasco. i wont climb stairs ( left leg loses muscle control) ill crab crawl down, get the chair get it to landing turn it on its back, affix nylon rope to it (1/4" diameter) crab crawl up stairs then rope pull it up.
Aaron
Phone a friend bro! Gotta be someone around town that can move a few bits as a helping hand?
what i call friends of mine for the most part are undependable. OR theres this option as well. ive several plastic deck chairs. one of which could be pressed into service temporarily
Aaron
on a semi relevant note, trying to shake a chest cold before tuesdays procedure. this brought up an observation of mine over the years. cough medicines ( and flavors)
only one that didnt bite was grape dimetapp.
moving on, if it was red, it tasted bad but was tolerable, if it was blue it tasted bad but meh on tolerable. if it was green it was bad on both fronts.
Aaron
Using the plastic chairs in the walk-in shower would work just as well as the bench because the bench's greatest attribute was that it straddled the side of the tub and eases the task of getting in by enabling you to sit down. A simple shower hose also means that the water can be directed to wash all parts of the body without any unpleasant bending or contorting.
Good luck with it.
Barry
Cool. :) this will work. btw your hip replacement, is it metal? i know the plate in R leg is and in all likelihood one will be in L too. ( Titanium) i thought in a humerous note, could walk thru a metal detector stark naked and still se it off. lol. THAT i wont do btw, just a random off the wall thought. anyhoo moving on, trying to shake a chestcold before tomorrows procedure. not flu thank GOD. ( no fever or bodyaches) just pain from fractures and arthritis (related to fractures)but tues. is the trial for the spinal cord stimulator. ( which will help with the diabetic neuropathic pain. And in this case the arthritis from the FX. BUT IT ( TRIAL) its leads are inserted into the lumbar region of the spine. trial device is worn on belt) they wont do it if flu or chestcolds however. so trying to shake it. ( this is done at my Pain mgmt docs office.)2 appts tomorrow.pm appt and the trial. cool thing, same location :). delays though would not work, cause that usually kicks things out about a week. Ortho appt is a week from now. perhaps plating too depending on OP room availability. L ankle is all but numb atm so i think i can hold on til 2nd ( was tempted for earlier at TOC/ortho)but since FX is all but numb and i can still feel foot. ill try to wait.
. cause If chestcold thing doesnt pan out, it will develop into a progressive monkeywrench fiasco.
(cold throws monkeywrench into trial. postponement throws monkeywrench into ortho with the possibility of ortho throwing monkeywrench into woundcare, which would see the thrown monkeywrenches and throw one back at me lol.) :technical: situations like this i dealt with when i worked at pawnshop/jeweler at pawnshop. boss is like how the F*ck did you handle that? something i excelled at at the time lol.
Aaron
(future plans are to obtain my gia certification/along with the credentials for rolex and breitling ( all upper tier wristwatches) and go back into jewelry and watch repair. watches i can handle already. but i was self trained. so id void warranties if discovered lol) anyhoo long winded P.S lol. figure ive got a long recovery ahead of me . this may be the time to begin these studies (or if allowed, to take the certification exams) learned the old fashioned way as an apprentice.
Yes it is a metal spike that runs down (inside) my femur. The head bit is all metal too and there is a metal insert in my pelvis with a plastic cup in it. Truly I'm bionic now, but maybe at the cheap end of the scale. I've not had it long enough to try flying yet, but my wife had a knee replacement and going through security was a game and a half. Extra attention every time. I also have a bit of wire holding my ankle together, but that has not yet triggered the metal detector. Makes me wonder what happens in an MRI? As for going through the metal detector naked, I wonder if anyone would notice the alarm going off> Food for thought.
Good luck with trying to shake the cold and I hope the trial goes well. I'm not sure whether you want to be found guilty or not, but I hope you get the result you want. You can always try to fool the doctor that you don't have a cold by not breathing and surreptitious nose wiping.
Best of luck,
Barry
Sorry. lol should have elaborated. the trial is first phase of stimulator. to see if it works/will work ;) so far so good
I see a potential problem perhaps developing. had the spinal cord stimulator trial procedure performed this morning successfully. after epic anesthesia wore off spinal collumn itself from lower middle back to a fe inches above beltline. feels as tho i tried to pick up an obese person or a backbone after a HARD days manual labor. i feel it within a 6" spot as i said in middle back. feels as tho i could use a good back crack. No i wont do that. it could be lethal lol. i called the minimed rep, letting her know. and asking whats next. as well as asking if this is to be expected during recovery. this was mainly done without local anesthesia because of the epidural fentanyl injection but beyond that the procedure itself went off without a hitch. i have to be careful because the electrodes are not sutured in place like the permanent ones are. which is no big deal they are secured and the giant tegaderm bandage is securing the connection in place. the connection itself is sutured in place to minimise CSF LEAKAGE which for most part hasnt happened. ( minute amounts) typical but tolerable. but i cannot stretchbeyond a few degrees forward or back or sidewards. without risking breaking of connections. awaiting her reply as to what to do next if anything. will keep updated here. will also post a pic of the tegaderm cover but will have to edit the nsfw out of it. it is STIFF and if an addl degree of flex, painful. Damn i gripe too much lol . surgery is never painless nor is recovery. expecting as much is naieve. this localised discomfort tho im checking in on. will update as i know. or later on this afternoon. both more than likely. what i would give for a massage to that one location to immediate left of column though. lol.
Anyhoo will be back soon friends.
Aaron
This sh!t is hard to believe. :icon_eek:
I dont even know what to respond with anymore <sigh>
OK then... Hope all goes well, and keep us posted.
-Ej-
its all good EJ my friend. :) i have high hopes with the the device trial. a tens unit which works from the inside out i can turn off the pain. something ive wanted to be able to do or at least change it. btw the minimed person said what i was feeling was recovery to be expected. she said it gets worse before it gets better. but thats ok. :)
for 48 hours im medically grounded. cant stretch, bend over to get something off of floor, its fine by me. as long as i dont jar the electrodes loose in 24 hours. im good. NOW the funny part. for 24 hours i have to figure out how to do something i already know how to do. ie get dressed. etc found myself at various points just standing there goin okay what next. im sorry yall dont want to hear about this. ill stop.
Aaron
i keep getting this vibe like nobody wants to read this. i write a while, erase , rewrite erase etc. i do apologise. ill figure out what to do with this thread.. again apologies.
Aaron
I seem to be boring people with this thread. although no ones said anything. its a feeling i get. i know its true because id update it, with relevant info and id look at it from someone elses POV and think Wtf okaaay? im reading this why? i would use it as therapy. but even that doesnt help sometimes. have plenty of extra pictures, including the SCS ones buti have to look at those from a moderators POV because some could be considered NSFW. some of the daily actions although funny, again could be considered nsfw. or i know what happened that day but have a hard time putting it to words. ala writers block. considering making copy of the entire thread off board and figuring out what next to do with it. So i wont bore you my friends with this any longer. will figure out what to do with updates. it seems im unable to keep it short and to the point. ala cliffs notes lol. ive always been detail oriented. next juncture in the project ankle dept is monday the 2nd. this one will be a significant update. but i feel as though it can be added to the broken bones thread.
Aaron
Quote from: yamahonkawazuki on October 28, 2015, 12:45:44 AM
i keep getting this vibe like nobody wants to read this. i write a while, erase , rewrite erase etc. i do apologise. ill figure out what to do with this thread.. again apologies.
Aaron
Keep posting mate!
Without this thread you'll crack. :technical: Perhaps go full loony! >:( :woohoo:
So yeah... Come here to purge & vent, etc...
i had a detailed message written. then an amber alert froze phone :technical: now ill summarise it
New photos i cannot post because it shows the minor bleeding and csf leakage happening. could be NSFW sans edit. (yesterday) cant describe daily activity suspension ala medical grounding because it could be considered TMI. BUT without posting it it neuters rest of story.Could enjoy goin mildly batty. mind is blocking me atm. i could talk about the SCS but that can wait. really ive covered everything. until monday and tuesday ( monday is ortho and plan for yet to be set ankle fracture. at 5 weeks. and wed is removal of SCS Trial device and its simulated turets outbursts lmao. but telling it now tells only part of it So am suspending it until mondays procedure. the simulated turets is nothing more than that. simulated. it involves me learning how to use the device lol. until then friends
Aaron
i will go ahead and explain the SCS "simulated turets" it is kinda funny. i activate the device nerves start becoming happy. or pain free. almost. anyhoo i set the power level. this can be altered by body posture/position. if i lean fwd or back from straight upright it gets stronger, if i tilt head fwd or back, same. if im not ready for the increase, it can catch me by surprise. i usually say something funny and loudly. or if im gassy i could fart lol. ( happened at setup lmao ) doc didnt bat an eye and said " welllll. that part works" i have to get used to what triggers the increases. im kinda looking fwd to the perm one because it makes this pain more than tolerable. and it can be left on or cycled as needed. i was playing with it, set rate to 30hz solid, was listening to some music the 30hz was working with the music until i drop the remote. i lean forward to get it, forgetting what is about to happen and it gets QUITE a bit more intense. not painful but intense. i forget what i said something like erno rubiks balls. ( have two of those infernal puzzles.) so this explains the " simulated turets" the utterance is always humerous. there WILL be an update to this aspect of the thread. because ive got church sunday. i may speak there also. lol. stay tuned.
Anyhoo update sunday on this, or may wait until monday and update both.
Back to idle for now :)
Aaron
Yeah keep posting Yama! ... I read thru the posts, some interesting info! ... and if you talk at church.... make sure you do some bends ans stretches same time! ;)
that could be very dangerous. the connections to the nerves are secured but not permanently . if electrode slips , best case, nothing more than a headache. 2. slightly worse, pain and probably i drop an Fbomb lol. beyond that id be in a hospital. course if i dropped an fbomb in church i could never show my face again.. that aside i could work movements just right to manipulate my voice. normally our church picks speakers. ( we dont have a paid clergy. speakers like myself are of the congregation.) but 1 day a month anybody can rise to speak on any subject. this sunday is that day. its perfect because i can test this device in detail mode plus i planned on speaking anyways. :)
But as far as this thread goes, mentally my mind is stifling itself because i dont want it to become a postwhore thread. that and most of the subject matter ive already covered. except for the images from this spinal stimulator procedure. (post op) i will post this however you and i both know as mods first, blood and csf leakage could be an issue for some. so i have to edit or minimise that. ehh maybe not. i can always remove it or put up a NSFW warning. anyhoo that image, if i can get my hands on a copy of the xray film showing the actual connection to my spine, i WANT that one lol. kinda resmbles a bomb lol, the minimed rep/programmer who was assisting doc/surgeon has the only still copy of it. doc procedure is the xray machine shoots video for lack of a better term. so that still she has , would be my prized image lol. she calls every day to discuss the device so ill ask today if i can get a copy of it. then later on when internal one is put in. that one too. anyhoo [/ramble off] i seem to jack and postwhore my own threads . so doing my best to keep this one on track. subject matter is all relevant well mostly lol. and i need to minimise the double and triple coverage of the same thing. ive plans when im able to get internet service again, migrating this data to a blog. this will be a few years long . site is getting a plug ;) at the beginning when i launch it. :) a paragraph at the beginning actually. then the text from this plus additions .[/double ramble off]. just trying my best not to go batty in the process. which is why i self imposed the idle.
except for updates and developments. may get rid of the mental idle/thread idle, soon but right now only way i know if it will work is to try it. a few days ;)
Aaron
Definitely keep posting! Given how much you write it obviously does you good, if only to vent steam. If you didn't, you would end up with steam coming out of your ears and then curly hair :laugh: As for no-one wanting to read this - are you kidding me? Just look at the number of replies you get and I'm sure there are more readers who choose not to reply.
I think Electrojake put it very well:
Quote from: Electrojake on October 28, 2015, 01:05:38 PM
Quote from: yamahonkawazuki on October 28, 2015, 12:45:44 AM
i keep getting this vibe like nobody wants to read this. i write a while, erase , rewrite erase etc. i do apologise. ill figure out what to do with this thread.. again apologies.
Aaron
Keep posting mate!
Without this thread you'll crack. :technical: Perhaps go full loony! >:( :woohoo:
So yeah... Come here to purge & vent, etc...
So don't stop posting.
Take care
Barry
Hopefully minor update. strangest feeling ever. firstly the device is turned off. was planning on activating it. then retiring. making note of how body is feeling. in an instant picture someone flipping a light switch, body feels different. pressure at back half of head very slight nausea.. oh this plus the either developing or improving chest cold. running concurrently. active phlegmy cough. my temp yesterday was 1 over my normal of 97.5f ( mom and me both always in 97s) i was 98.9. oh not a headche at all just pressure. anyhoo figured it put this in. if its nothing more than a mild flu or whatever that would be ideal. problems with this device would not. idk will see. will bring it up with the minimed rep. the quick onset of this feeling literally .5 sec . will see what she says.
Aaron
if nothing more than chest cold. then next update probably this sunday
ok update.
Until i confer with medical today, ive narrowed it down to two possibilities. either the chest cold has developed ( cough productive lol when i dont try to stifle it.) no fever its 97.7f ( normal for me) stomach no nausea unless im coughing. painful as hell at the electrical/sensor conncections when i do. so yay no flu ( did take shot in october) stomach feels like its painful or empty ( it isnt empty ) just overall pressure in my head (sinuses?)
Or its a mild version of a CSF headache. so time to be scarce for a while. just had to update.
Aaron
Update. my body is telling me this discomfort was the chestcold i was trying to shake the other day. it wasnt shaking it was building. the head pressure etc and the productive cough. i have to stifle this cough as much as i can until the scar tissue builds up a bit. dont want to risk shifting the electrodes. would not be good.
moving on. the giant tegaderm about caused me to panic. i woke up in a coughing fit, and felt a new sensation. adhesive removal on lower right hand corner. the tegaderm is huge (8x10) the electrodes are far away from this percieved peeling feeling. and only way i can check dressing is to use the 6x4 bathroom mirror. what im feeling is the perimiter bandage peeling loose in that section. will have to reapply it by touch. (doable) it wont be pretty, would be like painting the mona lisa with crayons. ugly but there. :).
Now church.
sunday as long as i dont have a high fever, im going. will carry a few of those flu masks with me though. if fever is 99f plus im going not going. going to talk with rep about all of this maybe within an hour. then plan next move.
Back to idle mode. have a bill to go pay today around 5pm. Aaron
Btw found this blog while looking these developments up. It is my daily life in a nutshell and the example i will use when i set mine up.
imlivingoutloud.blogspot.com/2006_07_01_archive.html?m=1
I hope for the best for you, man.
Thank you.
Aaron
Mini-med Rep. a true jack of all trades and required master. firstly not really sales, but has to have intimate knowledge of the product. memorised. then nurse, computer programmer, and if need be, surgeon/pa-c with a DEA number. ( mini-med, boston scientific, avensa etc.) and be on call from patients 24hrs a day. all of this without a grey hair on her body lol. moving on.
REP is concerned now because of the developing situation. now shes leaning twd a csf headache, with infection potential. infections im not normally worried about not even the sepsis episode post ORiF. my body can usually defend itself. what concerns me greatly about this is i have 2 open lines into my immune system via ther spina lepidural area. its not sealed because the electrodes havet o be removed at end of trial. if tegaderm fails it opens the door. ( fairly rare tho maybe 8% out of a tho) myn ormal temp is 97.5 orshe said if it goes beyond 99.8 f i may end up in er dealing with meningitis. cthe chest cold i have to stifle for another 18 hours before electrodes are safe.: with chest cold could dev. into bronchitis/pneumoniqa. but ill be fine. , guess this is why they dont like chest colds and such. will keep yall updated. :technical: thi s99 cent phone is dying going to give it a break for a few hour
Aarons
Here comes yet another round of feeling like hell. as a diabetic eating is a must. hell eating is essential to life. but to a diabetic even more so. totally today ive eaten maybe a thousand calories. the side effects of the SCS-T are literally killing me. im playing chicken with it. lets set that aside for the moment. this device, once implanted will give me my life back. my QOL was on a downward trajectory. chronic pain = eating less, which exacerbates said chronic pain, which makes me eat less. doctor in 07 puts me on med mgmt for this which helps.. ALOT. Anyways my QOL starts going upwards. ( QOL= quality of life) anyways ex friend calls again begging for meds. not directly but happens every time, small talk, then i say i dont have any pills. surprise call has to end lol.( still have nearly entire amt) im getting over his sh*t so i feign defeat and say you know what? you can have em all. ( oh hell no that aint happening ;) ) i fill an old bottle full of pea gravels for weight, and similar noise value ;) i meet him off property and toss him the pea gravels . he looks at that saying heh some friend you are, then his mouthy gf starts piping off. i interrupt her saying " this is an AB conversation i dont C you anywhere in it. mind your own business" seems the only way to get her to shut up is to piss her off. back to him, i said some friend? hes complaining agaqin abouta bad day at work, and aches from an ankle FX over ayear old. i said whoopty effin doo. i point flashlight at plated ankle fx, he starts but but... i said i aint finished, then i remove aircast show7ng other 2 FX, BUT but .....i said im still not done. i turn raising my shirt showing the electrodes from the SCS - T. but but........im still not done ( well physically i was except for the headaches and the stomach pain etc from the nausea and not eating much. said now im done, now firstly, where the f&*k is your child?? hes like roomates arfe watching him ( child is a bit over ayear old) i said wait a moment, u turn the scs back on and put aircast back in place. i said sorry,if im going to go off on someone im going to even the odds for a bit. said now back on topic, you leave your infant son in the company in the company of pillheads,while you go to acquire pills. so you think. that is just not only f^&ked up, its beyond morally wrong you could have left the minion at home.. she goes off lol. i said look at that house over there, lived in by a police detective, see the house beside it? a dcs worker who is Good at what she does. VERY good. then i pull phone out. i said cop friend willmake sure youre home in 5 minutes. dcs worker will be waiting as well. so if you want to pull that friend crap. heres a glass of GTFO. if that is what a friend is. around here ill do without. i never want to see your worthless pos faces ever again. im not worried about theft of those things. ive got nosy neighbours. plus theyre both lazy. called both neighbors, asking for a welfare check at their residence. anyhoo sorry. just returned from this. trying to unwind from this. the infection im dealing with, ( plus chest cold etc) the side ffect from this is it stifles my appetite. i eat, i get nauseated etc, back to that vicious cycle. once side effects nd in all, its golden. it felt good to finally get rid of that POS. once and for all. got my friends here im good :). now i try to heal up or at least hold it together until after church. then i can begin rest of work on me lol. a week of this then i will be able to sleep for a while :)
Aaron
Good for you Bro! .. clear the trash!! :thumb:
A positive step for sure! Well done!
it needed to happen. friend would call on ya, whether you had something or not. with that POS out of the picture, literally have 1 friend in this town well no 2, one is undependable but not like that specimen. this one likes enjoying herbal cigarrettes so much so that he occasionally forgets to show up when he said he would. but thats cool. hed lay down his life for me. beyond that, theres my boss from old job. we got along famously. well 3 friends. nothing else. boss and his wife. i dislike dishonest people. i dont ask for anything . just honesty. be straight forward with me. nothing more, nothing less. or as the saying goes, you are the company you keep.
im here alone as i heal ( or try to). if i see someones number and i know theyre calling about drugs ill answer i dont have anything you can let him know that too. i dont do that kind of thing. let him know Eh? call ends shortly thereafter
i need to go curl up and be scarce for awhile. the coughing fits are painful. and dont want to risk losing that devices connection to the spinal column. need to rest until sunday, once done at church, need to rest until i have rest of procedures completed. i swear this is mentally draining. nvm physically lol. :) yall take care will update this thread later on today. :)
Aaron
Congratulations. The idiot is not really a friend at all, just a user who sees you as a source of free pills. You did the right thing.
You're going through the wringer now, but at some point you will be able to look back on this and think "Thank God it's over". So stay optimistic.
Take care of yourself.
Barry.
Or as the saying goes " With friends like that, who needs enemies" its not the emotional a$$ kicking from this exchange, its the drain from this inevitable encounter, combined with the pressure of the health issues, and really i dont miss him and tbh didnt care for her in any way shape or form. the pills although they help me a great deal seems around here puts a target on ones back. tempted to inquire about having an implanted pump take the place of the oral meds. 100 tims smaller dosage, and one would have to commit murder to steal the meds lol. anyhoo i see 2 surgeons this coming week. monday is my ortho. and we formulate a plan on the repairs and initial setting of the bones ( est. 5 weeks from fx date), tuesday i have trial device removed and electrodes disconnected from spine. then to wound care. i tried to schedule all 3 on one day. i can stand at hosp look left and see pain doc, look out and see hosp. alas no. but 3 major things in 3 days wound care might be closed out at that point. its healing. blood flow in toe not so great but it is there
blech. trying to keep a simple cough from developing into a chest cold ( FAIL) or pneumonia. should have passed the thing first before procedure. now coughing carries a couple risks for a few days. have to minimise it until after midweek
Aaron
Oral Codeine is your friend. :whisper:
Adding an expectorant is an option.
Decongestants have other complications, and we wont even begin to discuss antihistamine usage.
OK then, Codeine it is! Reduce that body-jarring cough so your other problems can heal. :bowdown:
forums.webmd.com/3/pain-management-exchange/foru/5608/9
this covers it. im am effin skinny... im 5'10" 135ish because of the ankle FX.
1. monday i go to my orthopaedic surgeon to set my fracture in latest incident ( and by GOD hopefully last incident.) swelling went down to point i can feel the broken bone. not an exact time of injury like the others. i called asking for a brace because aircast was used to cover R ankle after sepsis incident late sept. he doesnt want to use cast again because of that incident. ( just roll up end if need be or give me another airboot.)i may have popped a screw loose because of lack of support right now. my bones arent hppy. but ive got 7 screws in place. so it SHOULD BE okay. will xray that one as well. now back to L. it raged for a bit other day i would have considered a smith and wesson painkiller. but after strong prayer and soul searching i permanently forgot that option. and i cranked up the SCS to a strong 20hz square wave. ( BAAM buzz BAAM buzz etc.. i found the setup program which was installed. i mentioned a hypothesis i had dwelled upon. a program which would mimic a bass line found in almost all music. the test program proved it is possible. just no ones developed it yet. discussed it with rep. she was unsure if program could be developed. i said after the inplant surgery ill volunteer myself as a gujinea pig. anyhoo, monday i meet ortho to begin ankle work. perhaps surgery this week.) then tuesday my pm doc and the neuro remove test unit from my spinal cord. while im awake lol. i heal for a few weeks before perm one. or a morphine pump. wed is wound care. im too effin skinny. not much body fat. NO pics of my butt lol. will post pic of test unit once i edit the blood and stuff out of dressing. also going to get my hands on the fluoroscope pic of electrode placement. xray looks like a bomb lol. ankle makes me nervous heel has now rendered me nearly flat footed. anyways mentally and physically spent. going to curl up and try to relax. maybe take last of my cash and raid a buffet. should have enough for that. anyhoo curl up time.
Aaron
That sorry sack of sh*t still begging for meds. had plans for the cash in my pocket, but i guess its a blessing. this phone is going downhill so ill take it and grab a beaterphone from ebay and change my number. getting law enforcement involved really isnt an option atm. because it would imply that i associate with pillheads. which i do not. although i can via non official measures ;) one of their detectives i used to work with ....... :) can change number for free but since phone has its issues... should have lasted longer. but i guess postwhoring was not included in its list of qabilities.
Aaron
going to search fleabay for a verizon smartphone. orjat least something that i can chain to my tablet. but dude hassling me is beginning to piss me off . yesterday was just an annoyance. i am slow to anger. my fibula fracture just let go.. felt a thunk and leg shifted over to the right. i could visually see this. funny thing is it isnt anymore painful because of the SCS. scs comes out tuesday. i heal from that for 3 weeks or so. the permanent one then is inplanted. but in my case , WHERE? im skinny, i have no arse, a bit of a belly, idk. lol. its either this device or a pain pump. it stores fentanyl or morphine or whatever internally and pipe d into my epidural area. either way the scs or the pump is the end of the line. the recovery pain from the SCS, as well as the fractures is going to blow. idk if i can mentally handle it. ( picture a 10 scale 10 being worst pain) picture being a 12 or a 15 for a few weeks, then a solid 10 for 3 or 4 mos. once this is done im hoping i make it upstairs lol. things improve. i jerry rigged a remote control on my comp. so i can have movies and music on demand. ( i was given a microsoft presenter 3000 at goodwill. adapted this for the pc. its a powerpoint presenter. i could always convince that guy i keep my stuff in a safe deposit box. i could ignore him too. idl.
Aaron
www.medtronic.com/patients/chronic-pain/getting-a-device/neurostimulators/about-trial/index.htm
heres what im getting removed tuesday. thing actually is helping me deal with this bfraqcture pain.. so if my ortho waits til after tuesday. it will suck lol. been almost 5 weeks on this fracture. :"(
Aaron
The spinal cord stimulator trial. It comes out Tuesday. Permanent one is internal or the pump. Either one is internal. Dept I'm skinny. Very little body fat.
[img]http://i84.photobucket.com/albums/k2/yamahonkawazuki/Mobile%20Uploads/IMG_20151031_151544_808_zpswubs8z2p.jpg[\img]
Aaron
Codeine isnt an option around here without a prescription. neither is pseudoephedrine. thanks to the damned tweakers. i drained 2 bottles of DMX based cough medicine. may just wait until after the SCS appointment and then give the lungs a good coughing. i wished i still drank sometimes. ( gave this up for church) 2 shots of everclear and id clear my lungs nearly instantaneously. i go to church with a radiologist. i showed him my films today. he wants me in the hospital. :/. offered to take me. i declined. told him ill be fine. besides i see my surgeon first thing tomorrow. i shut off the SCS per his request, he said lets see what happens when you do this. i was crying within 5 minutes. this scares me to no end. i have a high pain tolerance. what scares me is pain hasnt stopped since the fracture again the first of october. well almost 5 weeks ago. has yet to be set. so tomorrow that happens. theyll re xray it, and figure how to begin to repair it. just hope they dont set with external fixation. if thats the case i get screws run into the bone from the outside. plus an easy source of infection. idk what type of FX it is on the weber system yet. or if its changed. if im not brought to surgery immediately, it will be set then the surgery is planned. if im delayed, im going to ask if it would be safe for me to use the SCS trial for a few more days. ( think im allowed up to 10). and bless her heart, a lady i go to church with who flirts with me gentle touches and whatnot, i brought her to tears today. one of her " hey honey i miss you" type of touches. this was right on the spot where the electrode/wires were. i was standing briefly to position my wheelchair. the pain made me scream and black out. and fall. poor girl she thought she hurt me. ( well she did but it was unintentional)
I collected myself climbed into my chair, and asked her to join me out in the hallway for some privacy. apologised to her, she tried to apologise to me. i said honey, your apologies are not necessary. this is the first time you had seen me since i had this device set up. Device? i had the edited pic on my tablet ( blood and stuff cropped out.) sqaid where you touched me, i pointed one of the electrodes out. i said here. these 2 electrodes each having 4 connectors. each one of those is connected to my wspinal cord. if you want to touch/greet me like that im okay with it :). if im ready for it. but to play it safe, until i heal, if you have to touch me, ( i pointed out where. nothing perverse lol) she gave me qa hug then we went back into classroom. i then explained to class teacher and also explained thid to others. teacher was the only one who knew ahead of time. i will have to explain all of this to ortho and staff and maybe hospital ppl tomorrow.
Aaron
Yikes! :mad:
An electrical storm might be catastrophic.
This thread will be famous some day. It will be preserved. Such a story exists on no other forum.
Stay frosty, mate. :cheers:
And D day begins shortly. awaiting bus arrival to get to orthopaedic surgeon. depending upon diagnosis will decide whether im addmitted or procedure is scheduled later on this week. it depends upon the severity of the problem, how fast he sees it deteriorating, etc.i should probablyturn off the SCS ( current generator)because one of its side effects is desired. it pretty much kills the pain from foot up. the yelping incident at church is what it feels like with it deactivated. the radiologist at church gave a second opinion via xray examination. would have been a tad more accurate with updated films. which will happen shortly.
Aaron
Fib is bent, ortho says its within an angle. he says its within limits. maybe it is. wished these limits felt better lol. says i can begin ROM excercises ( range of motion) if it doesnt hurt too much. um whats too much?will post pics as soon as im able to get them all.
Aaron
Slight discomfort is ok , sharp pain is not, I always got told to carefully explore the motion up to where you know it's gonna be a pain rather than an ache!?
yup. what ive been doing for a couple weeks off the record. ;). theres been a constant burn at the posterior side of it ( the back) id notice it if i was on my feet for a bit. ive got 1 night left of the SCS trial... that pig is getting cranked up. when i go in to have the leads removed from spinal cord area tomorrow, probably going to take the walker. not sure exactly when chair rental is up ill check papers, but ive an appointment in 4 weeks. still NWB unless necessary, but not 100%. im putting pressure on it sometimes it helps the stab sometimes not.
Aaron
Figured out the angle and its relevance. if it exceeds tolerance it becomes more unstable. this explains the burn in the posterior side (back) of the distal fib. it would destabilise and render ankle useless. ( like when it tried to give out on the bus. i used steps again today on bus but this time i put very little pressure on that ankle. the plate was showing a bit of distension as well, but doc wasnt overly concerned. basically as long as i dont overdo it i probably wont be a problem. Going to miss the SCS though. once i go under tomorrow and its removed from spine, i lose pain blocker. tomorrow when i meet with pm doc and minimed rep, we will decide which option is best. either the implanted SCS or the pain pump. these 2 devices are essentially the end of the line for me. means if they dont work, i stay on meds. end of line meaninging theres no other option. :( :technical:
Aaron
Time to go curl up and try to forget about it
Doing ny bedt trying to not go nuts lol :( been a rough day. then another one begins in 12 hours . weight is mediocre. have to gain id say 12 to 15lbs and hold on to it. time to go curl up :( lol
Aaron
Waitin on the bus to go have these electrodes removed from the epidural area of my spine. idk if they will use an anaesthetic or not. im just hoping im strong enough upstairs to handle that, as well as the resulting pain from not having the device in place. my body has to recover from these 2 surgeries/procedures plus get itself ready for the implant surgery itself. been leaving the device running 24hrs per day to help with fracture pain. which turned out to be an unintended side effect. ;)
Aaron
AMA i went to the procedure on foot. this effin hurts now. have it elevated ice aint helping. did something to it. but it jwill survive. scheduled to go back to ortho in 4 weeks saw the fracture. he wants to take a chance and not cast it for now. due to the sepsis fiasco. going to go crazy for a bit and try to relax. maybe fire up some beethoven
more later :/
Aaron
That sucks, man. Hope you pull through. That kind of pain is difficult to live with. . .
Very much so. i kept trying to bail my financial ship out, then realised whats the point? cant do that until im able to get back on my feet physically. and mentally. so no sense in getting worked up over it. i missed my wound care appointment today ( thought it was tomorrow ) but realised i can handle what was left to do myself. i cant walk on this ankle without chancing further damage. after a round of my ROM excercises, that pain was intense. almost felt like fracture pain again. so ill have to hold off on this. doc said try some ROM ( range of motion) until it hurts. then make a note of this and dont proceed past this point. the fracture is around 45deg from vertical. so moving it too much i feel it. so thats getting suspended. already had one plate surgery, dont really want another. After the surgery/procedure to remove the SCS ( spinal cord stim.) today frombmy epidural space, the pain blocking is gone. i feel it all. next week i meet my neurosurgeon, and we plan the procedure. a week from that. So im just going to go batsh*t crazy for a while. because every move i make has a consequence lol :(.
Aaron
Quote from: yamahonkawazuki on November 03, 2015, 06:41:47 PM
. . .every move i make has a consequence lol.
Aaron
Funny how the pain receptors never seem to get tired of doing their job. The pain aspect never seems to deteriorate.
Always
(unfortunately) fresh as a daisy and ready to do their job of making your day unbearable. :icon_sad:
I occasionally develop migraines as the result of cervical spine damage, (long story).
It's like feeling debilitating pain for absolutely no reason. Uncanny.
Twist or sleep the wrong way and BAM, your whole day is crushed because of tweaking one nerve run in your neck.
Go figure.
(http://s25.postimg.org/kd7noebz3/neckpain.jpg)
Thats another issue i will have to deal with at some point. wanting to say its between c4-c5 or between c5-c6 have progressing deterioration of the discs. as of right now though its not high on the fixit list. ( right at the shoulder blade/neck junction) found this out / confirmed it when i had the ct scan in aug. after 1st ankle fracture. ( also had mild concussion lol. franklin stoves arent forgiving. hit it on way down) goin crazy slowly. because theres nothing i can do for the ankle pain for a month unless it deteriorates. this pain doesnt stop. sometimes i think a stiff drink would feel great, but i dont drink anymore, and err plus having difficulty balancing sober, adding buzzed/drunk to mix would equal another broken bones thread lol. so that wont happen.
Aaron
Quote from: yamahonkawazuki on November 04, 2015, 06:35:21 PM
. . . goin crazy slowly. because theres nothing i can do for the ankle pain for a month unless it deteriorates. this pain doesnt stop.
Aaron
The entire situation is crazy.
Sleep must be near impossible at this point.
Seems exhaustion is your only rest period. >:(
:cry: exhaustion is my friend . going to save up and rent a motel room for the night. and use the hot tub..... keeping it elevated doesnt work anymore wtf. changing position likewise.... tried the alphabet excercise with my foot. ( keeping ankle in one spot and writing letters using my foot made it through G..... doc didnt recommend this. this one i had picked up on some of the ortho forums. about the same impact as ROM.....
aaron
Medical forums? That's a good idea.
Learn anything useful yet?
Have you met any others with similar problems as yours?
Just wondering since a medical forum seems like a good source of info for your current dilemma.
-Ej-
Im basically lurking. a few similar cases as mine. it seems though 1 posts a problem, the replies are new problems posted by others. the alphabet idea i had found as the first reply to the first problem 5 pages down. holy threadjack batman lol. a threadjacked threadjacked threadjacked threadjacked threadjack. at least the problems were similar in nature. except i dont play sports of any kind lol. thats about it. been up going on 18 hours am exhausted. going to pass out for a few hours lol. :cry: will be back in a bit. hadnt checked weight in a while ate like a pig earlier hoping i can break out of the 130s lol.
Aaron
patient.info/doctor/Ankle-Fractures.htm
may call ortho today. if not will call fri. this is quite taxing. anyhoo time to pass out. btw weight is at 141. i ate like a pig tonight. didnt enjoy that but had to gain weight especially with implant surgery coming before too long.
Aaron
p.s. original FX made mention of "intra articular extension" i.e. way i understood it is the fracture extends into or across the ankle joint. ortho made no mention of this. idk.
www.orthobullets.com/trauma/1047/ankle-fractures
this explains a few things to me
Aaron
Got it. :thumb:
Thanks.
Quote from: yamahonkawazuki on November 05, 2015, 06:22:05 PM
www.orthobullets.com/trauma/1047/ankle-fractures
this explains a few things to me
Aaron
O_o . . . That actually made my brain rev up to dig up all the medical reading I used to do. Wow. LOL
Breaking things you walk on really tends to put a damper on things. . . :cry:
Then theres the arthritis from this whole mess, that mexican hurricane was no picnic. got off phone with ortho, said i could soak in hot water or alternate between it and cold. ankle fractures brings up a google search i made in august, there was an idiot who WANTED to break his ankles so he could get out of running a marathon. i wanted to register for that forum so i could go off on this person. i mean seriously if you want out of an event like that either 1
just quit. or 2 go to walgreens get an ace bandage wrap it and fake a limp. your body never gets 100% over this.. people amaze me sometimes. ill have to find that thread again.
Aaron
www.google.com/search?q=want+to+break+an+ankle&btnG=Search
people are crazy lol
Aaron
Ah, those special little people. . . :cookoo:
Seriously lol. tempted to register for that site so i can mention the hell that is a bone fracture. usually a lifetime hell. what ive read is it follows you in some way shape or form for life. its hell on me thusfar and its only been a total of 3 mos.
Aaron
tempted to go AMA and attend church tomorrow without the wheelchair. just brace up and go for it.
Aaron
Pain, pain, and more pain.
Just wrestle with the chair instead, eh :dunno_black:
Just read your post about going AMA to get to church - what was the title of this thread again? Going through something similar but nowhere near as severe I do understand the temptation to act like a normal human being for once. Then I remember that I ride a bike and that I want to get back on it, so I accept the aggravation and do as I'm told.
Get better quickly.
Points taken my friends and criticisms well deserved. the screaming muscles have calmed down. bone still griping. ill let it tell me when its ready. because if this FX displaces beyond tolerable spec, i go for ORiF again. would rather not lol. will just work on the ROM (Range Of Motion) and the alphabet excercises. went backwards from Z . made it thru M before muscle/bone said enough. the alphabet excercise, best howto i can come up with is take M for example. put heel/talus on solid surface and keep it there it doesnt chg position. the letter writing happens with the great toe./foot and you write out each letter. ( hard enough without fractures lol) im bored i may take my tablet, rig up an easel, then position a stylus when i acquire one being held between the great toe and one beside it and draw. i am going to save funds and spend a night at a local hotel. and use their hot tub. i was cleared for this. just no longer than 20 minutes. updates to follow. weight is still high 130s low 141ish. i need another 10lbs or so to get enough room for the implant surgery in 2 weeks. i think for mobilitys sake im going to find a second hand currie e500 its a stand up scooter with a seat. i can use this indoors ( church or whatnot) i use the handicapped scooters at the grocers when i go shopping on occasion. anyhoo updates to follow later on today :)
Aaron
:technical: Ive come to the conclusion that my ankle is nowhere near ready for excercises of any kind. it still a sharp burn like a fracture. these wet and cold days dont help. i elevate it it kills me if i put it on ground, not so bad but still. then weve got a rainy coldfront coming through midweek. may look into a second opinion somewhere or may have to HTFU as mister would say lol. i think doc allowing ROM as tolerated was a tad premature. but me not taking the chair monday didnt help either. baah :(
Aaron
Am going to probably reschedule my ortho appt. something aint right. i feel like im harrassing them calling every few days, i know fractures arent painless and have a lifetime problem. ( pains and aches) just something doesnt feel right. the pain is lessening, im at an 8 on the ten scale. to me this is normal. been like this for years. will call late this week after the cold front. that will put me close to a 10 on the scale. it will also tell me where i stand. and probably push me mentally. but these open fractures err open as in not joined together leave me prone to post traumatic arthritis. this is the mentally taxing part.. :technical:
Aaron
That sucks, man. :cry:
C'est la vie (thats life) :"(
Aaron
Called ortho today. told nurse whats going on, will know orthos recommendations tomorrow. tried elevation, hurts like a biatch, iced it til almost numb still felt bone. everything else mellowed out, tried laying down wasnt physically exhausted, but mentally who knows?, i slept for a long while, tried compression using the aircast. found the blowsuck pump. ( what nurse called it) used to inflate bladders inside boot. blows one side turn it over it sucks . (used to inflate or deflate the air bladders) i inflated them full maybe beyond, to point of pain, then backed off a bit. helped nerve and muscle pain, but not the fracture pain. meh, so i fired up the stereo blasted it lol to get my mind off of it. oh also set up an xbox 360 controller on pc so i can game a bit. anyhoo time to sign off and curl up a bit. more to come later on :(
Aaron
I dug out my tens unit, on the fracture side (distal fib) pushin 103 mA on media tib side pushin 96mA its raging like hades right now, (cold weather is killing me lol :( ) :technical: i meet neurosurgeon tuesday at 8am to discuss implant surgery will be fasting starting tues at 12A. just incase he can get OR time that day. btw wieght up to 146. im nearly back at normal. ill end up losing a bit after procedure so im trying to fatten up a bit for the implant.
Aaron
Pumpin those mA!!
When my legs are just normal ache from long work days... it feels worse if my feet get cold.... normally have a fresh pair of thick hiking socks to put on. .. makes easier for circulation to keep bodyheat going in the lower legs. ..
Now I understand you probably not real flexible to be putting socks on and off Yama, but you are keeping something close on your lower legs to keep heat in yeah?
.... another thing I try sometimes when I can focus enough.. lay down comfortable and imagine a energy ball slowly spinning in chest. .. 'build' it up to a healthy heated glow... imagine cloudy streamers of that energy flowing off and down to where the pain and cold are! ...
Sounds weird right!? ... mind over matter! .. and the mind can be a powerful thing! ... kind of meditation I guess... something to try seeing as you do have a little spare time on your hands?!?
Hmmmm may have to try this. considering i blew up the tens unit lol. the side that WAS 105 Will no longer advance past 13 lol. other side is still good though.
Aaron
Batteries are ok and terminals clean? No suspicious kinks in the wires? ... sux if it's dead! ... :/
Wires are good and the battery is good. i reverse from side a to b and strong side will reverse as well. thats alright though, just has to run through the end of the week. the implant surgery draws near. :)
Aaron
www.tenspros.com/intensity-10-digital-tens-unit-di1010.html
this is the unit ive got. that blew up lol. well partially. the surgery for the spinal cord stimulator takes place either early this coming week or a week from tuesday give or take. its made by mini med and is placed inside my body. but close to surface so battery can be charged. the trial unit worked wonders. but this unit ( the tens unit) works from outside in current run thru skin affecting nerves. i was trying to use it to also help with the fracture pain. it failed on both counts. the SCS works via a direct connection to my central nervous system ( targeted btw ;) ) basically lower half of my body . but since my tens unit is still under warranty for another month or two, might as well have a backup plan Eh?
Aaron
That's a good unit! Claim warranty!
The minimed, close to skin for charging..... electrical induction loop? .. or they put a zipper in for you? ;)
Im guessing on the implant surgery my skin serves as part of the circuit. more than likely the positive. ( or whichever not affected too much by static lol.) the charger being the other side. btw janx you were right about something on the tens i think. if you were right, i pulled a wire loose when I used restroom. or the machine just tripped out. its working now. just one minor issue. batteries dying. ( a +9v) im running it until its gone. then during day tomorrow after i get off phone with tammy ( the minimed person) im going to dig thru my stash of power supplies and just go AC since im not going anywhere. ive got a 9v centre positive here i KNOW it. the tens unit is AC/DC . WILL call tens ppl and see if it will allow charging of a Ni-Cd +9v battery. otherwise ill spend a small fortune in batteries. one gal i had read on the SCS forums before her implant was going thru 4 batts per DAY. CANT wait for the implant. unit should be good for 10 years once implanted. if revision surgeries arent needed. as long as it doesnt short or leads dont migrate im good. only thing i dread is a CSF headache. i.e. a migraine on steroids. or if leads migrate and hits wrong nerve, same thing. yet, nothing i can do if shutting it down doesnt work. but she said risks less than maybe 4%. only requirement is MRI safe leads. because i will be needing those sooner vs later. these i insist on. if not used and im out of it, and they MRI me, worst case is the electrodes heat up and i get internal 3rd deg. burns. but she said the surescan (mri leads) are used nearly 99% of time nowadays. so risks aside im looking forward to this. this is like TENS on steroids. it works from the inside out. vs outside in. it confuses brain minimising pain signals. plus ive already been mapped out from trial. the fracture pain/arthritis pain relief well partial relief was a bonus. i asked her if they could at trial setup if this could be done, she said " its not really designed for physical. just neuropathic. i said " if it does BONUS if not ahh well. if not if it can semi block pain signals from ankles upwards ill be happy" it did both. i meet Dr Kahn tuesday at 8am to plan this. hoping to get it done this week. heck if he can get me in to OR tues im game. ill fast beginning midnight tues morning just in case.
Aaron
The afro-engineering-jerry-rigging Mcgyver strikes again. i just completed a working power supply for my TENS unit. since max amperage is 105ma, i set aside a 9v 300ma unit in favour of a 115ma 9v centre positive one. i KNEW I Had one. finally i could retire for the "night" at4am lol. except for one problem. plug didnt fit. soooooooooo i dug around in the parts stash again. found a fitting plug. NOOOOOOO it was attached to a 12v car charger. :technical: then i remembered, ive a box of personal 2 way radios. mostly kenwoods. and 3 chargers. yet only 1 battery pack. so i cannibalised its plug. a tad skinnier than called for by maybe a half MM. but same polarity but wrong voltage. soooo, i connected striped side to striped side and solid to solid. left connections exposed held power button down and inserted plug and VOILA TENS powers up. i staggered tape joints, so they dont sit on top of eachother even if taped. (electrical tape/taping job is FUGLY) BUT IT WILL work until i can fire up my soldering torch tomorrow for a perm. connection. i Swear i think i was an EE in a former life lol. (but didnt mean to offend anybody by opening line.) was so UN pc lol but i quit trying to be pc ages ago. didnt mean to offend afro engineers, or germans or fans of Mcgyver lol. and no ive dug the hole deep enough i wont explain afro engineer. or its slogan/motto. but im happy tonight i can sleep with a medium level of pain relief. :) BTW for relevances sake i repositioned 2 of the electrode pads over the unset fracture it works even better. its a cr*p shoot there. theyre reusable to an extent ( even instructions cover this. and i found out walmart stocks the pads/electrodes. so once funds permit, will grab a pack of them. i WILL be putting the unit to use during recovery from the SCS implant surgery. once the uber painkiller wears off. But for safetys sake ill clear that with minimed first. the GOALS are after all for the surgeon to NOT have to go back inside. not for a few years anyways. but tens would be idea if cleared so i dont use near as many of the meds.
Weight is still in mid-upper 140s this is good. once/if im cleared for PT ill build muscle and be back to semi normalcy :icon_mrgreen:
Aaron
I guess i was slightly incorrect on how the unit recharges. got to love a detailed patent search.
Charges via "transcutaneous power transmissions" between a set of antennae ( one in the charger and one in the SCS)
www.google.com/patents/US20140277266
This is the device theyre implanting:
The MRI safe unit is a must.
professional.medtronic.com/pt/neuro/scs/prod/restore-ultra-surescan/index.htm
i will be issued Identification tho explaining that i have an implanted medical device and it will state make and model and MRI allowances/restrictions. should be no or minimal restrictions. but it guarantees a hassle at airports lol. course im not flying anytime soon so meh. hoping to visit australia soon. so that is where the close inspection by TSA would happen. ill have the credentials ( which are accepted by TSA) but as a failsafe, ive got a medic alert bracelet tattoo on my wrist ive had since '97, Ill add "Implanted medical device close to it. the tattoo says "diabetic" if by some odd chance they DIDNT IMPLANT the MRI safe unit/leads, id only be able to get a head scan. id also have to probably have an addl tattoo made stating NO MRI except in head. in case GOD forbid i was out cold and couldnt warn them. but those units accd to them are being phased out.
Am nervous but the NEURO is one of the best so im at ease there :)
Aaron
This is what it looks like. all connections are internal i.e. inside me. :S but these things have been around for years so my apprehension is lessened :)
(http://professional.medtronic.com/wcm/groups/mdtcom_sg/@mdt/@neuro/documents/images/restore-ultra-surescan-mri-lg.jpg)
Aaron
I wished i hadnt researched the complications of this procedure. running the gamut between device failure, and death lol. then theres CSF issues, epidural hematomas which could press on cord causing paralysis. BUT 3 things working in my favour :). 1 odds of a problem of any kind are 1 in 100. so 1% :) then Dr. Edward Kahn has 30 years as an orthopedic with a specialty in the spine, so im good there. downside is hes got the bedside manner of adolf hitler it seems, but his job is to fix me not make me laugh or smile. and not to mince words either. its the Anesthaesiologist and the nurses secondary duty to see im :) and not :(. hell i got apprehensive when my ankle doc ( my ortho) put the Ti plate into my right ankle. its not 100% yet but its healed. will be back at 100% on R ankle by august id say. but as it is it feels decent. i guess my mental hangup is overthinking it. LOL ill end up the bionic man before its said and done with lol.
Aaron.
I see Dr kahn tomorrow at 8am. will fill yall in on that visit and the schedule. and when the implant takes place, ill document it to the hilt. i.e. ill get copies of the fluoroscope film/vid, CT/Mri etc and will post here before they knock me out. :) then again when they bring me out of general anaesthesia. look forward to that update ill be loopy as hell lol. ( like when i used to post while drunk years back.) anyhoo that covers updates through surgery, but daily updates still will happen, as will my general postwhoritude lol
Aaron
Met surgeon today sheduled SCS surgery for DEC 2 i go for pre op testinging after PM doc appt on on the 20th. next couple weeks will NOT be fun. i fear the side effects... ill be kept overnight for observation. am beyond scared :(
Aaron.
12 days from friday it happens . the implant procedure. around that time i also find out next step on ankle. BUT heres hoping all goes well on both fronts.
and i can begin recovery and getting back to my old self :)
Aaron
Excellent! Here's hoping all goes well! :thumb:
Get back to your younger self Yama! .. when you all healed up and mobile as possible.... live a little! :thumb:
Im just apprehensive as hell :(
Aaron
Found a way to get some ROM exercises done, i bought for my father a digital download of the kingston trios greatest hits. it predates me by a few decades, but we both like them. anyhoo 42 sogs for 1.59 lol. (individual tracks were 99 cents. the 1.59 comes out of me, the rest of album cost was covered by an amazon gift card from a buying fiasco in sept. album cost was around 5. .sorry im rambling again lol. songs induce toe tapping or if foot is on floor, heel tapping. ( that can be painful lol) btw its gentle tapping ;), so i can follow docs orders. the heel tapping i shouldnt do tho because of the fracture , but of feet are elevated, im good.
Aaron
WARNING: This thread is for medical discussion only!
Another off-topic outburst like that and your banned for life. :2guns:
(http://s25.postimg.org/lz5t6395r/114120333.jpg)
www.spine-health.com/forum/treatment/spinal-cord-stimulation/scs-implant-surgery-journal-candiddetailedlong-promised
while im at hosp tomorrow for pre procedure testing, may find some more music lol. my pm doc may growl because i ran out of my meds early. but with ankle FX and the trial procedures, theyll understand.
Aaron
Two things come to mind...
1.) Hot damn that was a long post!
2.) Your going to be even more "fragile" after this so act accordingly. No installing hot water heaters in basements. No moving furniture (like giant loudspeakers), etc...
Keep us posted. :whisper:
-Ej-
Yeah the stakes will be SIGNIFICANTLY higher after this. going to do laundry before the procedure, and try to have 2 weeks of clean clothing on hand. will have to get extra underwear and things like that. 2 weeks will be pushingg it. but i dont want to have to go to basement for AT LEAST 2 weeks. its also why i left option open of staying overnight in hosp. and im basically flat footed now in left foot following fracture. so it will blow following back procedure. a few days after surgery, i then see my ortho. then he does whatever he will do. my neurosurgeon i dont doubt his skill at all. not worried about him. besides risks of paralysis are relatively low. <10%. this though is another reason i chose to spend night there. if its going to happen, it will during the first 24 hours following procedure. (usually from what ive read) plus ill have use of a pain med trigger. to help out once the procedure anesthesia from procedure wears off.
Aaron
emedicine.medscape.com/article/1980819-technique
a step by step of the procedure. there are vids of this but i wont post those until i have the chance to see how NSFW they may or may not be. the link describes trial procedure first. implant procedure is further down towards bottom of article.
Aaron
Reading things like this is what makes me nervous. worst case adverse effect is death. id say paralysis is a close second. we ( neuro and myself) discussed this. i joked if this kills me ill come back and haunt you lol. but im too stubborn to die. so thats off the table Eh?
www.publichealthwatchdog.com/implanted-spine-stimulators-can-lead-to-paralysis/
but incidences of this is 1 in 100 cases. so meh im moving forward. the other adverse effects are a bit more common. up to 30% or so. but are correctable. :)
Aaron
Well, at least your prepared as possible. :icon_neutral:
Worst case scenario, i mean in the minute chance it kills me, i will have my login info written out, and enveloped. my sister will update this thread. then an admin will lock out my acct. BUT im not going anywhere ;) once i get home, ill destroy this envelope. GLADLY. ill be postwhoring like a fiend while in the stepdown/PACU unit .:icon_mrgreen:
Aaron
Needless to say, we'll be watching this thread closely.
No intentions of keeling over lol. because id have to haunt the surgeon. ive no experience in that field lom err lmao. once this procedure is completed SUCESSFULLY, Then i get ankle fixed, THEN i can become what i used to be. well as closely as possible anyways lol. the morning of procedure i will post before they secure the tablet, ( in pre op). and will be posting post procedure as well.
btw picked up a pc media remote (rosewill) 2 days ago. it arrived today via cheap shipping. working on figuring it out so i can have everything set up post procedure for recovery. THAT will be BORING for a couple weeks. but stakes being a bit higher, i wont be on my feet hardly.
Aaron.
remote was CHEAP like 7 bux shipped.
Aaron
Slightly aggrivated, the rosewill remote controls MCE/media playback only it seems. which was the intention. since im on windows 7 64bit (had it for years since i built my old pc quadzilla lol (Oc 3.0 to 3.8 on air) But 7 has MCE built in. why am i aggrivated? i wanted remote to navigate pc menus as well. which if it CAN do that ive not figured it out. and the instructions are as useless as fun bags on a bull lol ( sorry will keep language clean)i rarely read instructions as it is. usually can figure it out quickly. anyhoo, i still have the microsoft presenter 3000 ( for powerpoint) which i was using. it will control EVERYTHING. but lack of controls on it, makes media usage/searches time consuming. and since i dont have a logitech unifying reciever yet, my wireless kb is not being used. sooooo, i put the usb in place of my 360 controller for now. and am using both. BUT a bonus of using MCE is its easier to see whats what. i dont have an lcd tv right now. just an older dell flatscreen. and an older tube tv. a tv is next on my list in a few mos. but all in all its good :)
.Getting it set up so its ready once surgeries are complete and recovery begins. got 13 days to have this done. well 12 til day before. im NOT looking fwd to this yet i am, risks and post op pain makes me nervous, yet gotta be done so i can rehab myself to be as close as possible before the frctureas started all this. the SCS procedure was being planned before august ankle stuff. ( for the neuropathy) thisw ill keep me going until someone figures out how to reverse the neuropathy damage. ill gladly sign up for that one lol. updates to follow. g weight declined slightly. and my GP was concerned with the sinus tachycardia ( 130bpmh eart rate..) am on a LOW dose of bp meds for it. even tho bp is normal. she said the benefit outweighs the risks. this med ill have to stop before surgery on 2nd. will find out when exactly tomorrow
Aaron.
On the negative side, ill be an optimist, if it renders my legs unusable, ill have the perfect excuse for the gs trike, plus id no longer feel pain there so pain meds would no longer be needed. BUT i plan on walking out of there, or at least walking to the car from wheelchair, idk how much longer i have chair rental. i think it stops on 27th, rental isnt that expensive tbh. may just pay it up one more month. idk or try to remember whos been okaying it to my insurance and get them to call another month in. will see lol
Aaron
Hmm... There's a lot to digest here.
I'm going to guess that getting some pain relief will help you unwind a little.
Just dont use the reduction of pain as an excuse to over-stress you legs. :nono:
Man this is a complex situation. <sigh>
This is true my friend very true. the fentanyl epidural they give me like last time (SCS trial procedure) for the first time for several hours i was 100% pain free. and felt 20 years younger lol. had to at the time resist the urge to get out of WC and run. lol. though stakes being a bit higher that wont happen post op. plus ill still be tethered to an iv pole. i selected the afternoon surgery window because of the optional (if needed) overnight stay. if anything adverse happens, i dont have to wait for EMS to run me to hosp. ill be there. BUT overnighter isnt required. its still classified as a daysurgery. if everything is good i can leave that evening. but i figured since im there already, if anything GOD forbid happens, it can be dealt with immediately. im literally down the hallway from the OR. PLUS FOR A FEW HOURS ill have cable tv and wifi lol.
Aaron
Ah yes... It's all in the planning. :thumb:
Got a micro sd card enroute. (32gb) found cheap on amazon. hoping it arrives before procedure. will be downloading many things (LEGALLY/mostly lol) but tomorrow im strapping on the moonboot and straightening house. ( will have pain meds refilled by then.) i have to get house ready. ive got 12 days to get it done, so a bit each day =not so taxing, i want to find my skullcandy 5.1 earbuds though ( picked those up for 79cents at old job almost 2 years ago. theyve been misplaced. want to locate them so i can listen to music or vids while in recovery. before anaesthesia wears off, nurses may catch me singing lol. heck i can sing, i do at church anyways. (choir and other programs) those earbuds spoiled me sound from them is similar in quality to my Yamaha/jbl northridge/polk sub setup. which is why i want to find them. Buddha will agree when i say this house is a cluster. hes seen it :S remnants of electronic projects all over the place lol :(. so within reason, got to clean this area up to make it safe and conducive to recovery. and hope to find those ear buds lol.
On a side note, for a week, post op, im not to make any twisting motions with my back. ill end up sleeping on couch but how the heck do i get out of bed/couch? no matter where i sleep, twisting is required to become upright, beyond that, unless ....NVM just figured it out. place arms behind my hind quarters, and push myself into a sitting position. then spin 90 deg. on my hind end. maybe using walker to get into a standing position. heck ive got a few days to practice, plus im sure ppl at hosp tom. will suggest best way of accomplishing this. if not, the neuro will know.
Easiest way would be to sleep in a recliner lol. cept the recline function on my recliner is broken. ( was electric/power) it was an older lift up/recline rehabilitation type unit. was my grandfathers before his passing. Hmmm got an idea, moms hospital bed in formal living room still works. i clean off all traces of cat it would be perfect. (bleach and sanitize) it can elevate me to sitting position almost. minimising risk.
Aaron.
W.......T.........H......., now my primary doc referred me to a cardiologist. Course Sinus Tachycardia ( rapid heart rate, 130bpm for 2 mos) i guess concerned her. i told my pain doc about this. his FNP said yeah it was 130 last month also.. i said"? my visit to GP doc was first time i heard of it. was news to me. i mean heart occasionally feels like it skips a beat, occasional breath deficiencies, but tbh i feel fine literally. NOW after gp labs comes back, i have an appt 2 days before my back surgery. tbh to me it feels like nerves, or perhaps maybe my meds, idk. i guess ill find out on the 30th. i WILL laugh if they tell me to run the treadmill. i guess theyre trying to slow it down before procedure. ive been prescribed a beta blocker,bp med even though, bp and cholesterol overall are healthy. i have to split a tiny pill from 25mg to 12.5 + or -. rate down to 115-120
Frig lol. what else lol. got the 115 rate @ hosp going thru pre OP labs/ecg.
Aaron
Seems to always happen to you, doesn't it? On the more upbeat side, I have a heart rate of 55 - 60, and I've had a heart attack, I have high blood pressure and high cholesterol and take all sorts of pills for it. My wife, however, has a heart rate of 120ish (and has had for years) and her blood pressure is right on the norms. And she takes no pills for it! So what does that tell you? Personally I wouldn't be too worried about it, but that's just me.
Given the stress you under just now, coupled with "white coat syndrome" it's not too surprising the your heart rate is high.
Good luck.
Btw what is "white coat syndrome?" Geez i realised ive not slept at all tonight. have a church trip to nashville tn. BUT kim a passenger so i can sleep going to and coming from. besides had to ease nerves. meh yall have read enough. besides idk what else to add lol. anyhoo no idea what white coat syndrome means? can you elaborate? regarding meds, i managed for years without them as ive aged, i lost my indestructible mode lol..
Aaron
Its when the sight of a Doctor in a white lab coat makes you nervous or edgy.
Your body's natural response is a much higher heart rate. Possible high (or lower) that usual blood pressure too.
I have blue coat syndrome. The sight of a cop in my rear view mirror makes me nervous.
Especially after 7 or 8 beers and I have the mobile meth lab in the trunk. :whisper:
. that wsd thr toi.00000000000 anyhooEhh lol. 7 went with group to temple. i took my walker and promptly fell down. composed myself and got on my feet. stumbled yet again. promptly righting myself. then rollrf ankle
rightened mys.elf. waited for the pain. nothing... phew......... Assisted the young womens. helping visitors pointed out where everythibg was. standing upright . dammit i fell again.. again rightimg myself. anyhoo after they put trasy in dumpsttter. (bear with me phone is dying. i get to car, and dammit i roll R ankle. This time it kinda hurt. enroute to ftn city . from grey fox lane in franklin tn. its burming type pain. i roll ankle y2t again, at rendezvous pt. we get backbibroll it again. i roll it its buring HARD now.bwill see what tomorrow holds.bi fear i have broken or knocked loose the TI pkat. if it feel morebpain,bill call monday.bor their after hours emergency line.
Aaron
It's times like these that I have no clever or witty reply. :icon_neutral:
Follow up on this latest mess, recompose yourself, ...and then post. <sigh>
I think next time you go to temple you should take the wheelchair, not the walker. I really think you qualify under the "Born Under A Bad Sign" rule, if it wasn't for real bad luck you wouldn't have no luck at all. I'm really sorry to hear this. It sucks from this end, it must be much worse from that. My sincere commiserations!
The "white coat syndrome" is when you go to see the vet, err doctor, and he/she takes your blood pressure and gets a really high value. Usually if you take it again about 5 minutes later it will be a lot better.
Take care.
Going to have to go to ER.. asap..
ASAP. I dont have wnough in ough strength in left hand totype.
Aaron
Yikes! I got my seat-belt on for this one.
God Speed Yama.
BTW; Put you back on my prayer list. Heck I was all the way back down to two persons.
So yeah, welcome aboard! Your riding with Henry and Robin, two great people. :cheers:
Vielen dank ( german for Many thanks) now a description of the sat.. I met up saturday @ the Grove Park center. afaik /iirc fractures, in play were: the distal fib/tib. nothing more. we arrive in frankl7n tn @temple. i brought walker to use. rode with Bishop jon Clark. we arrived at 930am CST.
i get walker out van. you will notice my spelling is bad. because of a diagnosed case of "Drop Limb" . my left wrist currently has only 5% of its original stringth left in it. due to injury which occured at some poi nt Sat. (more
Aaron)
We proceed to door. and enter. now i cant be specific because of the sacredness of services. so description will be bland at times. Anyhoo. iwas supposed to change intomy whites ( pants, shoes and shirt) i borrowed these because i had forgotten mine.
anyways i chang2. and then proceed toward the FONT
I THEN collapse. i dont feel ny pain, so then i get back on feet. ( i had left walker in changing area. figured i made it this far. so ill proceed without. i notice i cannot straighten wrist out UNLESS, either i drop arom toward floor or or point it toward celing. i nearly get it strainght toward ceiling.
floor ifc hits ir due to gravity ;). anyhoo moving on. no pain.
IN WRIST.
I PROCEED to font i fall again. great pain in left ankle.
(9 ouf 10) no pain in wrist heck i couldnt even mas.... if i wished... ( i dont. just saying.) i then proceed to next room. i fall agakn)bsme thing. i climb with great effory into seat. great pain in left ankle. not too bad in R. at this point, was tempted to call local bisholp since m recommend ws in good standing) and be taken 4o vanderbilt hospital ( level 1 trauma centre) theyd then bring me home but fracture pain ive dealt with before. so decide to power through it and ceremonie, and wit until netxt ortho or towafd surgery date. ( om 2nd) anyhoo during ceremonies i change stations (seats and duties/ 3 more times. falling due to inability to support weight. ] refractured tibia and new one.
had fib been oky i could have BRIEFLY supported weigh. ( its capable of supporting 17%).
but since BOTH were now broken, weight support wwas maybe 22% lol. MAYBE. (momentarily`0 ) :technical:
i fall a total of 6 times 5 there, no 7 times, 5 there, 1 at restaurant during jbathroom break attempt. ( was unable to go 1 during entire visit and most of trip home. i told Bishop ( jon clark) if i dont at least whiz by time we reach knoxville, to drop me at UT. ID BE IN THE MIDST of an acute renal failure) episode ( almost 18 hours wince, last time i voided) .
(more)
Aaron
.We make it to farragut. ( knox suburb) outside of Hardin valley. i try one final time. YAY got 18oz out of it. a deficiency but theyre working . it was maybe 50%. 36 fl oz in Vs 18 fl oz out. . i was wanting to attend church today, but decided not to.. Oh sorry was slightly off on wrist injury. it presented itself in its full glory :technical: Urine output improves to between 85-90 %. where it is today. anyhoo, i decide to try to wait for treatment until
surgery date or maybe even ortho. radiologist disagrees in the strongest possible way. he told me 2 days is pushing it. hes calling ahead to make room. i really DONT want to postpone the SCS implant if it can be avoided. will figure this out tomorrow or next day ( err today or tomorrfow. its now04:45.
) i will have this appointment ( with a nerve conduction study. it is royally painful lol) i told doc lol. ( pai level is a solid 10 at this point. where it remains. ;(. ER put me in a fibreglass backslab. ( splint on posterior of lower leg ( knee to ankle) wrapedp in an ace bandage. ) Anyhoo, hand /finger strength down to less than 5% (meaning i can grab a sock using 2 fingers aka a pinch style. as hard as possible, i shake hand gentky jsock will fall too floor. i pinched nurse ( willingly i must add) no discomfort whatsoever. (more)
Aaron
Final post in this update. not final update, just in this segment. Anyhoo Urine output is roughly between 85 and 90%. ( i use a doc suppliw1d c8ntainer/cup 4o measure0) lol ive got a box dull of these "souvenirs"
anyhoo, i let Bishop Clark know id not be there (church) today due to the injuries sustained as well as urine output deficiencies.
I call both neuro as well as well as ortho today early. hoping i can at least get both appointments on same day. , ( both are at TOC facility in oak ridge. ( Drs kahn neuro and reat ortho.)since ankle fracture is guaranteed now id say 99% with both fib and 2 tib Fractures., id say guaranteed 99%. either using pins, plates and an internal brod, or worst case, ankle fusion or amputation. :technical:
:(
this scares me ALOT. IT May postpone SCS implant. or if possible, perform bothbduring same slot in OR.. Wtf. im used to pain. but at this level, it is mentally taxing. I disagree with Baroke Obummers flavour of politicws, BUT, had it not been for the ACA, 1 ID BE OVER A MILLION In debt, and more than likely dead. i do want to see the xrah films though, i want to visually see the radiologists level of concern. see why he wants it handled in 2 days. and not on the 5th. i can live with the acute radial palsy, ( limb drop/and finger strength deficiencies) would add a new chapter to the now guaranteed lol gs trike. i.e. HAND CONTROLS Although id rather have full hand function and lose useof left leg tbh. because i d had plans to get back into jewelry repaif and horology ( a watchmaker). both pretty much impossbile sans one hand ( unless i work at a 45 deg angle :: :technical: cays err cause, texting/posting isd ifficult with 1 hand. ( this post/update was started at midnight lol all segments. it is now 0530.. this phone doesnt support voice assisted typing. ( the moto x doe) as does the tablet. but ive now got at jleqast 2 surgeries guaranteed :( . my body is worn out. its like a 20yo hyumday with600k miles. or ast star treak quote says, " i dont think shecan tke much more of this captain!" lol. ( winter and christmas will SUCK for me financially. BJUT ont he plus side, as long as SCS doesnt paralyze or worse, kill me, i can then begin to reahbilitate my body. but as ive said im SCARED.R jcorrection,pPETRIFIED, THE post traumatic arthritis, is mentally taxing and physically taxing as is the loss of most of my left hands capabilities. putting a coat on is a funny affair. i stick left arm into sleeeve, wrist being bent at about 75deg angle. or the simple task of r scratching an itch.. it looks like im punching jmyself in the fac. lol. anyhoo this phone is physically y dying. this concludes monster update. there will be othersj of this size o lol.. mentally im worn out. physically, im close behind. today when i finise talking to surgeons/ setting appointments, ive got 3 documents to write ( by hand) 1 . final instructions/ a will for lack of a better term. 2. instructions for completing step .1, ..3. writing a hymn ( this has been an item on my bucket list for years. . finally thqt veil has been lifted and i cn see th eohymn. ( goal is to have it included in a future hymnal.).i do know what church is looking for in new hymninclusions. i will also be updating this updte. phone is dying now. time for second batterycharge. yall take care and may VODX :( err GO DA BLEWS YQLL ERR YALL. d* GOD ( TIME to let phone rest
Aaron.
will be in touch this afternoon)
good GOD even the smallest update to monster update is HUGE !.. my friends i truly am sorry. ill close with a humerous thought. eating if i cNt rotate/position hand while eating its in one word "awkward" i may youtube it using the Moto X. soup using left hand is a no go. and 2 handed items ( subs etc) also are a no go. may edo this today. because idk if this palsy is permanent or not. but id like to have it for future us2e. popcorn was a FAIL earlier as was the peanut brittle made and eelivered byh friend at church. = yummy.. bug will get that done today, as fqr as updatew, maybe subdeay if i can bypass the2 YT filter
Aaron
Idk where i got 22% weight support from, then again phone was going nuts and i was typing with 1 thumb and a bit of the other one. ( almost no pressure though) course even with both bones freshly fractured,, wdell fib was diagnosed oct 7. might have been a bit older than that tbh but until that day was untreated i think they missed it. it DOES happen sometimes. anyhoo stability triangle. term used to describe the 3 main ankle bones. the tib( shin bone), the fib ( lateral/outside thin long bone, and the talus. ( what tib, fib, and heel attach to. most single FRX are stable and usually dont require surgery. USUALLY. when you get into the bi and tri malleolar ( 2 or 3 ankle bones) or equivalent ( tendons etc) it becomes unstable/destabilised. after sat ive got 3 frx perhaps 4. ( the tib frgmm id aug, the fib from perhaps same time but undiagnosed until early october. yet to be treated. the NEWt ib FRX. AND if the old intra-articular extensionl ( FRxt hat transitions from one of the 2 malleoli (long bones)i nto the ankle joint. if thats still active ive got 4. if not ive got3. = unstable and more than likely needs surgery. :technical: around 95-99% likely. will be the second time ill get screwed and it didnt involve sex. :technical: oh and thist imd ill be as close as possible to 100% compliqnce. id be a liar if i was totally compliant.b just not possible unless ic heck into a rehabilitation hospital
Aaron.
Then theres the radial neuropathy i(Drop wrist)n 1 wrist. holding remote and using them wont happen. hand is no longer strong enough.
Aaron
Not to worry. . . You own the thread. :thumb:
Make you a honorary Aussie Yama! .. we threadjack anything! ;)
WAS ABLE to get rescheduled to wed. this week. j only thing i WASNT able to get waearly was my neurologist. so may jus4 havro to do without. and keep rubber arm in place. just will have to remem er if i go that route, what once was done LH is now RH.
aaron
Wrist drop/radial nerve palsy (http://www.drugs.com/cg/radial-nerve-palsy.html)
Posting via a cell phone, and with one hand. :icon_rolleyes:
Nothing can stop a determined man.
Yeah i support phone with left hand, and type with both thumbs. using r hand to move phone so L thumb can type. got the moto x working but have to go to verizon to activate free sim card. they supply. i didnt want to go because of their aggressiv2 sales ppl. but i must. ive dropped this phone 8 times. this is 3rd time ive had to rewrite this reply.. cant use pc keyboard on pc unless i angle it at 45 deg. i may have to save funds And get a wifi hub and a program called "dragon naturally speakin" while at church temple, i was asked to take part in a ritual. during which id sit in this chair. and brace myself against armrest, the girl sat in front of me during ceremonyji placed hands on top of her head.. ( cqnnot elaborate on ritual sorry) after 1which i fell getting down from chair. a guy there made a less than respectful comment wondering if i was on drugs. my bishop saod "yes he is. its pain medication. he fell because he broke his leg here.. later on in temple courtyard , i went to take a picture with the youth from our church. i fell. ( fall number 6) after that, i went to group to pose for picture.( almost had fall number 7.) bishop held me up. ( actually fell 8 times) fall 7 was on way to car. fall 8 was into tub at house while using bathroom. anyhoo, lol
tomorrow i see ortho. he moved 3 others to make room for me. i saind when making appt, is that nec2ssary,? i can wait, Nurse said NO you CANNOT AND NO YOU WONT. dr reat said its urgent you come then. this terrifies me. i want to see the damage. ill post it in legs thread. ill get xopies of films. and post better pics here sunday from my office at church. heck what did i do there?
Everyones calling me.. unless i passed out from pain idk. i dont recall doing that. ride home was fun. i kept sliding out from seat. even whild belted in . . with this leg/ankle fracture, i cant stay in seat. leg wont support me. inless i lean forwards. anyhoo. i may end up getting that electric wheelchair. the KD company wont sell theirs on insurance. my insurance covers those.. but i wont get the jet 3. or hoveround. because my father drivds a small car. it wont fit. the KD smart chair folds up and weighs close to the rental chair. but its almost 2 grand. my "armstrong" propulsion system, it took a hit when my hand lost strength. i still can use it on chair though. if im going to have to be in a chair lobg term, i want electric. so i can get around tthis area. anyhoo dinners done cooking. will be back later on tonight. take care my friends.
Aaron
I've used Dragon.
The early versions were ruff but the newer versions are pretty good.
Do you have a PC that can run it?
System Requirements:
CPU
minimum 2.2 GHz Intel® dual core or equivalent AMD processor. Faster processors yield faster performance.
Disk Space
4GB.
OS
Supported Operating Systems:
Windows 7 32-bit and 64-bit;
Windows 8 and 8.1, 32-bit and 64-bit;
RAM
minimum 2 GB for 32-bit Windows 7, 8 and 8.1,
4 GB for 64-bit Windows 7, 8 and 8.1
Let me know,
-Ej-
Yup. an older amd dual at 2.6 4gb ddr2 1gb ddr5 GPU i want to save up and get a 1tb HDD AS A SECONDARY HDD. eventually a phenom quad at 3.2 but as it is my pc will run it.
Aaron. 4he second Hdd is needed, because i can hear the hammers clatttering on my secondary. it came out of quadzilla.
Aaron
The OS is Windows 7 64 bit
BTW i mentioned Quadzilla
It had same OS
BUT, i went from a dual core CPU
TO an AWESOME AMD CPU
TO AN Amd phenom X4 940 black edition. those things were PRICY IN THE DAY. almost 400. i grabbed one at 59 on ebay put a BTF90 cooler ( shaped like a butterfly hence the BTF.) I POWERED it up and postwhored here a bit. but my comp showed only 2 cores.. so i had to flash the bios. if it was unsuccesful id ruin a computer so i postwhored a bit more, announced my intentions, then signed off and ran the bios flash. powered it back up...... SUCCESS !.
Showed 4 cores @ 3.0 the black ed. phenom allowed me to OC. soooooo, i did. i ran a test on temps. 39c on temps. i removed the BTF, and polished the CPU. PUT a dab of arctic silver on it, re mounted the BTF, AND POWERED it up. underclocked the ram, ( 4gb) then OCed the CPU) WENT FROM 3.0 x4 to 3.9 x4. it wasnt happy beyond that.
anyhoo, then temp tested that. temps went to 45c. still within the good range. i had 5 120mm fans. it was LOUD. LOL. IT WAS NAMED either HOOVER ( sounded like a vaccuum. or quadzilla.) ANYHOOOOOOOOO, back to thread subject. i cant get comfy. if i lean back into chair, i lose grip on this phone. so im hunched over. hey it works lol.
in a few hours ( 10am) i find the wrath of ortho. and maybe the wrath of beuro. err neuro. hell ive got to get on a better phone. lol. i am terrified though :(. there was some significant damage done, because i cannot support my own weight for long. anyhoo thats it for now.
Tomorrow i finish the final instructions. err a will of sorts. if i pass away after or during spinal surgery next week, i am writing down my final post. on paper and sealing in envelope. i will post before surgery. if a james croy posts on this thread it means i didnt make it. he will post my message on my account, sign his name, then probably err WILL
PM buddha who will lock my account. BUT this i feel wont happen. only a very small adverse side effect chance. after i leve hosp next thursday, i will retrieve that envelope and will burn it. im looking fwd to postwhoring alot during that surgeries recovery. tomorrow i find out the verdict on the enkles. err ankles. i rolled right oneso may have to re do the ORiF. i may get the Ti plate. it would be replaced. id use old plate as a UNIQUE keychain. lol. the next few weeks will SUCK. ANYHOLL time for bed
Aaron
Hmmmmm, i thought this over from a modbposition as well as from a security standpoint. and realised that this would be a security issue. so theress a change. i will set up an account in his name. if IT happens,bhe will log into HIS account and post the message i will ask him to post followed by whatever he chooses to post. so if james croy posts in this thread, yall will know IT happened. some say im thinking badly or thinking negatively. so im hoping he EOESNT post here Eh?. now moving back to thread. im doing this because gstwin is part of my life and i OWE yall this. as wladziu said " your body is a wreck" that i NOW agree. i pretty much thqt ive got 2 surgeries in the VERY NEAR future. the left and possibly right ankle. as well as the SCS implant surgery. both of wheich in a weeks time. THAT TERRIFIES me.K d IDK if my body N can handl it.
Aaron e
Well, no surgery yet. ive been diagnosed with weakened bone structure, aka charcot foot... so NO weight bearilg. ( ecept ( bathroom and kitchen) fracture was an impact type. with a weakened bone structure, fractures will be easy to come by :( . soooooo, surgery wise tye SCS is still on f
w for wed of next week.. :( this will be fun. going to try to rig up pc to broadcast to the old glass TV.
aaron
GOT bqack from doc. no surgery. but found out i do have a soft/brittle bone disease, and a charcot foot. im stuck with this for life. so he casted it in ferrari red. i go back in 3 weeks. idk how i broke it. when we jwalk in we do so reverently. when jwe talk, we do likewise. yet somehow i had qa high impact fracture. the hand is a wait and see. if it repairs itsf e it will do so in maybe 2 mos.. if not i get fist that curls under arm and surgery is tried. success is not great. but no strength in left hand now. will someone shoot me? this sucks.
Aaron
If you have brittle bones and that plate in there.. even though it provides support for heal up. .. would the screws in the bone also put tension on that area as well as make 'holes' ?
And a genuine question! .. (not having a go). .. what's a reverent walk like? ... slow? Wedding march step? Glide like a monk/ nun? Just quietly? ... heard reverent tone before but not walk!?
Reverent tone/walk = HIGHLY respectful. walking quietly, speaking in hushed tones. i was walking slowly and quietly. and i fall repeatedly :technical: i collect myself, stand up and proceed. stifling yelps of pain. which is raging now. heh someone shoot me :(. i cant use my left hand. had a dra1ing i needed to finish. i used left hand for the details. i CANT EVEN HOLD A PENCIL ! am working on writing a hymn which i am plann7ng on a christmas program debut. im handling the lyrics, bishop is working on the musical side of it.. more to come
Aaron
But you'll go next time in the wheelchair eh?! .. someone to push you in etc? .. there's a good chap! ;)
Walk info makes sense.. just hadn't heard term used like that...
Usually if I walk slow and quiet I'm sneaking up on someone to scare a yell out of them :thumb:
The whole building is marble. tbh i didnt notice any ramps. this scares me my friend. a bunch. i think the wrong way ill break somrthing :/ idk how much longer i can deal with this trivial BS. I SEE MY CARDIOLOGIST monday, tuesday ive got nothing. i begin fast at midnight. then report to hosp wed at 11am. ill get first epidural anaeshesia an hour later then at 1pm it begins.
Aaron
Good luck with your procedure. I hope everything goes well. Pity you can't get a full body transplant while you're at it, but maybe next year. :icon_lol:
LOL indeed :(
Aaron
Barry Barry Barry! .. this is the digital age man! .. body transplants are so passé.... it's all transfer of awareness and mind to a fresh chassis! .. a brain transplant if you will! ;)
I am asking our bishop if i can give the invocation ( opening prayer) or the closing orayer this sunday or , jumping protocol, a short sermon. the way the lds church works is we dont have a paid clergy. we have 3 weeks out of month 4 people who are chosen to give a talk on subjeccts chosen by church HQ in salt lake city. the rest is done by person giving the talks/sermons. 4TH week is fast and testimony subday. we fast for 2 meal periods, and subject matter of talks is up to us. reason i asked to talk early is this months fast/testimony sunday happens 4 days following my surgery 4 days after.ive just got the urging to speak THIS sunday. IF something happens, i wish that i was able to speak before my talk on sunday. not after. by proxy. if GOD forbid something happens, I love yall. and this site as a family.
Aaron
We're all here wishing you the best.
The Tard Farm regulars.
The least we can do is keep you entertained thru all this. :thumb:
Yes indeed! .. not that luck is required... reckon Yama just too ornery to drop off the twig yet eh!? :thumb:
Spent/reserved my last bit of change reverving a 1 wah ride to hosp. procedure is at 1pm. was told to be there at 11am also set aside enough for cardiologist appt monday. ( for the radpid Hr. since im on a pre surgery fast wont be able to go to cafeteria. but i can postwhore a bit, also grab some extra music and vids to watch. may put "flappy hand" to use. since ive NO muscle control of it i grab its wrist with other hand and shake it. it flaps around. while sayin HEYYYYYYYYYYYAAAA!. its finny the smiles and laughs i get.
Aaron
You've gotta post up a couple second video of that matey! Lol ;)
COUNT ON IT lol. just picture. waving a hand. normally it will be 45deg down, straight out and 45 deg up. just faster lol. that and the zero strength hands are the world of wrist drop/Radial nerve palsy. lol
Aaron
Quote from: yamahonkawazuki on November 26, 2015, 04:26:37 PM. . . may put "flappy hand" to use. since ive NO muscle control of it i grab its wrist with other hand and shake it.
Aaron
I just git a cold shiver.... The thought of losing my wank-hand. :mad: What a terrible situation. :technical:
Yama, I never looked at it that way but yeah... That could be serious!
BTW; Yama... When the anesthesia wears off, check you PM for a message from me.
Thanks and happy Black Friday brother. :cheers:
Many thanks my friend :). pending successful completion of next weeks procedure, ill do well to NOT do what that lady did ( mentioned earlier in this thread.) to NOT go pig out. ill have to resist the urge to go pig out lol.
Aaron
Dont get bloated. :police:
Speaking of "flappy hand" ive found coat zippers to be hell to operate. even if i switch hands.
Aaron
60 hours until the SCS implant. ( back surgery) 18 hours until i see cardiologist. ( the rapid HR thing)
Aaron
Hope the hours don't drag for you then bro!
My problem is i BELIEVE my primary doc made the cardio appt. prob is i never called for exact time ( my own fault lol) so i will get dropped off there at 8am have to kill time till i find out IF i have an appt that day. if not i spend the day there til 5pm or so. at least ill be a block from hosp. so i can get a copy of my images from the previous weekend ( last sunday). my own fault for me not calling them. my infamous " ill get it later" lol :technical:
Aaron
I'm almost afraid to ask but.... What's cooking Yama?
I know Warp drive is down but are you capable of running on impulse power?
for some reason ortho had followup scheduled for the 2nd.. a half hour before i check in for surgery. theyre both in same practice. ( neuro and ortho) so i WCed to their office from cardio, to straighten this out, also got my films.
motion wise meh im slow as everything lol.
Aaron
So i delayed the ortho at least a week from wed. the cardio walts to run an ecg on me ( in office) as well as have me wear A holter monitor for 24hrs. ( ecg over 24 hrs) but we were shooting the breeze and tbh about all we could collectively figure out about the rapid heart rate was stress. the 24hr test should find out for sure. tomorrow i dont have anything planned. other than maybe some laundry. but beyond that nothing until i begin my fast at midnight wed.am (12am no food or water)
Aaron
We have our fingers crossed for you already.
Take care.
On a semi related note, pc is dying. time for a reformat. i used to reformat every 6 mos or so. since it was partitioned, formatting C would take care of it. its needing it badly. been over a year lol. media will play IF i move it off of c partition but not on it. cant find my 7 dvd or key tho. ( not worried about the key. and no explanation there. due to rulesb;) )but have to find the dvd so i can have it ready. or i can buy time by migrating ALL media off of c onto e f g h partitions. ( d is dvd drive) i is a virtual drive. or i can play it off the tablet as it shows as a mass storage drive. ive got 24 hours til surgery. its crunch time lol. tbh bout time to clean the 'puter up. ( no no pr0n lol)
Aaron
Three things come to mind right now...
<sigh> :icon_rolleyes: Gonna be a long 24 mate.
I'm thinking the only thing worth salvaging on that PC is the case and the power supply. Just a guess tho.
Don't forget to fast, but don't starve. You know... be reasonable.
Overall hardware wise the pc works great. the psu, gpu, cpu, and ram are still usable. ( quite) storage is aged tho. 11am i check in 1pm it happens. will check in before going under lol :)
Aaron
Quote from: yamahonkawazuki on December 01, 2015, 04:18:33 PM
Overall hardware wise the pc works great. the psu, gpu, cpu, and ram are still usable. ( quite) storage is aged tho. 11am i check in 1pm it happens. will check in before going under lol :)
Aaron
I wasn't sure what to send so I sent "the kitchen sink"
Stuff should arrive in multiple delivery's from December 4th. to 8th.
Drive, screws, cables, video converter.
Fix the PC and then sell whatever you cant use on Ebay, (or start your PC own junk-pile). :woohoo:
-Ej-
Why the hell is there no edit function here! >:( >:( >:(
There is an edit function by deleting then rewriting. ;)
Aaron
Quote from: yamahonkawazuki on December 01, 2015, 08:24:43 PM
There is an edit function by deleting then rewriting. ;)
Man, ain't that the truth. :icon_rolleyes:
Well there is an edit for mods.anyhoo checking into hosp. Now
I was able to pass surgery. They want me to stay a couple days though
Yeah EJ! ... mods can edit anywhere anytime! ... shame you not interested eh! ;)
Very good Yama! .. couple days being tendered to resting will be good for you!
Yama has a PC to overhaul soon as he get home.
Just saying :thumb:
Morphine hangovers SUCK BADLY tempted to tell them to pull the trigger ( self med device) and put me on a pill of some sort. told the CNA if shell let me ill stick my head in the ice bucket lol. to kill this headache. should be going home today at some point though
Aaron
When time permits, you'll have to explain the reason for your time in the hospital.
(the short version... in laymen's terms) :whisper:
Thanks!
Hope you actually got home. If you did, now is the time to relax and recover.
Look after yourself.
Recovering from the SCS implant surgery. device changes way nerve pain is percieved by brain. doesnt remove pain signals, just changes it. via direct connection to nervous system. a noted albeit funny side effect, when device is running, sometimes will wake my pc from sleep mode lol. ( both controlled by RF signal)
Aaron
Day 6 almost post op. day 5 of using minimal opiates. downside is i cant charge the device while staples still in place. ( will check to be sure) ive used 25% of its battery. thusfar.
Aaron
I go in for followup on 11th. ( fri) temptedbto charge unit beforehand but meh probably should wait. at least until friday.. will update . but so far so good. one day after christmas, may get my hands on an iphone 5 or better. because it can also be used to program implanted device. wait a few mos til those devices come down in price via ebay.
Aaron
If your implant will turn on your PC, perhaps it can adjust the TV for you! Then you can do it by thinking what you want to watch. You sound as if you are feeling a little better. I hope so. Keep plugging away and we are thinking about you.
Hooray for improvement! ...
Hmmm rf signal interference eh? ... trip to the computer section of a dept store is in order then! ;)
Go Yama, Go!
(http://s25.postimg.org/iwy4ad6an/guy_with_antenna_on_head.jpg)
followup is jthis fri afternoon
Aaron
Had staples removedbtoday. Dealing with minor drainage issue. Comp wise, planning on rebuilding after christmas. Mainly mobo and cpu. Rest will be incorporated into it. (Ram, power supply vid etc)
But all in all, everything is good . :)
Aaron
I go wed. For the followup on ankle re fracture +3 weeks now, along with the left atm bradial nerve palsy . All pretty much uappened on 21st of nov. Looking forward to beginning the healing process for the last HOPEFULLY time lol
Aaron
Good to hear Yama! ... finish the race in style this time eh?! :thumb:
Lol I wish someone would invent time travel. So i could go back to aug 11. And NOT have gotten out of bed for a midnight snack, (and subsequently passing out fracturing first ankle for first time lol.) But back to reality i find out what if anything is next for l ankle. Oh on a side note, dad suggested adding the words "my foot" to the radiologist diagnosis of "simple fracture" from three weeks ago. I'm thinkin t-shirt lol
Aaron
Good news and bad news. Good news is its healing. Bad news is the damage cannot be repaired. I'll be dealingnwith postbtraumatic arthritis.bfrom now on. A cast for another month. Thenbfitting for a permanent ankle brace. To be used whenbwalking. Culmanating with ankle fusion in abfew mos. Aka my ankle will ne locked.at 90deg. But ill still be a bipod. So at some point ill be on a gs again. Basic mod would be abueelbtoebshifter. Ivengotba compatible onebfromban HD so ibguess here's looking forward :)
Aaron
Eee Gads! "back on a motorcycle" :icon_rolleyes:
Please, Yama, go with a Can Am Spyder. It's just as much fun as a bike but a hell-of-a-lot less stress on your bones.
And besides, your not exactly 19 anymore either.
Just saying.
Yeeah, the moto owns ways off. Just lookingbforward lol. ;)
Aaron
Well then, some good news at last! That must be a huge weight off your mind. Good to hear.
Also bear in mind that old British bikes had the gear shift on the right hand side and the rear brake on the left if that helps any!
Take care.
Almost went to hosp. Yesterday. I had a seroma burst. A fluid filled sack around the implant. Lost A LOT of CSF. Will have to keep an eye on it. Plus my pain doc dismissed me yesterday. Not a huge issue, i see my primary doc.Wednesday. she can handle that short term. Btw, weight.back to 151. For now.
Aaron
Update appreciated. 8)
I meant; Update "is" appreciated. :whisper:
Or "was" appreciated? :dunno_black:
You get the idea.
Called neuros office this am, he called hack, since no onvious signs of infection in spinal area, will keep close eye on it and call mondaybfor what next instructions. If CCSF can get out, bacteria can get in aka spinal meningitis. Now infection in peft big toe.from its.cast. but im still optimistic. Abround of antibiotics.shouldbsuffice.
Aaron.
Oh regarding The black cast sig, almost have to disregard that. Since I got the black cast. To match my church shoe. Had another church trip coming. But ankle is sketchy so more than likely will pass on it.
Aaron
Okaaaaaaay heres a bit of an update/gripe post. im up at 3am in the midst of a possible tornadic storm. if not, at least im getting a good show out of it. with the lightningwise. wind is slowly increasing. rain ceased abruptly now is slowly increasing. im remaining awake, until it passes because it would take me 20 minutes to get to where father and sister and niece are sleeping. each in own room. takes 20 mins to wake dad lol. others fire up stereo = job done. then takes me 20 mins to go back down hall (30ft) to basement. and 20 mins to carefully descend stairs. anyhoo now to relevant parts of post ( ears popping and ive got pe tubes wtf lol) last week i develop a UTI or at least notice it while at church. had to have a trusted friend sttand behind me while i tried. after 20 mins nothing. after hour 2 10 mins again nothing. anyhoo that day 18 hours of nothingness. it slowly improves. im at roughly 60% ( 60% of amt i take in. comes out. ) seems to be a common thing with diabetics. and those with compromised immune systems. or immune systems being overworked. and those post operative. 3 weeks then almost. ANYHOO, ALSO THE TIME i have the SSI issue. ( surgical site drainage. this past friday, my pain doc kicks me to the curb. citing meth use and only using the SCS implant 47% of the time. 1 never tried meth. last illegal thing was herb 10 years ago. i said with that device in your hand i mistook you for a minimed rep. i see i was grossly mistaken. you see i was not allowed to charge device UNTIL staples were removed. which was 9 days ago as of the 20th. and failed pill count? Um maam check records Dr reat my orthopod wrote those for this kinda obvious series of fractures. since your reply was " take an aspirin" to the 10fold increase in pain. i see youve NEVER dealt with CHRONIC FRACTURE pain on top of IMPLANT surgery on top of NEUROPATHY. if you had youd be a bit more understanding. " Aar.... i told her politely, the floor is mine. youre going to say what you wish in your report, just be truthful BECAUSE for some odd reason i record audibly issues like this. and bad press takes FOREVER to undo. especially when i get ahold of minimed rep. i was needing to have it adjusted. she said we will still do that. i said not to me you wont. they will want to know why i am unwilling to have it done here. and i will have this recording. im not paying a site visit to a facility ive no other business with. its hell to get a pain clinic license and easily lost. now im not going there. not worth it. so just be truthful in your report. i saw my primary doc day before you and 12 panel makes no mention of it. ( i requested this along with lab backup.) so just be truthful in your report is all i ask. or i will challenge this. you should KNOW it Cannot be run at 100% Unless i can charge it. which with TI staples in me cannot be done. So have a blessed day, and a merry christmas. adieu.
Now moving forward from there i called my orthopod, asking him to call in my tramadol refill. for some reason knowing this was going to happen. it was jfilled that day. most pm docs dont mind this in a treatment regimen along with stronger meds. this past sunday again the uti was still happening along with the output deficiency. im outputting regularly albeit deficient still. yesterday i was awakened with the most GOD awful pain ever. a 15 on a 10 scale seriously. i almost called 911. yes i had invasive surgery. so pain to be expected. day before was nearly gone. anyhoo i turned device up to 5.90 and tried to sleep. this high output caused some bleeding. which i noticed later on. i figured today i have doc appt, i can kill two birds with one stone.
output deficiency concerned her, she whiz quizzed me because she saw that i was/am in distress. i explained issue. she is serving as pm doc again like before. until maybe i find another facility or late april.. when i want to get off of those. as long as no further surgeries. lol. thinking of NOT having the fusion process if the prosthetic will work. one on each foot. i get a month on each beginning feb. anyhoo the infections. ive been on many high potency antibiotics, im waiting until monday if i dont crash first. ill get a PICC line put in and do it at home. i had pics of the site, but tbh i consider them NSFW. ill find the old ones. if the dehiscience progresses ill have to go in. earlier. this is a condition when an incision starts to open. both have. about a half inch each. but my body plugged both. hence the nsfw. trying to postpone this all until mon. but im training my sub at church to cover for me just in case.
gp doc ordered a bone density scan, i asked for a nerve conduction study as well. my left wrist has minimal improvement. you could put a $100 bill in there, i couldnt get it out. now, the wrist happened 21st of nov. on church tfip. i fell a total of 7 times. once at home. i didnt frac. wrist cause of no pain. either i ended up with radial nerve palsy,j or a stroke. because i couldnt stay in seat even belted. a bit of facial droop but barely noticeable. GAL at church wsanted to take me to vanderbilt. i declined. said it hit OR. AFTER OUR return. a bit of mental confusion but wrist and new FX. ws only issues. i went back to useless cell phone. saving other as backup. OH weight, im up to 160. idk why. maybe retaining water. will update as things change. more than likely often and soon.
im sorry for yet another monster post. i may violate church policy and get a beer. ONCE. it makes me pee like a russian race horse.
Aaron.
Got ahold of neuro via the answering service. told him about the seroma draining, last week, he asked a few questions. he kinda panicked when i mentioned the Dehisience (sp?) which is the incisionS starting to open. he said " you may be getting ready to lose it." i asked if using steri strips would keep it together he said no. ill call in some antibiotics, you cover it with 4x4s and come in monday and well figure out whats next. specially when i mentioned both were doing this. each hole is grown close to 7/8 of an inch. im hoping it holds together at least thru christmas party at church. along with church on sunday. have another seroma filling. if it holds together i may go. since weve several surgeons in congregation along with EMTs if it lets go ill step out and call 911. and go to OR. BUT then again idk. may just stay home. and play it safe.
Aaron
front half of foot is burning/numb err both feet. hell ivve hamd evvery adverse problem one can have on a minimed SCS. IF THE bdehiscience ( wound incision popping open and growing albeit slowly. and rep is nowhere to be found. if the vertical isncision bursts, ill feel a intense burn like now but worse. plus wetness from csf coming out along with blood. if / when either let go, ill be tested for staph.. and meningitis. if positive i spend a week in isolation.. 1 its contagious at first, plus it destroys my immune system for a few days. this will blow. both incisions are compromised. put butterfly bandages. over each one. bottom one now over an inch. and under tension. butterflys are useless but ill feel them pop first, then i brace for burn then fluid running out. and blood too. bottom one is draining slowly and growing slowly. (opening). doing best to make church party, planning on singing with the girls. they dont know the dire issue. but i must make it IF it can be done safely.. some steps were missed in trial phase and it set this up. a common and this DR my old pm doc, i THOUGHT was a good one. my neighbor a lawyer, was drooling.. im like mike dude lets survive until monday first. im trying like hell to make the party. doc didnt mind AS LONG as back was kept straight. and movt was kept to a minimum. if it pops at party ill have my go to bag ready. a towel i can ruin. an ace bandage to secure it to backside, the ladies are the subjects of my next series of drawings. too bad theyre 21. im twice their age lol. one bought me a NICE drawing pad, pencils pens markers etc. told me not to peek. lol. but it was in a bag loosely covered. lol. so im trying to get photos of them to draw. but may not go. it depends. hell im sweating now., NOT good.. outside its 72f. not sweating weather. if temp is above 101f im going tonight. am petrified here. brb.
Well sh*t. 101.9. no party and more than likely spending time in isolation. damn no christmas for a while.
ill let yall go. lets hope i beat this. IF something happens. you will be informed.
Aaron
Good golly man, >:(
You typed that on a damn cell phone? Wow.
Ok then mate, since there is little else I can do, I'll put you back on my prayer list. Now thinking I never should have taken you off it. Yikes!
Good luck with this latest bout and update us at the proper time.
God speed, man.
-Ej-
Update, Test results back. Staph infection. both at device location, and at medial malleolus ( distal tib, near fracture location.) got me on so many antibiotics i could fart sterilely (sp?) neuro says the 2 are related. meaning device has to be explanted. ( taken out). i dont think i want it put back. dont think i want minimed to try again tbh.
Aaron
Getting a PICC Line put in tomorrow to treat the MRSA. so essentially, im doing my ivs at home. hoping they let me go soon. been here since the 24th.
Aaron
Quote from: yamahonkawazuki on December 28, 2015, 02:34:50 PM
hoping they let me go soon. been here since the 24th.
Aaron
Get all you can out of em' before they cut you loose.
Go home in the best shape you can tolerate.
We dont want secondary complications to over-ride the primary issues.
What a Christmas adventure. <roll-eyes & yikes!>
-Ej-
very true :technical:
Aaron
Day 5 coming to a close. have a mrsa infection in ankle, under the cast. hell for some reason my body does not like casts it seems.
had cast removed. have a few weeks of antibiotics to do. its either that or spend 4 weeks in a nursing home. cause insurace wont pay for a home health nurse.
Aaron
Well im home. missed christmas altogether. theyre trying to kick this infection using a VERY expensive antibiotic regimen. ( around $20k range) over 28 days. because my insurance would not cover a home health nurse. so why didnt they find this out before setting me up with a PICC line?!? ( long term iv) if this oral doesnt work, im going to end up in a nursing home for at least a month. to be honest i am scared. had they cleared other infections this quite possibly wouldnt be an issue. neuro asked ortho about removing cast to check for infections/wounds/ulcers. ortho was like " naah hes fine. no fever" i was in so much pain, 3 doses of dilaudid did nothing, i was crying. my body it seems doesnt like casts. so this plus the scs implant failure, destroyed my immune system temporarily. my lawyer neighbor wants to go after them plus minimed. im holding back for now. just trying to stay alive. anyhoo ill post whenever i can. just glad to be home. im tired of this cr*p. of hospitals doc appts, all of it. will hope and pray this last ditch oral antibiotic treatment does the job. with my immune system compromised ( its tired lol) i cant physically touch anybody FOR A MONTH :technical: or i risk my life. and i dont want to risk their health either. theyd make out better than me , but still dont want to risk it. weight wise, still around my norm of 150. anyhoo will be on later my friends, thank you for being there for me.
Aaron
After some soul searching, ive decided to check myself into a long term healthcare facility aka nursing home. my father and i share this home, ( left to both of us by mom who passed on :( ) i dont want to risk his health. that man is a treasure to me. and its better that i leave for a month. to finish this course of treatment. ill have to have the PICC line re-inserted, so facility can hang iv antis with ease. still very scared. and still hoping this takes care of it. if it does not, either death or an amputation will happen. my white blood cell count was 15,000 FFS THIS WAS OVER 3 CBCs. but im positive this will be the first step on road to recovery and no matter what happens, will be the first leg on my road to my old self.
Aaron
Agreed.
Time to put this into high gear.
No choice but to give 110% effort and do the long term care thing.
This is indeed the moment that such a decision has to be made and you've chosen wisely.
Yeah the long term care facility sucks but this is your chance for a big dedicated push to get back to normality.
I respect your tenacity. :bowdown:
-Ej-
This is beyond depressing. i checked the FAQs about MRSA, says it is contagious up to 10 Days. idk tho. 1 idk how long it was there under the cast, and 2. what damage was done to left ankle joint. the ulcer was on the medial malleolus ( inside facing centre of body) i was crying when neuro cut cast off. staff of CCU was urgging my to be quiet. i was urging them to bite me. on a 10 scale i was well past a 15. as i said earlier, in ED, they brought a percocet 5.. i asked what this pill was, when they said a 5, i said yall can keep it. this wont even touch the pain. Dr. Compassion came in and asked me if i was there because i was out of pills, i said no, they were just filled. i asked him to sedate me. he declined. this huge nurse came in he says " narcotics arent the answer" i politely cut him off saying" um try dealing with 4 fractures 2 of which were still active. other 2 were in healing process." narcotics helped me deal with this pain. anyways dr compassion pulled him aside told him to give me whatever i needed for comfort. because " that is 1 sick man" 1 shot of dilaudid, 5 mins later i asked when id get something. he asked me "did you not feel that dilaudid?" i said no sir. you could have injected me with water. would have had same effect. 2 more injections later, it barely made a difference. 20 mins later im in CCU. Hr at 125, theyre growling cause i was loud. i said sedate me PLEASE. they wouldnt. was there for 2 days. (25th and 26th) neuro comes in i begged him to cut cast off. he finally did. spot where mrsa was , was green. with bone close to surface. neuro swabs spot and has it tested. a STRONG CASE of MRSA. he also takes a sample of fluid from spot where he put the implant. i screamed when he shoved needle in. ( he didnt warn me lol) he said my muscles almost shot the needle out. anyhoo that was only staph not MRSA. next day im in OR having that device removed. ill be damned if they put that effin thing back in. if they put anything in ill have them put a pain pump put in. if thats not approved, then nothing goes back in. im dealing with this infection its origins are unknown. but damn is it painful. anyhoo gotta sleep my friends. for some reason im exhausted. will check back in this eve. calling nursing homes. to check insurance coverage.
Aaron
Good news and not so good news. Good news is accd to staff at neuros office, as long as i keep the mrsa wound covered, cleaned, and i wash hands frequently, i wont have to enter a long term care facility yet.... now the regular staph infection on back over operative site, as long as it doesnt deteriorate into mrsa im good. bad thing is once diagnosed with mrsa, you are from that point on, a carrier. for life. no biggie. i knock it into remission and keep it there, im good. no danger to myself or others. seems this is a common occurence in medical facilities. but thank GOD for insurance. this 28 day run. almost 20k. twas either that or a nursing home. funny thing is would have cost ins. LESS, to have the PIC line, an iv pump and a home health nurse, than this run of antibiotics. but hey i dont care what way shape or form i get my antibiotics, if it keeps me alive tis all that matters :)
Aaron
Left foot ice cold yet i feel pulse. edema still there mid shin to toe. top, bottom, rear & front. hell i cant see my achilles tendon for the edema. cant hardly see my toe knuckels either hardly. hardly a fever tho jus 99.1f waiting an hour.
Aaron
Tic, tic, tic, . . . The minutes pass like hours. :icon_neutral:
Reading your posts as they appear.
Just saying.
-Ej-
Sorry EJ, I Thought i had updated. ( did in mind anyhoo) i went shortly after posting this. I was beyond pissed at the house md. he wouldnt look into the edema issue because and i quote " I sent the ultrasound tech home for the eve" i said hmmmmm "so a trauma centre has only one of these folks, 2 NNICUs and NO way to operate an ultrasound? dude was in there for 4 minutes. said pulse on foot was near perfect. i said ill be damned i cant feel it?, and foot is 1.5x LARGER than R, he peeled back the bandage from the mrsa wound, glanced at it. and put it back in place. said " doesnt appear infected" THIS i agree with. because im on a VERY strong antibiotic. oh makes no mention of the edema in shin/ankle/foot, only of the wound. wtf, in this guys case md = moronic dumba*s. he re used a bandage ffs. I documented this by requesting anothone from desk staff. along with Chief of staffs card, i keep EVERY record. got to go in monday and get COMPLETE records dating 12/24- 12/29. still have to get both Neuro-Ortho to finish up on post surgery (neuro) and FX (ortho) but ive no desire to see inside of that hosp. again.
Aaron
Well, on a semi related note, got maybe 95% of use of my left hand back. ill settle for that . discovered this on 29th of dec. when i hit the nurse call button (admitted on 24th got out on 30th) i had forgotten the reason i had hit the button tbh. they came, i was confused, i explained reason for this ( the palsy) i had finally sujcceeded in training my body to handle Lh tasks, with RH. And that time, i hit button with LH, still a tad weak opening fingers, but closinging them, nearly normal :D. Now, if i can get this mrsa to go into remission, ill be happy.
Aaron
Holy dog bite! You have one hell of a list of items on your "come back" sheet.
Its good to see you posting again. Things got a little scary during the Christmas week.
So for the moment are you at the hospital, or Long term care, or home?
Crutches, wheelchair, or gurney?
Just wondering.
Thanks,
-Ej-
Im still kickin 5'10" on the positive side of things :).
12-24 i entered hosp. Mrsa diagnoses unconfiirmed at that point. but anyhoo 12-24 i enter Hosp with 101.9f fever. i leave hosp 12-30 beginning antibiotic regimen
then that fiasco NYE. ( WAS THERE A TOTAL OF 2 HOURS FFS) i ask desk clerk for a large bandaid, because the doc didnt replace it after his cursory exam. ( also got chief of staffs card, mgrs card etc) had 24 hours to figure this out. monday ill put it into motion. next post details it
Aaron
i had researched malpractice law, the short of it is burden of proof is up to me. but in a nutshell i can do so. heres the timeline which i can back up with records:
Date Loc. Mrsa status:
08-12-15 Meth. Er... oak ridge Neg.
08-19-15 same Neg.
08-22-15 ortho (TOC oak ridge) Neg.
08-24-15 Meth. OR /ORiF surgery Neg.
a week later followup to surgery all is well except for wound half under cast. i go to er (meth OR) no mrsa but antibiotic via iv for nearly a week. along with diabetic dka episode.
anyhoo ffw to first week nov. at former pm doc SCS trial,
at this point mrsa neg.
followup a week later, trial removal mrsa neg. normal temp 97.5f.
Dec 2 2015 SCS implant surgery Meth. OR. AS OF PREV. fri labs, Mrsa neg everything normal, cast applied to left leg.
2 weeks later cast changed no pain, no abnormal labs. no visible wound.
and no mrsa ;)
Had significant pain in left lower leg/ankle/occasionally foot which ortho attributed ( and i felt likewise) to post traumatic arthritis. only abnormal thing was the sinus tachycardia ( HR >100bpm since i had not heard back from cardio, my hypothesis was stress.)
noticed a week previous to hosp on 12-24 some discomfort at ankle joint medial malleolous/tibia.
Also noticed ( backed by call to neuro answering service) btw neuro and ortho in same practice.
drainage from surgery location/incisions, this was after staple removal on 11th of dec. in neuro office. normal 97.5f temp. ans. svc/doc said if i felt concerned to go to ER. since no temp i didnt. a week later, after scs/issues and id say mrsa manifestation on 23rd , i take temp, late on 23rd it is now 101.9f. i call answering svc. with this info along with renewed discharge from BOTH incisions. and 1" dehiscience on both the vertical and horiz. incisions. neuro is alarmed. Im in ER on 24th, mrsa unconfirmed at this point. ankle under cast raging now. neuro removes cast and wound is FUGLY he cultures it, gets it confirmed quickly. and Mrsa is officially diagnosed. at this location. in back, just "normal staph" going to get funds together and pull COMPLETE records. Nowaitaminute, atty can do this.
this coming week, on 5th a followup with primary doc, on 6th followup with neuro, AND my ear doc. will update
Aaron
But alas it seems as though that isnt enough,, meh ill concentrate on putting myself back together. leave the rest to fate :)
Aaron
New goal :), to beat this into remission ( and do my damndest to keep it there) followed by getting my ankles back to 100%, got most of L hand usage back so im stoked.
Aaron
Quote from: yamahonkawazuki on January 02, 2016, 07:28:17 AM
New goal :), to beat this into remission (and do my damndest to keep it there)...
Your positive attitude (in spite of the beating you've been through) is amazing.
Hope each passing day is a little better for you.
Temp at 97.3f theantibiotic regimen getting used to it. Follow up to this incident tuesday, tbh idk if ill EVER have another surgery unless my life depends on it. lodging a formal complaint against hospital monday. may have to find New ortho and neuro as well. hard to do tho when left ankle is a work in progress. usually an ortho wont touch anothers work. or a doctor wont touch anothers work. but this mrsa wtf. if i have a medical issue and my life can chance transport elsewhere, i WILL. i dont want any further gifts from this location.
Aaron
Well this is funny, yet serious. only choices for the antibiotics VANCOMYCIN ( iv only) OR linezolid (600mg oral 2x daily. for 28 days. use of either one REQUIRED. lest i die. yet it has fairly strong interactions ( if/when they happen. albeit rare) with my pain medication. so have to be careful. cause this drug interacts with ALL forms of pain medication on same level.,
So must be careful VERY.
its contraindicated with my SSRIs as in do NOT use together. this i can deal with short term. it can pretty much seriously interact with everything im on except my insulin. to an extent. Now if i were to go on vancomycin, good chance of going deaf lol. but without either one, id be putting the job of fighting this infection, on my immune system. wont work long term anyways. hell it doesnt play nice with caffeine. BUT sorry this isnt happening. ahh well i stopped the SSRI ( ONLY must not use together) so far np, if any issues it will be dealt with. the antibiotics are NOT OPTIONAL. the ssri usage is. Anyhoo now i know what works and what wont. no pain reliever use of any kind is ideal lol but not realistic, as long as im careful , im good. ( plus this will be closely watched/monitored) , i wont be able to go without any pain relief. especially with the nerve pain, the fracture pain, arthritis etc etc etc. i went without for 18 hours. on the 24th. this i cant handle lol. ( unless pain sources can be addressed and eliminated). anyhoo enough stress. lets find something else to distract my mind. :)
Aaron
Quote from: yamahonkawazuki on January 03, 2016, 01:16:27 AMLodging a formal complaint against hospital monday. may have to find New ortho and neuro as well. hard to do tho when left ankle is a work in progress. usually an ortho wont touch anothers work. or a doctor wont touch anothers work. but this mrsa wtf. if i have a medical issue and my life can chance transport elsewhere, i WILL. i dont want any further gifts from this location.
Aaron
My sage advice: Keep your plans completely confidential. Always be nicey-nice to your current doctors & hospital staff, then... Get your facts in order and type them up on paper.
Contact an attorney with your paper work in-hand. The initial counseling and case evaluation is free.
Need a printer, paper, and word processor program for your PC? Let me know via PM.
Need a whole new PC? Let me know in a PM.
Need a new Maserati Granturismo? ...No wait! Scratch that last one.
BTW; At this point it would be a good idea to start your own detailed personal medical record on you PC anyway. Record just the facts and details (not too much fluff & drama) since your transcripts may eventually be read publicly in a court room. Details in your personal log (times, dates, locations, and names) will be very helpful to your attorney since it will be cast directly against the hospital's records.
Your anger at the horrid medical treatment you've received may actually energize your healing process.
YRMV :icon_razz:
As far as the ankle ( and neuro) docs go, this is my plan in a nutshell. i seriously cannot fault them i dont think. ankle procedures shouldnt be necessary unless this incident. aggrivates it. ( but with both their assiciations with hosp.) if further procedures are required , it wont be there. wont chance. it. beyond this, burden of proof is on me, but may be able to do something, maybe not. ill at least know. should know details by end of this week. dates, labs etc. and go forward from there. :) on a positive note, left hand is almost working. :) 90+ percent id say.
more updates to come :)
Aaron
I just want you to get better. :icon_neutral: Even ever so slightly.
Being in constant pain and the slow degradation. I know it can wear a man down.
Just thinking out loud here.
You've been exhausted of endorphin's for too long.
Hope you get a good night's rest.
-Ej-
Indeed :) time for rest. legally prolly nothing i can do. time will tell. time to move fwd what im dealing with now, no biggie, not worried in any way shape or form.
Aaron
A Double potential dammit here.
For some reason i felt the need to count my Zyvox prescription. main reason was i didnt recall taking the pm dose. so i counted. this was filled on the 29th. x 2 per day, it = 15 so far. which should have left me with 41. i counted 44. so im 3 over. i triple counted and came up with same. the pharmacy COULD have overfilled, but i doubt it. these things by far are NOT cheap. ( avg 10k or so for course) But as a whole, not a huge deal. i just DONT repeat this mistake again. On a semi related note, The Mrsa was discovered under cast in left ankle. The infection from surgery at the implant site was staph. just normal common staph. ( just about everybody has this on them.) . The mrsa antibiotic ive been taking without fail . except for those 3 extra?. that wont be an issue anymore. BUT ive not taken the antibiotics for the normal infection in back. because ive never had to combine 2 different prescriptions doing the same thing. the one written for the back was a normal methicillin antibiotic. this i had filled on 23rd. ( day before i entered hosp.) Back seems to be healing. well. i guess due to regimen at hosp. Will have to call doc about taking this antibiotic with the other one. In short because the Mrsa is a gram + and normal staph is gram - or vice -versa. Docs at hosp. even the ID didnt cover this. Baah not n issue since everything appears to be on the mend. :). Really the ONLY Issue is a minor nausea side effect from the zyvot . E Heres to 2016 being a year filled with nothing but improvements. i have my bone density scan , followup fromh osp, and primary doc followup on the 11th. no matter the results, im confident i WILL be moving forwards
Aaron.
OKAY, maybe i overreacted a bit, The Mrsa in leg, and the regular S. aureus infection in back, Since BOTH are Gram positive infections. the zyvox should handle both. which it seems to be doing :) . will confirm with Neuro tomorrow. also advise of the 3 extra on count ( triple verified). but dont forsee a problem because 1 this wont be repeated and 2 im absolutely sure i will have this in remission and eventual elimination in short order. Because i have plans on getting back to work once leg dealt with. to be successful there, i have to knock this out perm first. then the leg/ankle FX. Then i worry about the return to being productive. :) i will NOT fail in any of these goals. because part 4 of this is moving forward with my personal life :). Even if productive employment isnt possible or not possible for a while, ill at least Volunteer somewhere somehow. Between aug 12th and new years, i was given a massive dose of a reality check, it tried to knock me down. it almost succeeded. but i was too stubborn to give up. my goal for 2016 and beyond, is for this to be but a small chapter in a long life. stuff i had been doing that i shouldnt be, will be minimised if not entirely stopped. ( habits which might be considered fun, if not conducive to good health. I.e eating certain foods etc.) Short term goal, repair the damage already done, long term goal prevent if at all possible, any further damage :). I am an optimist here. i WILL succeed. Im following orthos orders on the NWB on left ankle as much as possible. have to clean house soon though. so ill have to do this carefully. church offered its help. i politely declined due to risk from mrsa issue. i.e. If i touched item recently, then only i will take care of it. Im sure im overreacting on this, but i want to be 110% sure. besides ive still got my moonboot/aircast,and this doesnt have to be done in one stretch. Cause ortho has the final signoff on my report card. once he clears me, im working on returning to improved normalcy. :)
Aaron
Whoa, monster minor update lol. sorry lol. on a slightly humorous note, ( hopefully ) from the R ankle. where i had the distal Fib fx, and plate/screws put in late august. been relatively pain free, with the occasional reminder to be careful. ( and 1 ankle roll at church incident late nov.) pain free. and strengthening. Anyhoo, im drifting off into dreamland, feeling minor nerve tingling like always. nothing new. then it feels like someone flips a switch, it goes cold, numb and slight burn/tingling. kinda like L did before Mrsa was DX. but other than the plate surgery, no injury to get infected. im pretty sure its just i guess position or pressure before a joint " falls asleep" still no pain, i can feel all parts of limb. was just weird how it came on that abruptly. ill keep an eye on it. but tbh really no cause for concern. Only arthritis pain i feel is in left ankle. course its still a work in progress. im going to keep an eye on it and chalk it up to a "whoalolwtf" kinda thing. but since the left one went to hades in roughly 48 hours, ill keep an eye on it and self as well. i guess its refreshing that my body reminds me that it still works lol :). anyhoo thats all for now. if nothing develops, ill save this one for ortho followup in about a week and half. weight wise, not much to report. course i hadnt checked within last few days. will do that later today. will be back for postwhoritude later on today :).
Aaron
Glad things are improving! :cool:
Seems to have been nothing more than positioning. the burn/tingle is all but gone. just a bit cold. was just weird lol. i guess its akin to waking up with a limb "asleep" we usually dont know until we try and walk on it ( or if arm , use arm) weve all been there lol. this however was a first for me. ive had plenty of limbs fall asleep. but always awoke to this. NEVER had felt the process from the beginning. tbh not unpleasant. just odd. as in " well now this is different" plus a benefit. it got my mind COMPLETELY off of recent events. Anyhoo heres to moving forwards, repair, and returning to my old self ( structurally anyways ) . the mrsa/staph incident was a wakeup call. as others have said earlier, " youre not young anymore" or something to that effect. i.e. i dont bounce back like i used to. BUT as i said, this is looking forward to improvement. not dwelling in the past. Idk what im on, but hope it never passes. ill take events even if negative, and use it for improvement. Still cant explain the mood improvement. its not the pain meds, theyre all but ineffective. its not chemical or anything. ( who knows, id say its Either spiritual or mental or both. def. not physical. } hope it lasts. No reason to doubt it will. , Anyhoo will be back later on :). - moving forwards even if walking backwards. this i feel will allow me to focus on what MUST be done. goal is late spring or early summer, once FX are healed, i want to get off of the pain meds altogether. and just "deal with it" been on them since 2007, (legally ) due to my diabetes and its issues. goal is to be off of them entirely within 6 mos. or sooner if FX completely heals and the cold weather arthritis lessens. i WILL succeed in this. Anyhoo sorry yet again for a monster "minor" update. lmao. ( one day my grandkids will read this and say good GOD, you ramble. lol. [/rambling_postwhore]
Aaron
Indeed theyre improving, if not physically, at least spiritually and emotionally. but i feel no matter what, things WILL and are improving. :).
Aaron
A slightly belated Happy New Year to you and yours. It will be better than the last one!
Good to hear that things seem to be improving health-wise. Always good news. As one (much) further up the age curve remember that it take (a lot) longer to heal than it used to, so patience will definitely be rewarded - and it WILL eventually heal. It will just seem to take forever!
Take care of yourself.
These side effects from the antibiotic are friggin VIOLENT. THEY SAY IT EASES with time. i sure hope so. if not i cant handle 28 days of this. feels as tho im being stabbed in stomach. im on day 7 of 28. i cant handle this for a month. yet there is no alternative. other than a picc line and vancomycin. if i can find a home health nurse who will a ccept my insurance, im switching. quitting not an option. iwtnt quit i cant. also wont risk the vanco regimen in hosp. unless the stomach thing wont ease. normally this eases after a few hours. ( 1 pill every 12hrs.) i took at 7am.calo
also ate a sausage biscuit. methinks this was the kicker. BUT in one way shape or form, i will be successful. :) OH, remember me mentioning the cold tingly leg? a mere curiosity. cause still feel feet, havent lost any strength or anything. seems this is also a side effect. doesnt seem to be a serious one. merely as i stated a curiosity.
www.drugs.com/sfx/zyvox-side-effects.html
if GOD forbid i ever have to do this again. i wont. ill find an alternative. Oh btw weight is down a tad. its back down to 141.
Aaron
Seems this horrendous hell was a side effect from meds. tbh was contemplating stopping those and persuing other means. But was informed of something today which necessitates me finding some short term work, immediately. so im going to power through any side effects of this medication. Oh btw seems this med. does NOT like sausage buscuits. i ate half of one yest 7am. then the SEVERE pain ensued. this was all i ate or drank yesterday. today really nothing out of ordinary. ate a light meal. im 8 days into a 28 day regimen. will try to complete this. really only other alternative is 14 days of iv therapy. ( in hosp.)
Aaron
This blog is fascinating. No other thread on the planet has such content. :cheers:
lol
This thread accounts for the bulk of my daily reading regiment.
Informative, entertaining, etc... :icon_mrgreen:
Tbh, sometimes it embarrasses me or idk i feel as though im ashamed for whatever reason. idk why, but i guess because id overreact to these changes in health or whatnot...But after taking time to realise that this is what it is. ive done nothing to cause or exacerbate these things, and these issues albeit negative, are Me. cant get rid of em. so i must make the best of it. and move forward. i go monday to 3 appointments. 1st one is to a "breast center" i think ill be the only guy there. but reason is a bone density scan. i guess to figure out why the fractures happened. then to the neuro for a post hosp. followup. followed by my primary doc. wed, i see ortho for ankle followup. will ask to postpone ankle fusion if at all possible. ( using braced footwear) my whole thoughts on surgeries at this point, if it wont hurt me to wait, or even to not have it, id rather do that. however if its absolutely necessary then i guess i will. Best gift i got was about 95% usage of left hand back. typing still a bit of an issue but ill use dragon to type out reports for doc followups. was funny as hell when i found out left hand was working again. i hit the nurse call button on the 27th with left hand. my mind says "wtf? i totally lost train of thought. nurse says can i help you? i said Ummmm, yeah, she said how? i replied idk" we chuckled when i explained to them what happened.
Aaron
I realised i never went full disclosure on this whole health issue. good thing is it only has to happen once. since it will cover just about everything. and further updates can be short and to the point. this all resolves about being greatful. in this case to GOD. greatfulness to GOD is all or nothing. no partials. to me it feels insincere to only be thankful for part of it. since my life revolves around serving GOD, everything else revolves around that. with yall whom i consider friends, and family and such i feel greatfulness can be partial. like im greatful yall did this, i just wish yall hadnt done that. and i feel as though id be sincere, and yall would know it. ( this hasnt been an issue as of yet. ive been entirely greatful for yall.) now with GOD, i feel its all or nothing.cause i feel anything less implies im not greatful. but with yall and with family, partial is perfect. as i said if yall or really anyone did both something i was thankful for, along with something i wished yall hadnt, its perfect. and quite acceptible. and leaves out any confusion. so partial works. with yall am i greatful for things that dont need to happen or shouldnt happen ? usually yes. would i be thankful for something done ny yall that had no reason to be done? more than likely not. id say ( as i did earlier) im thankful that yall did this, however i just wish you hadnt . as of this point, this is still purely hypothetical. i AM without doubt greatful entirely, for everything from everybody here. I do apologise for a monster intro to the next post which will be my longest post ever. and tbh i doubt i will post a longer post or reply. this full disclosure will cover everything. health related. so updates will/can be short . leaving no confusion. theres no short version of this or next post. but yall will understand everything. without doubt. so youve jbeen informed, following post will be LONG. combined with this will be longest post ever for me, and tbh i doubt i will post anything longer. my phone would die lol. anywhoo this full disclosure post over a simple question. here we go: continued next post
After long and carfeul thought, the forthcoming monster post will not happen. as it is not neccessary. i will summarise it.
as my ortho said " i am trying to NOT use a cast if at all possible. it seems your body does not like them." this was said after a septicemia incident IN SEPTEMBER. holds especially true now. since either cast usage could have killed me. given an addl day or two, either one would have done so. the frequent fractures ill know cause monday. could be moving around too soon ( id say this DOES have some bearing in it all) along with a possible bone health issue. the moving ( guaranteed factor sadly to be minimised forthwith) the bone health ( i.e possible osteoporosis) tbh idk i dont see it. but will know any and all causes monday. as far as casting. if its necessary for life then so be it. but id have to ask for a weekly change. due to these recent issues. ill close by saying im greatful to GOD for becoming ill. ( the fever etc i lay down due to great pain. temp normal @ 97.5f 2 hous later im at 101.9f id say add another half degree due to me taking a drink. .had it not been for sudden fever id have tried to power through pain until the ortho appt on 13th. and likely perished accd to neuro.,because id have prolly said ehh it feels like a severe case of fx arthritis. as mrsa thing usually is cultured at point of infection and it was covered by a cast. great pain was only clue something clearly wasnt right. sans fever id have likely postponed investigation of this. sounds weird but but am greatful to GOD for illness worsening. BECAUSE although i end up with mrsa, without fever and worsening, death was quite likely. accd to neuro. ive o intention of death anytime soon. but the night of the 24th i prayed and told GOD, saying if it is my time to go im ready , am ready for whatever the outcome is. BUT i am asking actually pleading, that death be delayed for years if not decades. cause ive plans to serve church and GOD, along with ive got things earthside i have to finish. well? im still here :) i was in ER, STAFF telling me may be 24 to maybe 36 hrs until neuro and other doc can get there to attend to me. mind you im folded in half crying. physically i couldnt handle 36 hours of that agony. and i can handle pain. ( been living with a 7 level out of 10 for years. making it difficult to convey this to docs lol when you get used to it. takes a 15/10 to get it across to them. this happened that day. anyhoo i promised to not make a monster post. again i failed. i truly apologise. the final summary is a tad humorous. i prayed to GOD asking (verbatim) how do i expidite this or do i go elsewhere, answer was without delay and 110% clear, " cause a scene/ have an outburst. this was successful. even though it took nearly 24 hours, it saved my life. the outburst hastened things. my only regret over this was me verbally dropping a few bombs. i do my best to NOT curse but this happened 4 times. that i was entirely at fault for. and the main reason for monster posts of recent times and ( to those who were recipients of , mainly today i feared even tho i already had answer to it, i seemed to have set the answer aside for some reason. my concern was i did thank GOD for success in the outburst. but i was thinking if i tanked him SINCERELY while the bombs were dropped, was i expressing gratitude for those too? answer as always was no. for some reason i overlooked this. this i was deeply ashamed for. for bishop who was the recipient of several MONSTER emails. and the sister missionaries, i sent several MONSTER TEXTS. over something that i already knew. the monster texts/emails were in no way necessary. i felt such embarrasment`/ shame in this i spent an hour trying to validate that . then relising this wasnt going to happen, i spend the next 2 hours apologising for the whole thing. and basically saying " disregard all of this. health is improving i believe, i will return as soon as i can do so safely" without risk to myself. others tbh as long as i maintain hands off, im not a dangrto them. more than likely im overreacting but i want to be certain without doubt i.e anything less than 100% is dangerous to me, for now as my immune system repairs itself. others, im fine as long as i maintain hands off which iw ill do until i test negative 3 times. ( accepted std of eradication) test 1 monday. id say others a week apart. Continued good hygiene will be a benefit as well. i was pissed as hell at initial diag. until research, combined with id doc saying ( just about everyone has staph on their bodies. its natural. a small percentage get an infection via ac ut or whatever, out of this maybe 1% or so get mrsa. well lol Cest la vie. i ended up with BOTH. mrsa in lower leg, at wound/fracture location, and a staph infection at implant site. can i take these odds and buy a winning lottery ticket? winning as in $200 or more lol. Anyhoo ill stop now. because i promis ed no more pointless MONSTER posts. from now on updates will be short to thep oint, if theyre longer, there will be a reson behind it. cause everything has been explained in detail ( exceptl labs) if i have to go long , there will be a valid reason. if ivea lready covered it, then i will try to keep it short. again id o apologise. my phone is complaining as well lol. the monster updates today along with monster messages/emails to friends at church, this 99 cent lg handled it. reallyt he ONLY thing i can be complimentary about it. (last4 hours solid updating here and church, relising MY mistake, then r spending time apologising to them, and then updating here with hopefully last monster post, i had to get all finished before i surrender to sleep. oh btw weight down to 139 but im not concerned. everything WILLi mprove. i must sleep now. i had to do all of this first tho. i do apologise for length of update. wont happen againu nless necessary. if it is will NOT be this long i do promise
Aaron.
anyone here calculate stats for a living? im curious about something. regarding recent health issue.
Staph pretty much common i.e. north of 70% its onour bodies. without incident. Mrsa, cuts this number to 2%, again no issue. now infection/illness cuts number in half almost, having both types again a sig. cut in %. both types infectted. again half it or so. both at SAME TIME, AGAIN cut in half or so. figure in initial damage/shock to system. i shouldnt have survived initial attack. odds of happening very low, odds of not surviving, very high, also figure in type 1 diabetes. tends to slow things down. yet 1 i survived initial attack, with only a neutralised immune system it seems. which is rebuilding. im figuring odds? 0.25% im confident i will ultimately win. no doubt. it was just staggering to calculate this. this is my do over. i wont fail.
Aaron
The diabetes issue will quadruple healing time. Make sure it's addressed. Meds, diet, whatever.
If you smoke, switch to vape.
No Sir, vaping does not satisfy as well as a good strong drag on a lit cigarette, but it can cut your cigarette consumption in half without "jonesing" for nicotine.
There is a long thread here on GSTwins on the art & science of vaping. If your a technical guy you'll love it.
Just saying :dunno_black:
As a whole cdc and id numberd wise i shouldnt have survived the initial shock on system. how long it was there before being expossed had cast put on 2 wweeks before this happened. some discomfort on tibia then but it subsided i.e pain for a few days,. chalked up to body goin well sh*t this blows but lets make the best of it. the infection in back happened either in trial surgery or in implant procedure itself. trial at ex pm doc who said i no longer needed their sgcs because i didnt use device 100% of time. um i cant charge something with staples in my back. broadzilla. anyhoo formal complaint against them possible. anyhoo back on topic back infection i.e staph and leg infection Mrsa ( both are same thing btw. just one takes a bit more effort to fight it.) now casts. i had the cast on R Ankle. early sept iirc. was septicemia i.e. blood infection. dont recall whether staph but id say so tbh. this had since been healed fully. i wont wear any more casts. this last one nearly killed me. i hosp a week. i dont remember much of it tbh. 24th to 29th. i know 3 doses of dilaudid didnt knock it out. 1 normally would floor me. i was pissed when this 400lb nurse says " you know narcotics arent the answer" i said yeah especially when you dont feel them. when you injecting this. hes like umm you didnt feel that? after 3 i was really no closer to anything. being told MIGHT e a day and half. before the outburst, i made like i was going to leave. i was tbh, i said theres no one here. something isnt right either get someone here or make note of time and yalls refusal to investigate. there is quite possibly a wound under cast. possibly could be infected. for who knows HOW LONG? nurse said then " you running a fever?" ... seriously?this device you ran across forhead, this a thermometer? um yes, you used it on me just now right? yes, was it running?.... yes, and result? 101.3 OKAY, you just asked if i was running a fever..... i had said at this point, tell you what, idk whats going on here, but that err its time to leave now. i had my walker i was going to go AMA and leave. and transfer i caught neuro in hallway. still took 18 hours and a scene, but for christmas i got mrsa and back surgery. and i survived the initial assault. now pain buildilg again in same area. ifi can delay until tuesday i can try dofferent tretment regimen. plus i can get other affairs straightened out. going to try to get home health nurse or a hospice nurse to handle iv antibiotics ( vancomycin) hard on hearing may require hearing aid worst case. but it works. if they will accept my insurance ill do it. and wed. i have ortho ankle follow up Finally. i find out if this infection got into bone. or/and overall status of fracture. heres to overcoming second stage inb mrsa treatment, if successful im closer to remission.
Aaron
regarding side effects, i recalled the one from sept incident. side effect was gas lol. had fun with that one. pain in L ankle changed almost feels like FX PAIN but this i can attribute to cold weather. going to rest for a while. to help keep that in check, and to alleviate chest congestion building. just trying to get thru monday afternoon. for docs plus getting personal affairs straightened out/ getting a couple bills paid. so i can relax, and lessen stress = making med issues easier to deal with or antibiotic less able to cause issues. even though these side effects are kinda harsh, im almost half way into cyycle. may just try to power thru it. safer than changing regimen. all of this hell fighting something as a whole not much stronger than a chest cold lol. i guess the gist of it all is many small variables by themselves not much. but combined becomes an issue then greatly strengthened with a wound. = potentially bad any delays remove potentially from it. add iddm err type 1 diabetic to it = in my case a life changer. health now is fragile but is rebuilding itself. spend all day thinking about this it was humbling. still apprehensive as heck but things will work out, with an occasional stumble. ill work out and eventually be a better man for it. yall take care will check in sundayy afternoon hopefully. btw weight at 140lbs atm.
Aaron
Good GOD mother of run on sentences. even with punctuation. had to change bandage on mrsa ankle, cleaned using hibiclens etc. examined mrsa wound saw what was kinda cool lol yet perhaps a significant problem. i literally think i saw the medial malleolus. i.e. the inside edge of my tibia. it was either that or a wound bed. if it was a wound bed it would move if i jiggled the wound. i do believe i saw the wound move yet "bone" remain in 1 position unless i moved ankle.. its covered with skin but clear and visible and i keep it clean. but it is definately nsfw no way to edit that. ill check with doc monday. cause on ankles skin thickness is THIN at this location. specially with small people such as myself and this is where wound is. will update tomorrow. but i do keep it clean. will update.
Aaron.
Quote from: yamahonkawazuki on January 10, 2016, 05:04:23 AM
Good GOD mother of run on sentences... even with punctuation...
...will update tomorrow.
Aaron.
Yama, I think a lot like you type.
I may not have your patience (um, stamina?) to put it all into words, but I do think in similar terms.
And in honor of your marathon post, I submit the following self-serving, off-topic rant...
GSTwins makes up for all the other boards, and I do I mean ALL the other boards that simply cant let people say what needs to be said.
This is an off-topic section. It's your duty to smoke the keys right off the keyboard! Type until your fingers cramp.
If I like your obnoxiously long-winded, (um, border-line ramblings of a mad mad) posts, then let me have my jolly.
Why is it that the show of friendship or even the slightest camaraderie gets crushed on sight on most all the other forums I work?
LPW is the only place a thread like yours can live freely and frolic amongst the grand digital wasteland we call the internet. If you like putting up these insanely long posts (which I enjoy reading), then why should that upset any other members?
ANSWER: It shouldn't! Especially in an off-topic section, but haters are gonna' hate, and the internet is packed with them.
On the other forums I frequent The only time two or more forum members bond is when they are teaming up for a premeditated gang-rape on a junior member in a thread!
GSTwins stands head & shoulders above those other motorcycle forums that constantly swill negativity and venom.
I've seen Tee shirts with the saying "Haters' Gonna Hate" and never gave it much thought... Then I joined an internet forum. Now I understand.
Bless you GSTwins and the brave men that stand to defend The Tard Farm.
This place truly is Nirvana :bowdown:
^^ What he said ^^ ++
I got rid of my GS a couple years ago, I still come here every day, but usually just to the "Farm", to see whats new here among the few "real" people to be found on the internet.
Keep up the friendly banter, and the occasional rants, coming here is one of the brightest parts of my day.
Quote from: Toledo Jim on January 10, 2016, 08:12:17 PM
^^ What he said ^^ ++
Keep up the friendly banter, and the occasional rants, coming here is one of the brightest parts of my day.
I own several brands of bikes so it's understandable that I would frequent several different boards, and GSTwins is by far the most humane of them all.
Maybe its because the GS500 is a humble little work horse, and GS500 owners didnt buy the bike so they could be "Jonny badass"
A 500cc air cooled parallel twin is sporty, and not an ego (or pen!s) enlarger like so many of the new mega-powered "must have" bikes are.
Closing thoughts...
Thank you Yama (and Toledo too) for allowing me to dump all over the Doctor's Advice thread when I should actually be in the Rant Thread.
Now I'm going to put on my black boots & Harley jacket and take a ride on my 50cc moped... Just to pi$s-off the Harley guys down the block.
Cool!
Gaah phone melted down. mid update. in short ill find out in 7 hours if the mrsa has relapsed or still going to heal
ennroute to doc, leg checkout cough, investigation. updates to come
visit one complete ( out of 3 today) the bone scan. ( i was able to glance at screen, unofficial until maybe wed.. but on a 10 scale of fracture likelyhood, i saw 8.5 foll8owed by fracture likelyhood of ( high/likely) their radiologist will read and report, and my primary doc and i will get report stating same within 36 hours. meh cest la vie. NOW i go to neuro for exam. THIS WILL be a detailed testing. with likelyhood of hosp. :/ ( next door)
Aaron
Neuro visit done. i want to cry now. seriously. Neuro s words were " whoa wtf , your foot/ ankle went to sh*t" dx is severe/ advanced charcot foot AND ANKLE. 2 WEEKS surgery is required. not an option. procedure performeid ijWI LL beweither Fusion OR AMPUTATION. 6 MOS OF CASTING, weekly changed, and STRICT immobilisation. the 2 week thing, if it deteriorates faster than planned, im am onopod. err MONOPOD. now ill have to perhaps sell my compurter and stuff to raise the 300 i needed to cover an expense. i figured out how to delay thi,s expense until this happened. now ive got maybe 4-7 days to accomplish this. i seriously want to cry right now
Aaron.
Is life as a healthy and relatively pain free monoped better than what you have now?
Ask the doctor the hard question: Will removing the damaged ped allow for the new wound (further up the limb) to heal in a proper manner and thus return you to health?
PM me with the details on your $300 fiscal crisis.
Either way im a monoped. just first one has 2 feet. yet virtually no support. i about fell several times. the edema has reduced to semi normal. maybe 1.2 x larger. on bad day nearly 1.6x larger. Dr. Kahn is a VERY intelligent albeit can be considered very slighy arrogant but, mistakes are few. Ive got to get both versions of ankle posted. time difference maybe 1.5 weeks. i USUALLY see the images before he does. ive got same program. ( very powerful img prog. can spin it almost 180 deg. here when i see him again, bringin the microsoft powerpoint tool. and hijack. his computer. albeit briefly. see his thoughts when pc mouse pointer wanders. lol. anyhoo, was able to bluetooth pair my retired ebay htc thunderbolt. and grab pics as needed. although program plus images are free. they charge for printouts of labs. ( i know ways around). sorry im rambling again. doc says as he walks in "mr thoWTF happened to ankle. dec 26th it was NOT like this. what have you been d?oing? i went first name on him too. ( edward) ive pretty much beenu w uber lazy and careful. like him, my first glipse of iti t was a lolWTF. I STARED AT IT ALONG SIDE him. i have a plausible hypothesis.. next post covers this. if this crap phone wouldnt autosize it down, images are LARGE.
Mighty clever of you to be able to grab those images! :thumb:
You have the ability to do impressive things in spite of very limited resources.
Appreciate the compliment my friend. i grabbed this shot after seeing it. tthe tech helped me by dimming the light. i grabbed this one in case i have to deal with dr obvious again. along with first dr. and jumbo nurse who said " you dont need narcotics" this last image will change his attitude. when i pick my items up from pawn, ive got one tablet ( 2 actually) the quad core will allow me to shut these folks up. tbh will have to apply for disability. although medicaid would have been worse. the zyvox at $100 per pill , medicaid would leave a couple grand as a copay. just the zyvox. ANYHOO, the last 48 hours blue cross coveredy everything. at 100%. IF i followed procedure. thisc ase i did. the 11th , ran up around 40k. ( more)
on 11th the bone scan picked up over twice the scored for severe osteoporosis. that std is 4.0 if i saw correctly could swear o saw 8.7 :( guarantee bone results will be in today. certain, radiologist will call first person .. the one who referred. ( my primary ) shes seen image from yesterday, she said why are you showing me this now? i said, you are my doctor. ive alot of respect for you, PLUS YOU Will be recieving a call with these results in am. radionogit will then call neuro, followed by ortho. each in turn calling me. ANYHOO, ( ANOTHER POST VERY SHORTLY)
aaron
ANYHOO, got this info at 945am the 11th. neuro followupbwasbat 1015. i mqade the 1/8 mi trip by 10am Neuro was waitinlg OUTSIDE for me. i had 3 img xray first. i said, i need a mask due to sta9h inssue. NOW, neuro said infection seems to be near remission BUT, you need at least a fusion surgery. i said if it can be delayed at all id like to do so. i then changed viewd and contrast. marrow was exposed. i said after seeing this im thinking delay is not an option., adding i sposed it possible, BUT with marrow Exposed as it was and the 1/4" offset on distal fib has now reversed itselfb180 deg. neuro wondering what the fog looking stuff around it was, i replied i THINK ITS initial bone healing. Dr reat ( jean-francois paul) had plans for using this.. neuro said yeah thats right this was his baby Eh? i replied judging by damage severity, immediate surgery is not an option anymore. the fog may also be syndesmotic rupture. stuff between tib and fib. ANYHOO, i said i see him wednesday. neurd said, Might, i finished, hear from himrfra earlier. i said youd not have had to worry about it, e xcept 1 you were on call, and 2. the spinal explant. i said i want to see if youd consider snipping the nerve from distal fib. to kill pain. i saif i know = dangerous and i agree. BUT when i cant get any pain relief whatsoever. idk. i said here i was looking fwd to no longer requiring a wheelchair. ( more
Aaron)
bMethinks time for powerchair. on a perm. level. just my hluse is not conducive for power chair use. Buddha had seen it. clutter aside, logistics also. EXCEPT for a kd smartchair. its 5lbs lighter than my rental. i will try to get ins to cover it. EXCEPT KD DOESNT DO INSURANCCE SALES. i said if a doctor stated that flatulence was necessary for health recovery bc would cover it. plus it folds in half. but coming up with $1495, not feasible. ANYHOO, ITS on my list of things to get, SOON. neuro said you MIGHT have 2 weeks before you lose ALL support from bone. i said it seems deterioration is accelerating at an exponential level. 2 weeks is possible. but any longr = not possible. neuro said how much time do you see before movement becoms dangerous. i said MAYBE 4 days tops. he said " i agree" so i said, to play it safe, MAYBE 2 days . also 1 church service. lengh of 3 hours. beyond this, next time i return MI7GHT Be 6 months. very specific restriction plus absolutely no weight bearing for an indefinate time.... ill work on getting stuff from pawnshop which hasjsentmentali reasons behind it. so i MUST do this. IF i dont return to hosp. upon leaving primary doc at 4pm, temp close to 101f. tonightj it spiked again. i jwas sweatinlg in 20f tem9s. anyhoo remnants of fibula on fire again. and swelling is builing. need help. i ws thinkilg negative thoughts. but i was neside hosp. i waited. i fell of f the non smoking wagon. sec guard starts going off about it. i said after the diagnosis i just gotq. im tending to not care. feel free to call police. REAL police. anyhoo ill be back mid day after talking with ortho and hosp.
Aaron
Heres a breakdown of the now NECESSARY surgery and a suggestion of what im going to suggest to the orthopaedic surgeon. it will make NO sense when suggested by itself but when other conditions and diseases and variables are combined, youll see why im considering doing this.
Im planning on asking for a major amputation. major meaning not just toes/digits, but the limb itself. up to roughly half way up the shin/tibia. this seems to be where above this line bone health seems better. below this line bone health seems to be non existant. then you add in the significant osteoporosis ( diag. this week) , AND the charcot foot and ankle. these conditions are irreversible. it also makes me think the fusion surgery pointless. the purpose of procedure is to stabilise the joint. prevent damage. forget further damage, the ankle pretty much destroyed itself 12 days. im risking likely osteomylitis ( infection in bone and marrow) by delaying surgery. medical community says this happening in opposite joint is unlikely unless fractures and injury have already occured. well lol that is case . this was aug 12 fracture. AND surgery a week later. (Dr reat was wondering why the bone displaced in a weeks time requiring the ORiF surgery. the Ti plate and screws. inho that plate screw thing is why that ankle is stable and not deteriorating it seems. the left ankle is gone. stability and strength and security. a prosthetic limb is really the only guarantee. the prosthetic limb is my suggestion. insurance will cover this. the powerchair they will not they WILL cover a powerchair ( they even proposed this) but transporting it isnt logistically feasible. its not possible to transport it in a compact car. which i have run me to where i need to go. the only chair i found is the KD smartchair. it is by weight only 5lbs heavier than my rental and by cost its cheaper than the power chair insurance will cover. ( also quite a bit lighter ) so if i move fwd with this ill figure out a way to purchase the chair. the procedure is not an option its a must. looking at xray , the marrow is exposed on multiple locations. further updates later this eve.
Aaron
Understandably you waited until it became obvious...
The health of your overall body is paramount.
Glad to see that you have the determination to keep on going.
Update before i meet the surgeons tomorrow.
I was thinking if i had not gotten up for a midnight snack and fainted id not have fractured the R ankle. But after the test results monday it would have only been a natter of time. kinda like had adam and eve not partaken of the tree in the garden of eden, someone would have at some point. Anyways moving on;
on the 11th, first i find out bones are extremely weak. im almost twice the level of osteoporosis, i report to the neuro . it gets xrayed 3 views. both Dr kahn as well as i see A Glaring difference in overall bone structure.i dont have to worry about osteomyelitis ( infection in my bones) ive a sinking feeling its already there. it means ill end up spending ALOT of time in hosp treating it. plus it is hell on my immune system which is already taxed fighting the staph/mrsa infection. then add in the charcot foot/ankle, this puts a new angle on things. Dr. reat wanted to perform an ankle fusion originally for strength and stability in this ankle joint. and to prevent further damage. with the charcot foot/diagnosis added, theres really no need to have this done. it will fail in short order if it even suceeds at all. the charcot would shorten the length of time a fusion would remain intact. combined with a significantly weakened bone system. its pointless to fuse ankle. and although it sounds odd, im going to suggest amputation half way up the shin. where the bone is still healthy. and cap/seal the bones, fit with a prosthesis and begin life anew. i am optimistic in this outcome. heres another potential concern. charcot foot usually wont be seen in BOTH feet at same time unless there was either a fracture Or surgery recently in that limb. the right ankle i had both a fracture AND surgery on it. tbh i think the titanium plate and screws are the only reason that ankle doesnt look like the other one. am going to ask that its xrayed tomorrow. ive got pain in it and on the medial side anyways, so might as well look into it. im looking at least 6 mos of a cast on left ankle MINIMUM. developed a chest cold as well as a few hours of vomiting overnight yesterday. why i fear/feel health is tanking. i almost wish i hadnt found out about this. nothing i can do to repair the damage, or rebuild back up. which is why i feel the amputation makes more sense. neuro is asking how much time ive got left o antibiotic regimen. i guess to plan anything surgical. ill find out today at appointments. provided ive got long term care coveragebi may look into nursing home. anyhoo will update yall after appointments today.
Aaron
update
just left ortho. sayys " ankle will never be the same. youre well on your way to an amputation. " whatve you been doing? i said walking just enough to get to bathroom. he said that stops today, absolutely NO weightbearing whatsoever.
well after the errand today i return home and park my butt.
but i DO have to wak to bathroom... no other way. my aim aint THAT good
Aaron
Quote from: yamahonkawazuki on January 13, 2016, 11:05:53 AM
well after the errand today i return home and park my butt.
but i DO have to walk to bathroom... no other way. my aim aint THAT good
Aaron
A young nurse. She can "handle" things for you in the bathroom!
Just an idea ;-)
Dr reat was kinda in a pissy mood today. he gives the "park it" speech. i said okaaay, um how do i pee?, thats when he says figure it out. as i said youre WELL on way to amputation. ankle will never heal correctly. neuro was a bit more informative. anyyhoo ill start making calls in am to wound care, then to whoever else, have to plan this out. think the wound has to go first before any surgeries happen. but i guess fusion at this point is possible. beyond that idk. he may figure that out. ( the bone testing as well as the charcot diagnosis)
Aaron
I am under the impression that both your left leg, and your right leg have problems.
Can you give me an explanation of your left leg issues... and then an explanation of your right leg issues?
Sort it out for me please.
Thanks.
-Ej-
Best to worst.
R ankle just a broken fibula ( distal fib.) repaired at end with a titanium plate and 7 screws if i counted correctly. nothing further as far as i know.
Now the left one lol:
a Tib/fib ankle fracture
broken multiple times. latest was the bottom of the tibia, the main bone in lower leg. ( the shin) it appears smashed into the top of the ankle bone. on xray. the fibula which had appeared as tho it was trying to set itself, had re broken and ankle along with foot is now bent to outside. once i figure out how to get xray copied onto pb acct youll see.what i mean. with this walking to the bathroom no longer allowed. lol i asked him okaaaaay?, how do you suggest i take care of this? (no answer given). walker not recommended it would force me to hop on r ankle.
So after errand today, im off my feet. EXCEPT for bathroom use. ive no alternative to this.
yet lol.
Aaron
As of wed. my ortho, being in a pissy mood, course he never was a friendly person. just stayed on topic. his job is to repair the damage if at all possible. his words, "youre well on your way to lose this ankle. at this point it will NEVER be as it was." the fusion surgery will be the last ditch effort to salvage it. the Mrsa wound has to be gone before this happens. neuro wants this done asap so ankle can be salvaged. he was saying 2 weeks . i handled personal affairs today so i can be lazy ffor forseeable future. although sleeping 15 hrs a day gets old. tending to kill appetite, as does the antibiotic im on. i pill counted myself just now on those. after both pri doc and neuro call letting me know my bloodwork still shows im fighting this with no evidence of weakening. anyhoo last week i was at a +3 on count. figuring amt since fill on 29thpm. at 2 a day i was at +3. should be at 0. 0 means they were taken when they should have. somehow missed 3. today im at a +4 . ill continue at 2 per day and count daily to prevent this from growing. and use till finish.
Aaron (more)
As of 33 minutes ago, i am now 41yo. this will be a semi relevant update. In 2001 i was living inphoenix attending MMI, my korean roommate dahn said "DUUUUDE you wont make 50" guy was it turned out crazy. i hadnt broke 30 yet. had dahns aim been off a tad, id not have made it home. i purchased a glock 21 from a phoenix pawnshop for 125. then incurred some unforseen school fees. so i sold the glock to dahn. was of age and appeared to not be loopy lol. WRONG lol. i hear a gunshot CLOSE by. i look up theres a hole in my bedroom wall (going thru corner) 2ft above my head. bullet goes thru exterior apt wall into neighboring bldg. it hit nobody thank GOD. but i made contact with neighbors to make sure. anyhoo police were called in morning. i digress i go back in and find Dahn with the glock in his hands trembling and it pointed in my dir. i disarmed him, then asked him calmly what happened, no answer. so i said DUDE WTF . he said he "heard ppl in the airvents moving about and reacted accordingly" after that i called police. they wanted to take him in for psych. i said since nobody was hurt, can i take him to his parents in suburban LA, I WAS allowed to do this. anyhoooooooo semi relevant because 1 had i not been there at mmi, id not have learned fuel systems on gs500E models. and perhaps id not have ended up a major postwhore here lol. plus had Dahn shot a tad lower, a .45 tends to kill things. to shorten all of this ill say thank GOD for bad aim and no one getting hit. then i lived a rather carefree life. normally not an issue, but as a diabetic, tends to cause problems. Im exhibit A on that one. but after meeting addy and others impressing upon me the importance of eating right, i can always improve Eh?, anyhoo FFWD to now, been thru many GS' but since my ankles are now compromised, and them not becoming as strong as they were before all of this i cant work on bikes anymore. i cant svc a moto, and have someone else test it. this WONT happen. if somethinghappens, bikes owner sues last person who touched it. Cant take a svc writer job because i cant walk bike to shop. No problem, engine work i can still do. and not void warranties ( HD,Buell , and Suz) but anyhoo can always put the skills to work somehow elsewhere. or i persure watchmakig or something. ( once i get the credentials for rolex and breitling, something i taught myself to repair) can return to being productive. sorry for all of this, but after the incidences beginning in august, and then with the testing and results on monday the 11th, i honestly was considering thinking bad thoughts. considering thinking meaning i was thinking about thinking about said bad thoughts. which i was literally feet from hosp front door. so had thoughts persisted id take care of it. anyways, i overlooked a promise i had made GOD. i realised i was being selfish. temp outsi7de was maybe 20f ppl asked if i was ok, i replied " yeah im good, just digesting the multiple diagnoses ive just recieved" tbh i wasnt cold anyways. wearing insulated wranglers. LOVE those things. really no way to improve bone health as it is, But i can make the best of it. if i keep trying to eat right and such, i can slowly build up some of the bone issues. the staph in back at surgical site, and Mrsa in leg, i was in wrong place at wrong time. just about everyone has staph on body in some way. most dont know it because they dont get ill.
i guess my immune system was taxed as it was, first surgery i ever had was day before Pat died. :(, been in wound care in some way shape or form for a long while. so ive given staph a decent chance of taking root by taxing myy immune system. i never got sick, hardly ever. BUT im thinking i overlooked minor things. in a normally healthy body arent an issue. but in my case well, lol we see Eh?.
will finish this monster update in next post. i do apologise for length of these posts. maybe once its all finished, ill copy it, and shorten it. lol. meh ill finish it in this post. :)
With the Mrsa/staph infection, it can affect the bone healing by itself. bone health not figured in. before the now REQUIRED fusion procedure can happen, the Mrsa must be cleared out. neuro said 2 weeks. may be able to postpone it a bit. but if bone det. much more i lose ankle. BUT if so ill also lose the mrsa infection. it appears to be confined to the medial malleolus. (the bottom end of tibia and now ankle bone too) if i stay off of it, and figure out how to get to bathroom sans foot use, ill be able to slow down FX progression enough to kill infection and have fusion procedure done. ONCE this is done, i will be at a MINIMUM 6mos in a cast. which freaked out my ortho. his words " your body and casts dont play nice together" however casts in this case are necessary. i told neuro i said if i MUST have this done and be casted, will have to ask for weekly changes. unless something says check sooner, like pain from a wound. this is what happened to an extent with cast on R ankle. pressure ulcer half under cast, in sept. They said we can get you in monday, however if you feel the need to go in sooner, go to the ER. THAT TURNED out to be the right choice. er ppl said had i delayed to monday, possibly could hve been lethal. it got into blood already. but non staph afaik. ANYHOO lol. current situation blows. not able to work, even t hough i want to. all of this may keep me out of workforce perm. Either way, ill be out of commission conservatively for a year. they figure. SOOOOO, im not entirely useless, can always sell on ebay while recovering, or persuing disability. after which can always volunteer my time in some way. Anyways Enough for a monster update which i promised id not post any more of. after this ill do best to keep them shorter. i guess just laying out plan on day 1 of year 41 of my life :). i do promise once i get net turned back on i will correct any grammatical and spelling errors.
Aaron
I guess after the fractures, the risk of infection in the bones is a paramount concern.
(osteomyelitis) many of its symptoms ive already got. i.e. the rapid heart rate, >100bpm, bone pain as well as occasional fever. along with lower BP AT times. but then again body is engaged in multiple fights at same time. many of which will cause these issues. the med. my prim. doc gives me to slow rate down also lowers BP. IF low to begin with taking med can be risky. or i figure out a way to raise bp without raising HR. baah ill let the collection of docs figure that out. seriously i feel this collection of ppl would know when ill fart before i would. If i can with their help, knock out 1 issue, it would help out in knocking out remaining issues 1 by one. :), then i work on climbing out of this hole im in. i just turned 41, ive plans to go far beyond that. :)
Will update again later today. doc-wise, i meet with minimed ppl to set up insulin pump. (Yay, been looking forward to this, still have to reach the SCS ppl there to figure out what to do with leftover parts post explant.) but the pump will help immensely. then wed. is wound care. get that knocked out i can proceed sooner with required surgeries. and THEN can focus on rebuilding/reconstructing myself :)
Anyhyoo no more monster updates. ive covered everything. if any downturns ill keep it short if possible. but monster posts will be rare :). anyhoo will update daily. hadnt checked weight today. will do later.
Aaron
Heres a semi hypothetical question and request for ideas/advice:
Since i co-own and Co-habitate the home mom left us after her passing, And as of the 11th it still shows infection being active, ive adopted a strict hands off policy. even tho doc says risks to others is minimal. ( i practice good hygiene) my immune sys. took a severe beating. rebuilding will take a while. theres getting staph off of skin using either hibiclens or a bleach bath.. ( sounds harsh lol but it isnt.) anyhoo, father does NOT want me to do my own laundry. since it involves 2 round trips on a flight of stairs. i however respectfully insisted neither he nor anyone else handle my laundry. i CAN crab crawl up and down stairs safely. ive got 1 a hind end, 1 semi solid ankle err fairly solid. the one with plate repair. and 2 hands. since weight being for now is absolutely forbidden on the bad ankle, does this seem logical? seems to be only choice. i had asked him to place my walker in basement and leave it there. i can use it to support self while standing. and keeping weight off L ankle. i dont want to risk his health . the stairs crab crawl seems best option. ive a drawstringlaundry bag so the clothing can be placed inside it and thrown downstairs. once washed by me, he can bring it up safely. Thoughts or suggestions?
Aaron
Well probably going to postpone insulin pump usage. ins wont cover the humalog (eli lilly mfg) or novolog (novo-nordisk) they consider it " experimental" still experimental after nearly 2 decades? it basically is an EXTREMELY short acting insulin. nothing more. peaking in 15 mins. but OTC price at 400? not happening. only way id beable to do it is raiding docs office for samples. realistically would have to build a 3mo stockpile to make it happen. anyhoo will have pharm. call doc monday to find a resolution. meantime ill remain on current insulins. 400 is rediculous. (course the antibiotics are obscenely high as well. at 100 per dose x2 a day x 28 days. but no choice there. but the insulin otoh it can wait.
Aaron
yama my friend, you asked, and I wont tell you anything I don't believe, or thought would not be in your best interests:
Quote from: yamahonkawazuki on January 16, 2016, 06:25:40 AM
Heres a semi hypothetical question and request for ideas/advice:
...snip... my immune sys. took a severe beating. rebuilding will take a while. ...snip...
It always takes loooonger than we are prepared to acknowledge.
...snip... father does NOT want me to do my own laundry. since it involves 2 round trips on a flight of stairs. ...snip...
Sounds like he knows what he is talking about.
...snip... i CAN crab crawl up and down stairs safely. ...snip...
Admit to yourself that you can't do that at this time.
...snip... does this seem logical? ...snip...
No, it doesn't.
Thoughts or suggestions?
Take care of yourself and be extra - extra careful till everything stabilizes, and a couple months after too.
Aaron
What was the title of this thread again?
Oh yeah:
DOCTORS ADVISE. HEED IT.
Very true. lol. if i however can do it myself safely id rather not risk his health. oddest feeling today. chest felt ice cold, yet no issue breathing and no fever. unless the sh*t hits the fan i wont bother docs. idk.guess its best i take it easy. dont forsee a problem. just an oddity at this point.
Aaron
Need to eat, bathe, poop, pee, and have access to clean laundry, food, etc...
Being completely immobile would require live-in nurse & maid services.
Incredibly expensive. <sigh> :icon_sad:
I understand the difficulty here.
Quote from: Electrojake on January 16, 2016, 06:02:13 PM
Need to eat, bathe, poop, pee, and have access to clean laundry, food, etc...
Being completely immobile would require live-in nurse & maid services.
Incredibly expensive. <sigh> :icon_sad:
I understand the difficulty here.
Yama:
If I recall correctly you broke a bone basically just turning wrong while moving very slowly.
BOTH ankles are broke.
Considering that, lets get to the laundry part.
1:
Quotefather does NOT want me to do my own laundry. since it involves 2 round trips on a flight of stairs.
2:
Quotesince weight being for now is absolutely forbidden on the bad ankle,
3:
Quotei CAN crab crawl up and down stairs safely.
4:
Quote. i had asked him to place my walker in basement and leave it there. i can use it to support self while standing. and keeping weight off L ankle.
1 & 2 seem to make all of the argument needed to negate doing 3 & 4 because I do NOT believe 3 & 4 are possible without excessively high likelihood of further serious damage to lower legs.
The rest of the things Jake mentioned are in a whole different risk class than going up and down stairs multiple times just to wash clothes that
Quoteonce washed by me, he can bring it up safely.
My primary concern in this is the high risks in going up and down flights of stairs with impaired balance and stability, when someone already sharing the dwelling and environment (which means exposure to any viruses or bacteria extant there) is apparently ready willing and able to take on that relatively minor activity for you.
I didn't mean to suggest complete immobility, just try and stay stable and on level ground (or floors as needed. ;) ) as much as possible.
R ankle seems to be fine. L one has re fractured multiple times. soon as i can post it, ill post the one from christmas hosp. visit and the one on jan 11. bone issues also dignosed on the 11th. the staph in back and mrsa on L ankle FX THEMSELVES im overdoing it when i say hands off. however risk is there if a person touches either wound sans washing afterwards. fathers nearly 70. i just dont want to be responsible for getting him ill if it can be avoided. Ill figure an alternative for laundry. to negate risk for him. my immune system took a thrashing around christmas. will be a job to repair/rebuild, but hey ive got time. lol :)
Aaron
Quote from: Toledo Jim on January 16, 2016, 08:04:02 PM
My primary concern in this is the high risks in going up and down flights of stairs with impaired balance and stability...
Agreed.Yama's fragility does indeed create a challenge.
The fact that he's been able to maintain his psyche thus far is rather impressive too.
Personally, I would have cracked long ago.And Yama... hope you dont mind us "discussing your case". :thumb:
It keeps the thread moving.
Quote from: yamahonkawazuki on January 16, 2016, 08:36:34 PM
...snip... Ill figure an alternative for laundry. ...snip...
:thumb:
Quote from: Electrojake on January 16, 2016, 08:56:30 PM
...snip...
And Yama... hope you dont mind us "discussing your case". :thumb:
It keeps the thread moving.
What Jake said goes for me too. :cheers:
Am glad all in all it seems my hands and arms seem to work. got the use of my left hand and forearm back shortly after christmas. makes using the WC easier. didnt have to persue a nerve conduction study. those are PAINFUL lol.
Aaron
In hindsight, with the Hosp infection, i blame myself. i fault no one.. ppl here along with friends and family suggested i postpone the spinal cord stim. implant surgery until AFTER the fractures heal. had i listened, most of this mess id not be in right now. i pushed forward tho cause i was tired of the neuropathic pain in legs. i read about the device, i studied EVERYTHING, got every pdf there was on it. WHAT i didnt think about though, was that freq. surgeries tax ones immune system. as do injuries. had 1 surgery in sept. at that point. plus a fracture in L ankle. common sense plus friends here as well as family told me to wait.
my taxed already immune system then gets hit twice nearly at same time. Mrsa in ankle, and normal staph inf. at surgical site in back. it nearly killed me. ankle inf. seems to be healing. back however, keeps filling a pocked with fluid. albeit SLLLLLOOOOOOOOWLY. i see neuro in a week, hell drain it.
2 goals for the 41st year of my life. well 3 or 4.
1 survive this. ( i know i will, just wished body recovered quicker.
2 make it to year 42
3 to use this downtime to work on not being impatient.
(cause it seems me being an iMpatient person has caused me to be an iNpatient person.)
4 succesfully heal from this and everything, and survive to 50 and beyond.
Please just remind me to SLOW down . i dont see me having that Spinal cord device reimplanted. Minimed rep wont return my calls. if she doesnt this week, ill write their corp ppl. just want to ask them what do i do with the remote and the charger for the implant. no use for it. the case that stuff came in is NICE however. i may keep it for camera case. ANYHOO im sorry im rambling yet again.
I just ask if you see me being impatient, tell me to SLOW down.
Maybe ill use this downtime to work on my drawing or writing or something idk.
Aaron.
lol i may pull a snip excercise on this thread one day. as a writing excercise. editing out everything but the updates themselves. id say thread would reduce itself in size 75%.
ive plans to post this as a blog outside gstwin. will do that once i get home net set up. got ALOT of time to work on healing and recovery with ultimate goal of returning to work. provided i SLOW down lol.
Three things come to mind. . .
1.) You're an early riser.
2.) Bullet item number three in your post is my favorite; "3 to use this downtime to work on not being impatient".
3.) It snowed last night. It looks cold and miserable outside.
17f here right now. cant sleep. lol :(
friggin cold chills, an unpleasant side effect from the medication.
or the staph. thinkin the meds though. another common one is insomnia. cant wait to be finished with it lol.
Aaron
OOPs ,
the antibiotic has some dietary restrictions. hell not some, but ALOT.
basically have to adhere to a tyramine free diet. ( a preservative) which is in MOST things. even hot dogs.
beef is ok tho, or dangerously high bp could be result. tbh
heres the ironic thing. yogurt is frowned upon yet allowed
i guess i found the cause of the random headaches. lol. COURSE i did need to eat better anyways. but DAMN no cheeses :( no aged cheeses. that blows.
Aaron
Finally uploaded. Film from the 11th of jan. vastly different from a week previous (http://i65.tinypic.com/34r8uw8.jpg)
Ive spent a lifetime working in electrical engineering, which means I know absolutely NOTHING about Osteopathy, but if I was to guess, I'd say that film looks like the profile view of a camel toe.
Did I guess correctly? :D
First of all somewhat belated congratulations for making 41. Given everything that is going on with your health, that is a major achievement. The second point is that you have to give your body a chance to heal itself and that means TIME. Which means patience. Which means that when the vet, er doctor, tells you not to put weight on the leg then you don't, for whatever reason. It's a pain, but it can be done. I once dislocated my ankle and broke the bottom inch off the tibia, which meant 3 months of nwb, but I survived. It wasn't easy, but it is doable.
Be aware that there are a bunch of people here who obviously care, and will give as much support as they can. The internet is a wonderful medium for entertainment, education and can be time well wasted. You will get back to normal, whatever normal is, but you progress may seem slow and erratic.
Good luck.
That ankle radiograph was shot 11 days after the previous. maybe 12 days. when i got the Mrsa in the medial malleolus (outside of the tib) at its widest point. if you zoom in at full res. the solid white line on the outside of all bones its not there. line is very thin as it is. when i left the hosp on the 29th of dec, to the 11th difference is quite apparent. plus it made my neurosurgeon curse. " Aaron your ankle is flucked up it went to hell in 12 days. plus today is or will be the 3rd relapse of the charcot foot. i could push into the skin the pit would remain for 5 minutes. foot nearly twice size of other one it seems. my ortho on the other hand seems to not really care anymore. he says " youre well on your way to losing your ankle. " Both my neurosurgeon and my ortho are world renowned. i think hes getting pissy about all of this. this was round 2 of the foot swelling. like im wasting his time. he asks are you looking for more pain medicine? he at same time pushes into the mid portion of the top of my foot. i had been working on my german for 4 weeks. as he did that, the pain OMG, i screamed, and said in german " No dr obvious, im here to be a hemorrhoid. a genuine pain on your backside. what is the problem? he wraps it and tells me to come back in a month . he left a prescription for fentanyl patches . i took the wheelchair out the lobby. nurse flagged me down saying " aaron, your prescription, dont you want it?" i turned around i politely asked her to follow me. pain level was at a solid 15 on a 10 scale. i asked her you heard the commotion? not only did it feel like he was trying to kill me in there, he writes me a prescription which WILL kill me . when crossed with the zyvox/linezolid. besides if 3 dilaudid injections in a row barely touched it, this sure as hell wont. 1 injection would normally make me so loopy id be flirting with the trashcan. she said wait right here, ill get him to change it. i said thank you but no. got my appointment cardand left. (more)
I swear hes pissy because his colleague ended up taking HIS job on left ankle. Dr kahn the neuro, explanted the spinal device, and also discovered the infection on L ankle. i see wound care tomorrow. IF i can get there, SNOW, theyll xray and culture it. contemplating taking all of this to a different practice. idk. i see wound care tom. i MUST have it cleared before fusion can happen. but kahn also says once it proceeds past a certain percentage, baah. May have dr kahn finish it. or stabilise it long enough for me to get a referral to another . dr reat was totally not himself. BUT ive got good news.
Got the insulin pump going. deductible was $440 i got 1 bottle from the samples box. a full 1000u. it gets better. well i almost got put in hosp. testing the meter, i asked her, i said since i couldnt take my insulin this am, my glucose feels VERY high. tested at 600+, i said hmm if i bump the daily up to 80 i may be able to get cost down. said im fighting infections and fractures and such. the extra could be useful. this brought the copay down from 440 to 274. my pharm. said would they write for 3 mos? i said sure. this coupled with an obscure discount card of some sort, got me 9 bottles for $47. the strips for the meter, which coms with pump. average $1 each in bottles of 50. ( cvs walgreens etc) i found 300 on amazon for 49.50 nurse was floored by that. i dont have a drug copay. never have. yet yesterday a few hundred. dad GOD bless him covered it. bcbs will send reimbursement checks in a couple weeks. glad there was no copay on the 5600 antibiotics. they cover this w/o as much as shrugging shoulders. other than dr scheissekopf moment, this week is shaping out pretty good. ill get the strips asap. got my generics on hand so all is perfect. tad nervous about woundcare and perhaps HBO again, but theyre good. now with the ankle swollen out now, i cant wear the aircast anymore. it rubs on both the FX and the wound. so ill use ace bandages and tape until tomorrow. and get a larger aircast. cant wait. soon as fusion takes, recuperation maybe a year. maybe far longer. found a couple potential jobs. with open starting dates. but dayamn i can almost see the light at end of tunnel. if ankle doesnt blow, im good. rd 3 charcot foot. wound care can get this stabilised. right now. im strictly lazy. :) but NOT bored. starting my artwork again, and using dragon, some writing
Aaron
Sounds like a corner has (very cautiously) been turned and things are beginning to improve, if only microscopically. So pleased to hear that.
BTW, what the hell does "zwei gebrochene Knöchel einer doppelt" mean? I got as far as two, and then failed the rest!
Take care.
If i recall correctly " i broke both ankles. one of them twice" Been teaching myself german. when Dr. reat as good of a surgeon as he is, when he pushed into the roof of my foot i called him a scheisskopf amongst other things. a sh*thead" i Did recall one of the nurses in the room quickly cover a laugh/smile. she asked as she was leaving the room, btw did you call him a sh*thead? i said amongst other things. best book i ever grabbed for 10 cents at goodwill. " barroom german, things you were NEVER TAUGHT in language class. plans in future to travel there. and photograph a few streetsigns. a few having Both paternal family surnames. Bahr-thoma strasse. sorry i digress, things just went to sh*t in ankle, trying to get my mind off of it. feels as though the syndesmosis joint/tendon just ruptured. the syndesmosis is that space between the tib and fib. instant severe pain and heat. the pain dissipated somewhat, the bottom side of the heelbone as well asthat bone where Dr. scheissekopf pressed in. that bone i know had issues. 2nd time the charcot foot did this, was when that happened, and the stability/support. almost gone now. i stood up to figure the heat issue. VERY well supported. it wanted to turn and buckle.
:"( ,
Then i get a voicemail. ETHRA ( transit vans) they cancelled thursday runs. due to snow. roughly 6", Methodist medical ctr. wound care calls saying my 10am appointment will have to be delayed. theyre not coming in until maybe noon. unless i want the 3:15 slot. i said no ill take the noon one. this ankle ( as it was earlier) needs to be examined. with this development , i feel i may end up in the hospital . im trying to make it to wound-care centre tomorrow. also with the swelling at ankle joint. the shattered bones on lateral err L side. and the wound on the medial malleolus. ( the bottom of the tib), if i put the aircast on, both sides are touched slightly. that is a burning pain close to fx pain. and no wayy to ease it. either i find one of my TCC casts i had when at UT having wound work done. i should just go to ER. But, ill be there in triage for hours. putting a to go bag together. i was able to gain some room in the the moonboot. to accomodate for the swelling. i do NOT want to go to hosp in OR. WHERE i got the staph. but i dont think it matters at this point.
Aaron
8 hours and i find out whats up. i changed bandages a bit ago this was kinda cool in a weird sorta way. i looked at the back of ankle you can see the differences in skin color. same with where the ( metatarsal fracture pointing upwards kind yet it was perfectly flat. taking pics of of it may post if it is safe for work. everytime i get what appears to be charcot foot i break a bone. after
Didnt make wound doc today. couldnt get car up the road. dad tried, then i did. got a bit of a flu type feeling yesterday. felt like hell. anyhoo i see neuro monday THEN i see wound ppl tuesday
Aaron
Wasnt able to make wound care appt thursday. snow made roads non usable. father couldnt make hill leading from home. was concerned he couldnt get back to house. even tho i had a med suspension on dl, i took wheel. said if i can take hill, you can proceed on to doc. or return to house. took 2 tries. i made hill. but then saw s curves were to put it mildly, hazardous. i said" hmmm this may hurt me but im turning around. went back home. been quite ill since. but since i see neuro surgeon monday and wound ppl tues. ill pack a go bag again. have a feeling ill be hosp. had to suspend antibiotics because whateveri swallowed would come back up in short order. i resumed those this morning.
i promise ill be fine. but the hosp. may be best bet until illness passes. or docs can prescribe something to ease this. NOW if ankle deteriorates much further, ill lose it. if i can clear the infection, i can save ankle. i HAVE to eradicate the infection before fusion can happen.
a few weeks ago fusion was optional. it is now necessary. but neuro will help me regain my Dl. and will give me the auth. for hand controls. all will work out. i promise :)
felt this update was necessary. will update further this weekend i promise.
Aaron
Aack. dealin with flu like symptoms, (cant keep hardly anything down) or stomach goes into this mode very easily, high blood glucose levels, yet minimal food intake (due to aforementioned) plus a gnarly cough. something aint right, i know side effects from the anti probably have something to do with it. ( it plays nice with no one). got to power through to monday at least. had to reschedule wound care to tuesday due to snow. but the neuro monday should be able to look into things in detail. snow coming in tonight means im potentially stuck here til mon anyways.
may end up in hosp monday idk. missed a couple of antibiotic doses. ( no sense in taking them if i couldnt keep anything down.) Baah cant wait til ALL of this is done lol. everything else cant proceed until then. ahh well, patience always seems to work out for the best anyways.
Aaron.
but 3 days of nothing but yogurt = BORING lol.
Yikes! Your battling multiple issues now.
And to think I was upset because I got a case of the "screaming sh!ts" from a bad meatball sandwich.
Snowing here too. I'm in no mood for this crap.
Just saying. :-(
Ehh, ill make it through to monday. if roads got closed off, it being only sat. shouldnt be an issue. had an argument with the ex friend. via text message. deleted him off of fb. prolly will change number monday. 6 days until this cursed/very expensive/and very strong antibiotic is finished. 2 weeks after that, diet restrictions lift. i wont go back on it if theres an alternative.
Aaron
Speaking of side effects , on my AV system,
the yamaha rx v665, the jbl northridge speakers, and the 12" powered polk subwoofer, was set up perfectly before i went into ccu on christmas eve. im 6 days from finishing my antibiotic regimen. ive noticed stereo sounds extremely bassy. i turned down the sub, the enhancements, even turned the dolby off. yet i pick up low tones very EASILY. ILL RUN the YPAO setup again shortly. but nobody had touched the system in my absence. (no one can figure it out,) love my audio but this bassy stuff ill have to stop. hope its reversible. when/if i have to run antibiotics again, damaged hearing id prefer over death any day.
Aaron
Forced lazyness and a creative mind can lead someone to come up with some weird ideas. and actually this one is quite doable......
I take my kneewalker ( THANK YOU EJ ! )
I THEN cannibalise the currie ezip400 the ex friend abandoned. come up with a drive setup ( friction or chain) that way it will freewheel easily. the battery pack, motor and controller weigh MAYBE 8 lbs. ive got a contact switch which must be depressed to power it. and grip for speed. i have almost everything on hand.
neuro prolly wont approve.
the ortho whom i called dr scheissekopf ( dr sh*thead)
yeah i cursed a french doc in german. a funny story about both. ( saved for future update.)
but the knee walker im going to try and put softer tires on it first.
Aaron
The electric knee scooter will be limited to nothing more than a fast walk. (bout what i do with a single chevroleg).
Went to walmart to get a horn for it. couldnt find a battry operated one so grabbed a 7 dollar obnoxiously LOUD squeeze horn. after a few near collisions. but inside use wont happen. cause ppl 2 aisles over jumped when i tested it. also grabbed a smartphone holder so i can shoot video. (using my htc thunderbolt) i deactivated it and went back to this pos. although for 99c this thing has held up remarkeably well. Now Tomorrow:
Depending upon the progression of ankle damage, i will either Video my trip to the hosp. (bldgs connected byy LONG hallway) if im admitted. or ill video trip there to pick up my xray copies. going to start Vlogging this. heck needed to do something for youtube. Now, this may sound weird, but ill have 2 choices about my ankle. fusion or a below knee amputation. either will happen soon. (within a couple weeks.) tbh i feel as though an amp. makes more sense. it eliminates the infection by default, plus recovery is shorter and with a prosthetic limb ill be on my feet alot sooner. and able to return to work possibly. OR with fusion it will be deformed and somewhat weaker. plus rehab a year minimum. i know it sounds funny err weird. nobody in their right mind WANTS to lose a limb. im in my right mind (least i think so lol) but im looking at the end result. healing, and attempting to return to being productive. ill see what he says tomorrow. hes going to help me regain my DL, says hell write the paperwork for hand controls. (fusion). wth i can drive an automatic with 1 foot. the R one
everyone does this way. my days of driving a manual are done. anyhoo will see what he says. will ask him about this IF i need to. L ankle if fused will be locked at 90 deg. but can move foot . if it will LAST and support my weight, ill gladly go with that. if it wont support my weight, why keep it?. tbh i dont care if its deformed, as long as it holds me. the charcot foot/ankle flareup, ive broken 1 bone in foot already. Ortho (the one i called Dr. Scheisskopf) pressed hard on it. either it was already broken or that helped it. id seen it after the swelling went down. ( ill take a pic. its kinda cool. it will re fuse.) anyhoo if they admit me, or not, will use hosp. wifi to upload that vid. if it turns out lol. (ill be safe trust me. ive broken enough bones to break the quota.) will update tomorrow.
Aaron
Baah, he handed me off to Dr. Scheissekopf ( baah thats his un official official name now.) but since he IS my ortho, he shall wield the scalpel. i see him i THINK 2.5 weeks. will see where i stand unless it goes to hell again. i see would care tmrw, ortho will figure out how to repair this mess. give me enough time ill figure out how to hack the directory, and change his name to scheisskopf. i SWEAR lol. anyhoo i uploaded the test run on the knee scooter to youtube. geez this camera doesnt like the vibes.
Aaron
Same route but both floors next.
LOLWTH, this explains it. got my bone scan results back. im at high risk for breaking everything but my skull. especially my ankles. and ortho wants to fuse my ankle. idk if he got those results , but in 2.5 weeks ill bring them with. and ask "umm for something with a rather sig. comp. rate, coupled with these results, will this work? , its either that or losing foot/ankle, i guess i take it EXTREMELY easy . i keep weight bearing to an absolute minimum.
Aaron
Good decision. Keep your spirits up!
Take care.
Nice video!
What a dang maze of corridors, tunnels, ramps, and doors. <wow>
Average speed looks to be faster than walking!
And... So people understand the video, here is a pic of a similar device in use to protect an injured foot...
(http://s25.postimg.org/fosb4otr3/14_jpg_w_452_h_521_a_c_zc_2.jpg)
Ive got wound care tomorrow, followed by my cardiologist. may spend rest of day trying to find a new ortho. or a surgeon willing to perform a voluntary amp. not willing to wait a potential month for a procedure, statistically prone to failure. ffs im at high/ almost extremely high risk for fracture of every bone in body except skull. Dr. Reat-scheissekopf ( i will hack that directory in lobby. i know how to program anything samsung. Reg. the fib ( ill post it tomorrow after leaving WC. ) he says verbatim, " nothing i can do there, youll have to deal with the injury arthritis. mother of all pain, until recently. my ankle is the diameter of a softball wont fit in an aircast anymore. "today i hear him, " why isnt he wearing his aircast" i said " sir, if i HAVE to wear that thing," ill end up doing something...... imagine 8 hours of double, no quadruple now fracture pain. no sleep, etc. and you put a damned ace bandage on on it which makes it worse and say " see you in a month." and to think i had nothing but respect for you., ( both he and his colleague dr kahn, havethe bedside manners of adofl hitler, but i can deal with kahns. dec 24, he drains the fluid pocket in my back, with a large needle. but doesnt warn me. i yell and tense up. muscles in back shoot needle out of ccu room into hall. freaks him out. i said warn me next time Eh? lol. ANYHOO, IM GOING to check into finding a new ortho. ( will keep appointment, for now)
Aaron
Hmmmmm, Since the left ankle has yet to be opened (cept for the wound,) finding another ortho May be easier than i thought. most docs wont like to touch anothers work. ( like most mechs wont work after another) Cool now ive found a legitimate use for hosp. Wifi. 2 places i have to go to today, 1st is behind hosp. 2nd is in front of it. SAFER to go THROUGH hosp. than downhill using streets. ( especially with my track record lmao)
Aaron
I made all appts today. IN THE RAIN. :Technical: got out of wc figured i had enough time.. NOPE, 10:15, i called cardiologist, told them id be there ASAP. i took the hill thru hosp lot, got to crest. thought about route. i sat on walkers pad. stuck feet outward. went down hill.speed of a slow jog. after that, a friend took me over to orthos. i offloaded walker, he went back to pick up his mother. i realised, my phone, tablet,and medical stuff was in his vehicle. well, i HAD to get it. so i hauled backto cardio. got there 30 secs after he did. ( in the rain) got my things and returned to orthos. then wth, i decided to try 2 levels of parking garage. lvl 1 to LL, the renta cop yelled said hey you cant be doing that, i said feel free to call PD, :)( idiot i swear. lol) later i hit the clown horn in the elevator. ( the renta cops were like wtf?) all in all had fun. Cantwear the aircast, ortho will figure out something.
Aaron
Got a request. if someone can find a couple things for me. a parts schematic of the knee walker ( roscoe ros ksb )
And the diameter of both the front and rear axles. i cant seem to find them. im trying to find either fully pneumatic or semi pneumatic tires/wheels for it.
This phone seems to time out when i locate them.
Many thanks :)
Aaron
Keeping
thread
bumped
:technical:
IM still kickin lol. looking for softer tires for the knee scooter. i go back to ortho on the 10th. yeah same doc i called a "scheissekopf" ( a sh*thead) cursed a french doc in german. also going to find a quieter horn for it. or a simple back up beeper. this thing will be my source of transportation for a while. if i can find small pneumatic tires, it can go off road in a limited way. allowing me to get out easier.
Aaron
6 items headed your way via Amazon.
-
May take a few days for all to arrive (Feb 2nd to Feb 9th.)
PM me when your new collection of Chinese made gadgets arrive.
NOTE:
If you dont have a small bicycle air pump, your gonna' need one soon.
If you cant acquire one from your own junk pile, let me know and I'll send you one.
Yes sir! Direct from a Chinese sweat shop. <wink-wink>
-Ej-
Lol this works for outside use...
deltacycle.com/airzound/airzound-horn
Seems a ringer would work for inside use. thinking a back up beeper to a 9v battery would work. plans are, that air horn would be strictly outside due to noise. and most of time id be inside a medical facility. and the LAST thing i want to do is cause a heart attack lol.
Might just muffle the clown horn for now. also digging thru bike parts to locate lights. if im ever out . i know ive got them. also have a phone holster to allow me to vid. the rides. (have to deal with the vibrations there.)
Aaron
EJ you dont have to do that my friend. because of that scooter, im able to almost be 100% with the nol weight bearing. still afraid of what ill see on the 10th.. but im able to move alot easier. if i can find my 6mm allen socket, and pneumatic tires, i can go into the grass and actually get out of house. but i am eternally greatful. may cannibalise the currie for its stem and bars. it will allow me to change bars etc. if i do that it will be nearly monochromatic nearly all black. now i need to find a spare gstwin decal. ( got 2 here somewhere) i put one on every project lol.
Aaron
Eh, what the hell... One last Amazon.com barrage of neat stuff. And then I'm done.
Besides... You've got to master this mono-ped thing whether the foot stays attached or not.
(hope I'm not too graphic)
-
The UPS truck will help keep your mind off your problems for a little while.
Take the stuff i'm sending you and expand your range.
-
Your mission: To explore strange new worlds, to seek out new life and new civilizations, to boldly go where no man has gone before!
Very much appreciated. am dreading the appointment on the 10th meeting my ex for lunch today. ( we get along quite well) she basically went thru same thing. ended up with a below knee amputation. going to show her the 5 pictures. showing the progression. im just a layman, but a fusion procedure ive read, bones have to be ground flat before being screwed together. if this is so, this leg could end up an inch shorter. work wont be an option for a long time if ever, but that i can handle. may just go in as a volunteer with the ADA (american diabetes association) im a prime example of what NOT to do. or what COULD happen. not to scare kids or anything, but talk with those who are ignoring the disease. anyhoo, this surgery scares the hell out of me, BUT ill go to this appointment and question the heck out of him. ive seen xray pics of ankle arthrodesis (fusion) looks like person ran thru a hardware store and jumped into a box of screws lol.
Aaron
Quote from: yamahonkawazuki on January 31, 2016, 12:58:45 AMThis surgery scares the hell out of me, BUT ill go to this appointment and question the heck out of him.
Ive seen xray pics of ankle arthrodesis (fusion) looks like person ran thru a hardware store and jumped into a box of screws lol.
Aaron
Surgery or no surgery, I'm thinking this knee scooter thing may be with you for quite a while, so...
You might as well master the knee-scooter mobility issue.
With enough parts & ideas, you might someday be able to invent a modified device that works better than what is available today.
-Ej-
Disc brakes would be a plus. although the brakes on it are decent as it is.
Aaron
HAHA think i figured it out. by eyyesight it looks as though axle diameter is around 10mm. will confirm with calipers. if so i found a source of tires and wheels on the electric scooters partshauses. ( pneumatic tires, and for bling factor aluminum wheels) this wont happen for a while yet, going to confirm specs first via hosp. wifi tomorrow. after which, being stingy with funds, ill find used ones somewhere. ones i found were 30 each for front, 40 each for rear. thats 140 before shipping. i can do better. besides, it can wait. im in a good mood about this. i found a solution. not much info out there for modding a knee scooeer. courste its not done that often. ( time to set the bechmark lnol
Aaron)
Ended up following a VERY attractive nurse yesterday lol. But then lost her in the lobby.
I came home yesterday and find an all terrain knee scooter on porch THAT will come in handy to get out on my own. ill have to watch speeds whilst turning. but next tues. i have wound care, and the ortho on friday. will at least know what im up against. bipod or mono, least ill be able to get around with ease or easier at least. :). as i would say in german " vielen dank" ( many thanks) will use the hard tired one around the house, the other away from home.
Aaron
ONly thing i lack now for safetys sake is a single training wheel for the bad leg side. already have wheels for it. may keep eyes open at goodwill. or pick up some 1/8" thick steel barstock. and make one. ( setting it up where wheel would be an inch off tarmac.) probably will take it out today for a bit of a distance test. the training wheel/wheelie bar isnt 100% necessary.. but would help with local transitions and angles. loving this thing tho. keeping the hard tired one for household usage.
Aaron
Quote from: yamahonkawazuki on February 04, 2016, 07:26:30 AM
loving this thing tho. keeping the hard tired one for household usage.
Aaron
The idea is to keep one as your daily driver, and use the other one as the experimental unit.
This way your never grounded while waiting for parts.
--
I'm curious how the steering differs from the indoor model to the outdoor rig?
-Ej-
The radius is the same, more or less. the outdoor one will lift a steering tire if i turn on an incline. so im going to make up a training wheel bracket for the bad leg side. but mount it so its tire is an inch higher than the rear tire. or may make up 2 idk. but bad side for sure. thinking of making up a push cart for it. there are 2 notches at back. so it wouldnt turn me involuntarily. and cannibalise a stand up scooter ( prolly electric so i can use it indoors.. although a geared down gas, would be fun too. HMMMMM if i went that route ive got a mantis mini tiller. geared down enough and self contained . either way i DO have a jet ski fall off switch, if its moving and i bail it kills power. but i want to govern its speed no faster than ja brisk walk. thats a ways off tho. first things first is the single training wheel.
Aaron
Practicality wise, i should put off motorising the scooter. and get my pc in line. found a new copy of 64bit win7 on ebay. will prolly get that to set the 1tb drive up. since ankle surgery isnt far off. also found city tires that fit a 12" wheel. theyd help with movement on carpet. (plus i can use them off road) but ill grab the windows dvd, when my income tax arrives. save the rest for the scooter build. this will be a dress rehearsal for the gs trike build. my wellbeing depends upon doing BOTH the right way.
Aaron
Tons of amputees ride motorcycles. Some Army vets, some accident survivors, etc, etc...
Not to be goolish but if you eventually get you health back, the loss of a "ped" can certainly be overcome.
A Google search of the subject will return many results.
Such as...
"How to Ride a Motorcycle With Parts Missing (on you, not the bike)"
"Adaptive Modifications for Amputee Motorcycling"
inMotion Magazine article.
Just saying,
-Ej-
Yes indeed. no matter how it goes, ill adapt :)
Aaron
Yama! .. the tube frame of your machine there... crying out for some lightning or flame decals! ...
(Following is black humour)
And an ironic placard also!
"I break for stairs!"
got to find my spare gstwin decal lol. for some reason i had put one on every project.
Aaron
Discovered the walkers tires are directional. one was mounted against the direction. so ill rotate them. that aside, i found whitewall tires (12 1/2 inch) this will be next project. 3 of those along with a 12inch bicycle hub motor.
idk why bit i like whitewalls lol.
Aaron
the front RH wheel was mounted backwards. others were correct. i removed bolt pulled and flipped it. all is well. ohhhh speaking of customisation, tapping into the custom bicycle market, i found 52 spoke chrome OR gold 12" bicycle wheels on ebay. also found white wall tires on amazon. going to try and get these by jun. when the next TDC event happens. ill be volunteering as i have been since 1997. except for last year and 2001, been doing it ever since. ill do it this year. probably on amateur radio (2m) provided i have my lic. by then. by jun, should be well into recovery from either fusion or amputation procedure.
Aaron
ebay.com/itm/12-Front-Bicycle-Wheel-12-1-2x2-1-4-5-16-axle-/281927892020
hehe these are cheaper on fleabay. id be able to grab 3 of these for the cost of 1 of the others. along with the whitewalls. with the income tax refund. but then again idk, the wheels on it work. ( always liked wires though, lol). but they will be there later on. more practical use for the funds. might just lay out the list of mods first. lol...
Aaron
Build it... and they shall come. :dunno_black:
Going to at least put road tires on it, its a tad oversized. have seat/leg support down as far as it will go. have to put leg back a tad otherwise rear tire tries to catch foot and pull it fwds. but ive an easy fix for that, pull seat pads off and drill mounting holes an inch further back, and re-mount seat pads. leg will be in same place but wil be fully supported. this i can do as surgery date approaches. not really necessary now. its alot easier to find different 12 inch tires vs 10 inch tires lol.
Aaron
Update, it appears as though its trying to fuse itself sans hardware. either way it would be deformed. but ill settle for that. after this i have some boots made up to handle this oddly shaped foot. ( 6 weeks or so). baah sucks being impatient. lmao
Aaron
WAiting on tax refund to arrive, so i can get the parts for the scooter. probably will use the plastic wheels on it for now, but some smooter tread tires for it. working on a slight support mod using parts on hand. refund due any day now :).
also trying to figure out, if i can at some point ride a bicycle again, need to see if a longer pedal is made to deal with ankle deformity.
Aaron
since my ankle is fusing albeitj deformed i gave my nearly new mtb to someone who could use it. still have the beach cruiser, and trike frame. ( and a 6hp subaru) trike wouldnt work on the mtb. anyhoo i decided to tear my pc apart to get it to see the 1tb drive. cant sleep anyways. got one sata plug that MAY work. but its RIGHT behind the vid card. that thing is HUGE. ILL PULL the gpu, and fit the connection. if it works i wont have to repurchase windows. found my jewelry needlenose pliers. it helps lol. anyhoo, may have also found a job/volunteer position. with the ADA ( diabetes assoc.) as a motivational speaker of sorts.
Aaron
Baaah :"( lol. i tried, i failed. it wont see the 1tb drive. it still sees the 320 though. btw the sata plug it was attached to fell off. going to try sourcing an external hdd case and use the 1tb as external storage. otherwise id have to round up enough to cover win7 ( got that on hand) a mobo which will support ddr2, everything else can be transplanted :). will hold off on it, and concentrate on knee scooter mods. since pc is running still. it was worth a try Eh?.
Aaron
Buy nothing, (yet)
I have a complete Lenovo PC running a legal copy of Win-7 Pro. It's a refurbished sh!t-box PC that should do fine.
I'll send it to you.
Follow the set-up instructions and hope she boots up without much aggravation.
Once you get it running you can add the 1Tb drive. It should have one open internal SATA port you can use.
Expect delivery by Thursday afternoon.
Keep a fire extinguisher nearby. ;-)
-Ej-
coolness :). if no problems i can return the adaptor. nvm hell it was placed a bit after midnight. i can cancel it. got to make a fender for the scoot. knee rest is at lowest position .but glad i have this one and not the smaller one. finding aftermarket 10 inch bicycle wheels would be impossible. i have to ride a couple inches back or i risk the treat pullning my foot up. BUT got this figured out. i can drill the seat mount further back. but i think the fender will work out.
anyhoo will photo the stripe job once finished.
Aaron
baah cant cancel from the pos phone. will get out this afternoon and hit a wifi spot with the htc. no one ships on sunday anyways lol.
Aaron
i striped both rails. opinions? lose the lower one?, tbh i think if i motorise this thing, ill build a pushcart. unless i can cannibalise a currie ezip. friend of mine allowed me use of his fabrication equip. idk where id mount the battery pack , if i gas it, it will be on a pushcart using one of the ezips rear wheels. that way i can bring it inside. i DID see a 350 watt hub motor in a 12 inch bike wheel. idk. next 24 hours, im motionless. the self fusing ankle feels like it let go. course it JUST started to self fuse. it will be fine. cause ill be damned if they have to fuse it with screws. that xray looks like the poor soul jumped iinto a bucket of screws at ace hardware. i have to modify the aircast due to the swelling. its a hair too small, and other one may be too large. but ive got 36 hours before next doc appt, soooooo. time to break out the mcgyver. ohhhh sorry lol, the first run on striping. still thinking of enamel striping it.
(http://i519.photobucket.com/albums/u360/gstwin/Mobile%20Uploads/th_Picture0214161842_1_zps1za905yp.jpg)
will upload better shot tues from hosp Wifi.
Aaron
Geez... I thought you were kidding.
You really DID pimp the scooter!
Heh... Sweet ! !
(http://s25.postimg.org/5wiu7i5r3/th_Picture0214161842_1_zps1za905yp.jpg)
I want to eventially either twotone it, same colorscheme. i PROBABLY couldd find some curb feelers somewhere. thought also of painting it in checkerboard ( blue and silver) may try to find a miniature moto gas tank? why? idk tbh. Or removing striping, and reapplying it in a spiral pattern. using it as a mask and painting inbetween tape.
Aaron
that wool pad is a lifesaver. but im thinking of re-doing the stripes. with enamel. following the same lines. except at the very back. thats coming off. or maybe two toning it. keeping the blue, but the lower half of upper tube and upper half of lower tube. in the silver. that would be a 1 shot deal.
Aaron
ill end up restriping it for now. but since im drawn to the ble/silver idea, when circumstances permit, was toying with the idea of stripping it down completely and having frame resprayed in "luxury blue pearl" like i had on my '03 sportster. depending upon paint cost of course. then again may just leave as is. still stuff to do to it ;)
Aaron
WAS chuckling for a moment but for extra "pimp" bonus points, i could take the armrest covers ( same material as pad cover.) and apply them to frame tubing lol.
may do it just for a pic.
Aaron
good god :( ive either the flu coming on or staph is back. day 2 of this. dis sucks lol
Aaron
After 2 days of nausea and flu like stuff, saams ankle has shifted to the lateral side an 8th in further. :technical: had no choice in this matter. but dont have to see ortho for 5.5 more weeks. idk if he wants to do anything or not. going to get a second opinion. idk if it will last nearly 6 wks. hell its 2 different colors lol. feels like ancient history, yet only a tad over 6mos.
Aaron
Yama... buddy mate pal! ... have you been doing stuff with that leg at all? .. seems it moves and fails to set same spot when you 'just had to do' something? !! ..
Manhugs and all but I hope you have 'been a good chap' and not irritated the ankle with poor usage!?
:thumb:
+ 1
ONLY Time i had was when i had to run to the oval office to visit my russian cousin "yak". body overrides common sense. otherwise its kept immobile. it will re-fuse.
Aaron
Ive since figured out better ways of dealing with that. i promise.
Aaron
Better... better get a bucket if you gonna be sick! ;)
yup. i do now. found several of them from the 6 tims ive been in hosp since aug. now i work on the kneewalker pimpout. 1 trainingwheel and a few other pieces and ill be good. in a few weeks ill have funds on hand to finish that one. working on the pc now. putting it back into the OEM case until i finish the McGyver case mod. there was case made a few years ago with space for 2 mobos. trying to get my paws on one of those.
Aaron
Actually some good news on the pc front. i found the motherboard name./ model. Ih61M along with the barebones pinout. hdd led and power switch. along with defeating the intrusion switch. ( if its enabled its done via bios) or i can incorporate switch into the ultra case. so no case modding necessarry. i can save forthcoming funds and build planned pc case out of legos. and eventual incorporation of analog VU level meters. (2x audio out) and 2x audio in. so pc barring catastrophic failure, which hasnt happened in a decade :) and wont. will be operational this time tomorrow, with EVERYTHING. EXCEPT FOR the networking card. well it will be installed but not used. ( i can use a router for that future purpose). contemplating mounting the dvd burner upside down so the tower case can be put inside my home theatre stand sideways. and disc catch can be used. or turned anti clockwise and bay mounted. am going to save up and grab a 12v pc case fan or air hockey blower fan as a pull vent fan for entertainment centre. will do case conversion after this. since the Yamaha Rx-v665 av reciever generates heat and pc will also. Tomorrow planning on wheel mount for 1 training wheel for the knee scooter. found the wheel i want to use. off of an older walker. a 6" semi pneumatic wheel. perfect for the job. ill have it done tomorrow as well. using a neck clamp for my 55mph tt bike i had motorised at one point.
Aaron
BINGO ! , figured out how to convert from tbars on kneescooter to the HD drag bars im wanting to use. or the tt
bars ive got at house. an adjustable angle MTB 1 1/8" threadless handlebar clamp. this will save me ALOT of headache. i just remove the tbar with hacksaw and apply clamp and bars. (or i make new extender with pipe from hardware store) and use this clamp
or one like it..
www.ebay.com/itm/Adjustable-Rise-Angle-Bicycle-Bike-1-1-8-Threadless-Stem-120-120mm-/291629637713?hash=item43e67b2051:g:aPEAAOxywFhTc4bY will try grabbing this in a few weeks. the one from my TT bike is too small in diameter. i believe its 1in. the stem after tbar removal is 1.125 may check parts bikes collections and see if i have one already.. will update. after bar conversion it wont be far from finished.
Aaron
Maybe a double bingo ! may not need the the mtb handlebar mount. i was in pain and couldnt sleep, so went and dug thru the parts stash and glanced at the currie Ezip e300s parts unit i had on porch. its column MAY BE a direct bolt on. (using the oldschool wedge mount that both have) its black anodised so that would get rid of the only shiny bits on the knee scooter. ONLY downside is it isnt height adjustable. BUT would be closer to correct length PLUS i can change handlebars at will. the TT bars from my scott waimea will bolt on Or the anodised grey bars from moms Giant will bolt on as well. since ive nothing planned for tomorrow may test fit. if it works ill make conversion. ill lose basket mount BUT walmart sells one. ( basket mount) wish me luck.
Aaron
correction: its a currie Ezip E450s
(http://bifrost-newfies.com/wp-content/uploads/2016/02/ez45011.jpg)
Eyeballin this thing gave me an idea if i can find one of these E scoots in decent shape ( or a screaming deal on a24v battery pack and charger as well as a throttle, i can fabricate a curved axle mount and weld it to this ( or acquired e scoot) and make a solid electric kneewalker out of it. this will be a future as funds permit build. but anyhoo this column SHOULD bolt directly on provided wedge hardware interchanges internally. the kneescooters neck is longer. will find out tomorrow. or figuring out how to engineer a SECURE steering neck clamp on mount for the kneewalkers curved axle. OR find a narrower rear drive weel/motor combo that will fit this one. or using the rear end of the donor currie, i can engineer a bolt on drive conversion.
the kneewalkers rear end is narrower vs that of the currie. motor mount can also be included in the bolt on conversion. Or before i go cutting it apart, if THIS is operable, can acquire the kneewalker parts to convert. right now its locked up. idk if thats the brakes or motor. (motor brake on rear) if electrics are good , ill leave this one alone. and convert it. safetywise id prefer a front end conversion ( using kneewalker all terrain replacement parts) OR could find a used 3 wheeled mobility scooter. COULD convert moms :( jet 3 ultra for this. just needs 2 deep cycle batteries. just HEAVY as hell. lol. Baah maybe i was an engineer in a former life lol. anyhoo will update tomolrrow on conversion prospects.
Aaron
The things NEW are less than 230 shipped From walmart.com may test motor tomorrow, if it runs, MIGHT BE worth a pack and charger to convert. as of now its a mystery machine. idk. motorisation still a ways off.
Aaron
May jus4 hold off on bar conversion . looking into it. the MTB bar clamp would be easier i think but fwiw ill wait and see IF this e scoot bar is transferrable as a complete unit..
Aaron
Hmmmmm,. knee scooters column is steel. mtb clamp is aluminum i believe. COULD find a piece of 1 1/8 steel tubing. if the E scooter column swap wont work. unless i can find a steel handlebar clamp
Aaron
Update on the ankle it burns lol :"( elevate it, it burns put it down it burns, using R.I.C.E ( Rest,Ice,Compression,Elevation) along with ineffective pain meds, no help. i resplinted it while working on the kneewalker. got a bit of relief then. and slept lol. its pink on one side and slightly purplne on other. its a mess. as dr reat explained it wikll be deformed. but if it will fuse without 15lbs of screws in it, or loss of it, ill settle for that :). now the scooter, holding off on bar swap until i find a threadless bar clamp which will fit a threadless upper stem, ( 1 1/8 " OD , I BELIEVE ITS 4130 alloy. its steel at least magnet is drawn to it. the bolttom tube is a quill mount. still want to see if the currie column will fit. not a huge fan of chrome/polish. when rest of colour scheme is dark blue and black. ( and soon to be hand applied silver enamel striping) if the currie column woluld fit it would be ideal. its black PLUS it has a bar clamp already. but no matter what, most of the i7deas are done. except for a few more. ( whitewalls etc. that is a future job filed under priorities lol, that one i want to combine with the 52 spoke wheels. although then the polnished steering will fit a bit better i think.
Aaron
Acupressure point stimulation for the ankle burn?
The medial side has all but quit hurting. ( where the mrsa wound is/was. the outside (smashed fibula side) the lateral side still hurts like all hell tho. i put weight on it by putting it on the ground, and little pain. just doesnt do fracture any good. dr would growl at this. but after 10 minutes it gets cold and semi numb. but the charcot acts up. ironically ill never wear normal footwear ever again assuming i keep this foot. i see wendi at the ADA office on the 2nd. ill be the voice of what NOT to do as a diabetic. then to GP doc after that. im going to be idle . OH i was windowshopping pc cases and i stopped by the lian li site. ( always some great stuff there. theyve got a pc case i want that looks like a yacht. lol. but theyre only producing 500 of them. ay end up going clear again, or something totally weird. of my own design. ( like a nude female mannequin or something lol.)
will see. ill find the yacht case. kinda cool tbh. lian always has some cool stuff.
Aaron
lol i want , but my pc parts would NOT fit within.
(http://i.kinja-img.com/gawker-media/image/upload/s--1cBRV_tA--/c_scale,fl_progressive,q_80,w_800/mrslbuy7gjrkejahucts.jpg) if i went boat it would be a foot longer. thought about gutting a broken sony vcr and using that and placing it within the entertainment center. as the saying goes " an idle mind is the devils playground" so ill come up with something weird. maybe even hanging the hardware from the ceiling using fishing line. sans case. (or mount it inside my franklin stove a fireplace ive not used in a couple years lol.) goal will be minimal if any cost. using material on hand.
Aaron
www.xoxide.com/sunbeam-htpc-acrylic-clear.html or build one of these. got some 3/8" acrylic here at house. idk lol. minds in a weird mode right now lol.
Aaron
I KNEW they made one ( corsair air 540 case)
www.amazon.com/Corsair-Carbide-Series-Airflow-CC-9011030-WW/dp/B00D6GINF4
or for weirdness factor, could mount everything in a craftsman toolbox lmao. weather playing hell with the ankle. too many irons in the fire lol. need to take a full day and do ( and think about) absolutely nothing.
Aaron
Might be able to do the bar swap after all. YES ! it will work .. Sorry, i started doing this mid post. bars wise, i go thru the spare bikes parts got the bars from the waimea . the TT bike. the giant MTB mom had, it would work too . SWEET. a mod which was free lol. the bonus is it gets rid of the only chrome piece on the knee scooter. chrome would be ok if there was more on the thing. i lose the basket mount but one of those can be made. having wider bars will help ALOT. THE TT bars have brake levers which bolt onto the ends. :D
Aaron
:thumb: :cool:
got the steering mounted. i cant find the giant mtb bars, going to trim err shorten the TT bars from the scott waimea. doing this now since ankle is numb. put the splint on so i dont fall again.
Aaron
Got the bar conversion nearly done. goingto save some and eventually grab some folding MTB handlebars.
Aaron
:cheers: :thumb:
Dr. Frankenstein in the lab. :whisper:
lol
other than wheels and tires, i dont see mucch further in the mod dept. i did mount the scooter switch ccontrol that addy had sent. (future plans on putting this into service.)
Aaron
Monday ive no plans and nothing to do to knee scooter so to benefit whats left of ankle im going to be lazy. Tuesday ive an appt with primary doc so while there, going to get a referral to another ortho, to get a 2nd opinion on the ankle. dealing with the way it feels for another 4 weeks wont be fun. current ortho doesnt seem to want to do anything to it. if 2nd opinion is same, thats fine. it will never be as it was before the fracture. but if left as is i wont be able to ride a bicycle anymore. doctor did offer to clear me for hand controls to drive again. tho. :) i could drive a manual with a hand clutch ;) if needed. id like to at least have the ankle without the over 15deg. angle to the outside tho. fusion or amp. would take care of this. current doc says its trying to fuse itself. which id be greatful for if that angle wasnt so drastic. buying shoes will be interesting. cause only the right foot is normal. but fwiw this r&r time will help me heal as well as figure out next scooter mod. and here in a week or so once comp is finished, i can plan the gs trike :)
Aaron
Aha 3 of these http://www.ebay.com/itm/Bike-Bicycle-Front-Wheel-12-X-1-75-2-125-2-5-Aluminum-Scooter-eBike-Kids-Bike-/262176131838?hash=item3d0aea4afe:g:iTEAAOSwunJWFOKm and whitewalls AMD the wheel mod would be done, Lol this is on the short list
Aaron
Hehe found a set of bars, could get them in blue. and theyre on the cheap.
www.ebay.com/itm/Fixed-Gear-Fixie-Bike-Bicycle-Cycling-MTB-Alloy-Riser-Bar-Handlebar-25-4mm-/400938210042?var=&hash=item5d59c792fa:m:mjBEkUHkQTasL6s9abwsxOQ
not bad tbh. giving it some thought. thought about bullhorn type. but id rather use bar ends. which i found a set in my parts bin.
Aaron
Kinda torn between the two choices. either the 3 52 spoke wheels and the whitewalls , or the alloys and the blackwalls. ive got time to decide, ill put back the 150 to grab all, this would be the final purchase structurally for the knee scooter. the 52 spoke would be a fairly strong wheel yet would look odd with blackwalls. and vice versa. whitewalls would look weird with the alloys. weight is comparable. may talk myself out of it entirely lol. tbh tho the wires have a slight edge cause plans are in the works for 3 fenders. a pimped out lowrider knee scooter.
Aaron
may just hold off on the wheels. but acquire blackwall street type tires when funds permit. but stick with the blue and silver color scheme. and focus on motorising it.
Aaron
Quote from: yamahonkawazuki on March 03, 2016, 10:42:38 AM
may just hold off on the wheels. but acquire blackwall street type tires when funds permit. but stick with the blue and silver color scheme. and focus on motorising it.
Aaron
excellent!
BINGO ! 10 each. this is what ill grab when im able. will check local bike shops as well. not a full on street tread, but this will work fine methinks.
(http://bicyclehabitat.com/images/library/large/bontrager-dialed-kids-tire-195727-11.jpg)
Aaron
www.ebay.com/itm/KENDA-BIKE-BICYCLE-TIRE-12-1-2-x-2-1-4-BLACK-NEW-12-1-2x2-1-4-/191388523458?hash=item2c8fa51bc2:g:4ekAAOxygLxSYBRI
BINGO !.
I DO like the whitewalls better tbh but theyre 2x the price and it seems only sold in pairs. when i only need 3..
still may wait on the whitewalls but idk. heck ive got no plans this week, may see what can be found locally.
and let ankle rest. will try to find some better bar ends too at some point.
Aaron
hmmm good deal here. almost on whitewalls 39 for 2 shipped. with a make offer option. id have to get 2 pair. ( need 3) like the tread on these.
www.ebay.com/itm/like/262069597260?item=262069597260&lgeo=1&vectorid=229466&rmvSB=true
still trying to engineer a drive setup. have an engineer at church with a CNC machine in his basement lol. ( my mind is wondering.)
Aaron
Could always make a powered knee scooter out of this ( or one like it. or cannibalise it.) a currie ezip 1000
knoxville.craigslist.org/for/5460123014.html
Aaron
Trying to figure out what, if anything to do next to it, i COULD fur it. lol. but ehh idk. it looks weird enough on a moto. so ill drop that one i think. the street tires are a for sure once funds permit. found some good prices :). beyond that. maybe wheels. beyond those, i think thats about it. everything else i come up with is a wtf, why you even thinking that lol.
i go in a couple weeks to ortho to figure out next plan on the ankle. when storms come it rages like hell. i just hope that eases with time.
Aaron
Found a local bike shop that can get the tires i want. (kenda k124) at 10 each.) so 30 plus tax isnt bad at all :)
Aaron.
This is the tire ill try to grab if and when funding permits. local shop can get them in.
(http://ecx.images-amazon.com/images/I/51-GulG-oAL._SX300_.jpg)
Aaron
I may end up in hops. Today. I've got a 19yo cat a black. One. My leg spazzed out. Kicked over my drink. Got up got on scooter. Went to kitchen, got off. Stepped on cats tail, I screamed at it, and stumbled 3 times HARD. 14/10. On pain scale. Am petrified. If it stays same or worsens, I'm going to ER. Calling orthos call center. Will update.
Aaron
Quote from: yamahonkawazuki on March 19, 2016, 07:03:59 AM
I may end up in hops. Today. I've got a 19yo cat a black. One. My leg spazzed out. Kicked over my drink. Got up got on scooter. Went to kitchen, got off. Stepped on cats tail, I screamed at it, and stumbled 3 times HARD. 14/10. On pain scale. Am petrified. If it stays same or worsens, I'm going to ER. Calling orthos call center. Will update.
Aaron
:o
Oh no!
No further fractures. Just a severe sprain. THAT'S PAIN LOL. As long as the PA didn't misdiagnose im good.
Aaron
This is tater the magnificent. Its former owner wanted to roadside drop him off at a month old. I said he°l no. His now 3 most old. At least half jack Russell. I'm leaning toward full as hard as he pulls.
Aaron
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/0321161307_zpsacar52ga.jpg)
Am a tad nervous about tomorrow. it is my 6 week followup to the ankle going to hades but fusing at an angle to the outside, but now i show up with a supposed sprain on top of gnarly frac.1 ( the fib) and besiide the other 2. i never saw the doc just a pa. nobody properly examined it. just compared 2 xrays. well 2 sets of 2. alot has changed since dec29. we shall see. actually i fear the doc more than the diagnosis. he can get pissy sometimes lmao.
Aaron
Quote from: yamahonkawazuki on March 22, 2016, 02:45:59 PM
Am a tad nervous about tomorrow. it is my 6 week followup to the ankle going to hades but fusing at an angle to the outside, but now i show up with a supposed sprain on top of gnarly frac.1 ( the fib) and besiide the other 2. i never saw the doc just a pa. nobody properly examined it. just compared 2 xrays. well 2 sets of 2. alot has changed since dec29. we shall see. actually i fear the doc more than the diagnosis. he can get pissy sometimes lmao.
Aaron
I feel your pain, man.
Looks like I've got a raft of doctor visits, tests, and scans in front of me, too. . . :sad:
I saw x-rays today . I got copies , mainly I like to use them for wallpapers on my phone. Will post it when I can get comp to stay on long enough. It all works, but I had to build a front panel plight for it. ANYHOO, doc says " I want to go hands off on this." I.e. I think he quit on me. Sure I was a problem child with. This. But I think he quit too soon? So I made an apt forthis fri. Cause ER docs report and orthos a c tons are possibly going in opposite directions. If second opinion orthos concurs with dr reat, that's fine. I just want be sure. Definite updates to follow today.
Aaron
I figured it out. first when ex ortho said " im goin hands off" i figured YAY were healing. WRONG. it translated means " I aint touching THAT" youll see by the next two pics. the first one is of my left leg, taken from the back side. as to not show any scarring. it lol resembles a cartoon elephans fat trunk. fair warning it will show the swelling and deformation of ankle. and for size reference im 5'10" and 145 soaking wet. a leg that size would be on someone close to 250lbs. will get a comparo shot of R leg from back tomorrow. second pic will be the xray showing the breaks both new and old. imho not graphic.
Aaron.
givve me 5 minutes. to get pics up
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/Mobile%20Uploads/0322162056a_zpsuuoji1oo.jpg)
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/Mobile%20Uploads/0323161837_zpsuejp9vxy.jpg)[/URL]
:icon_eek:
That is a seriously f*cked ankle. . .
i really hope i am getting worked up over nothing. i.e. i hope it IS nothing more than a wiccked sprain. but i dont honestly think so. i can put pressure on the outside at the swelling, i feel a stabbing on the inside. i.e. it t to me feels unstable. i view the medial (inside) pic ( will post later on) that view would be hard to find problem. but that bone is sitting on less than 40% or less of its former self. i know now why he wanted to go hands of. i believe it means " i aint going to touch THAT one" will see what new ortho says tomorrow.
Aaron
Time to catch some more shuteye. have to be there at
7:25A. besides . arthritiis in L knee anyways. will know something first thing tomorrow. shall update. heres hoping Eh?, btw Jon feel free to discuss the forthcoming issues of yours if you wish. we're all family here, albeit a tad dysfunctional at times lol.
Aaron
Got back. good news and not so much. good news is i pooled my change and got 3 kenda 124's for the scooter. they arrived. NOW for the not so good. new ortho kinda freaked. " he NEVER DID ANYTHING THEN QUIT?" 2 options i have it fused with screws or i lose it." im aiming for the fusion with screws in a months time estimated. unless the bone and synd. joint lets go. which would render me sans ankle. so ill attend easter sunday services with ankle braced, then i go lazy for a bit. turning over my duties there for a few mos. my ankle will look like i went in feet first into a bucket of screws at ace hardware. (will provide sample pic. it DOES resemble that.) good thing is, this SHOULD provide a permanent fix if it works. then... i have to decide if i lodge a formal complaint against former ortho. idk yet. juries out on this. tires wiped me out but imgood for a while i think. Followup pics this afternoon.
Aaron
Wow! Sounds like a lot going on!
Ehh ill get pics uo during day tomorrow. around midday. hurtin too much :/. lol ill rest then postwhore. :)
Aaron
what i am having an issue with is, my ex ortho i assume , is VERY highly recommended.. ( jean-fancois pascal reat) why did he go hands off on this. if things dont require a quicker response, i see the new one in a months time. i am curious. idk if new guy is knife happy or what. ill look into this. anyhoo ill be uploading 2 more pics tomorrow. one of the medial side. ( inside/tibia side) its hard to see an apparent need for action. ( unless you look closely) ill also post the tire pic of the scooter.
Aaron
I really don't think it's an option to NOT complain about reat!
Sure you are a troublesome patient that refuses to stay off your ankle with its many issues. .. but his "lets wait and see" formula seemed wrong to me from very early on!... wasn't going to argue the point tho cos he is the doc! ..
Hope you get resolution this time bro!
im sure there were times he came in :) and left :technical: BUT im actually glad he DIDNT get into it. its hard to get one to work after another. or ON anothers work. this past wed. i was thinking K it seems a bit TOO early to be saying jobs done. then i put 2 and 2 together. :(
Aaron
Here's the ankle from the inside viewpoint. Hard to see flaws unless you zoom in.
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/Mobile%20Uploads/0325161427-1_zpsajdjjxmr.jpg)
Aaron
:2guns: Dang threads keep trying to die! :technical:
nothing to report of significance. other that swelling went down oh mighty thread resurrector :). i postponed trip to wound care from fri to monday. ive got a trip to hanger for monday ( they make my orthotics) theyre supposed to be molding a clamshell boot. im hoping whats available will somewhat match my shoes. may also try to get my aircast to fit again without causing any problems. also may make appt with the ID doc to make sure the mrsa hadnt relapsed. thusfar it hasnt :D
Aaron
Damn dude...majorly fkd-up ankle is the first thing I thought of when I saw the pic from around the 23rd >:(
Coolness she returns. :D this boot (called a CROW boot) has a strong resemblance to a moto boot. yay for charcot ankle :technical: . ill get this boot if insurance will cover it. will find out monday i guess.
Aaron
p.s. Pandy if the purple haired smiley isnt working, ive still got it in my pb acct. then again this phone may be to blame. i cant see the pics i insert. still trying to figure out how to make a purple haired one with green streaks in it. which is easy enough. except details lol. i.e. a round smiley becomes square. details are little more than a pixel in width. hadnt tried with moving ones, i no longer drink lol. good to see you again ;) btw will needto get my paws on a couple gstwin decals for the kneescooter. ive had those on pretty much every project. INCLUDING a gs500 and a car lol. anyhoo updates to come. Hopefully BETTER.
Aaron
Ill try to get rid of the surrounding border I.e.. The white border, or perhaps enlarge the smiley
Aaron
the air tired scooter has a 10ft turning radius. figured a safe way to turn it on its own axis. keep bad ankle on platform, squeeze brake it WILL hold. pick up 2" with the Ti ankle and spin around. idea for elevators. will test monday at wound place. but it works here. plus only 2" off ground in front. =not dangerous.
Aaron
After this mornings rounds of severe weather, i was in fracture agony. tbh was not thinking the best thoughts. anyone who had just broken a bone knows this pain. it almost felt like the MRSA had relapsed. but it had eased a bit. now i may be able to sleep. (until next time) had plans to get off of the pain meds mid/late summer once FX had healed, that may be postponed a bit. when i go for the crow boot fitting monday, if budget allows, will also have to count for its thickness on the knee scooter. ive fears the charcot may be migrating to the R foot too, but as long as the Ti plate holds im good. maybe time to start acquiring the items ill need to power it. i still want to put 52 spoke wire wheels on her as well. Oh btw the kends K124 slicks work great. and i discovered it has brake Disc mounts on it too :D one of my goped calipers will fit... anyhoo i must locate at least 1 or 2 gstwins decals for it . (long project tradition there lol) anyways will update again later today.
Aaron
I hope things get better soon! Always good to have projects to keep your mind occupied! :D
Indeed :)
Aaron
the three 52 spoke fronts ive found at IIRC 39ea. could go cheaper and grab 28 spoke fronts (x3) but kinda like the look of the 52s idk. that one i think is a ways off. another one im contemplating is putting fenders on front. ala 1920s era automobile style. figured out how to make them work too. they stay pointed frontwards while wheels turn. and attached to curved front axle mount. a semi required mod would be drilling another seat/platform anchor point, to allow me to lower it a half inch. its already down as far as it will go. if i remove the security anchor, it can go down a bit further. the anchor prevents it from turning horizontally. the bicycle style quick release clamp holds the up down part of it.
(trying to account for the CROW boot if i get it. (i SHOULD be able to get coverage on it at or near 100%.)
Aaron.
Contemplating a repaint of the knee scooter, in tribute to patrick and the huhsky bike project. i.e.. purple and white. along with a scaled down decal of team. i figured since the device is about the size of a childs bicycle maybe a tad larger, a pint each of purple and of white, (and 2 coats clear) its feasible. would cause massive confusion around here lol. because most ppl expect orange and white (UT vols) oh btw finished with woundcare now. got cleared yesterday so new ortho can do his thing when he sees fit. also got order placed for the crow boot. a long day lol. now im bored again lol. the boot place was in a location, i didnt know existed. (google "security square oak ridge tn" then zoom out a tad. behind that is a self storage place behind THAT is another mini strip mall looking place. i.e. proof right there i dont get out enough. oh they need to change the street address . if you google the boot places addy, it will place you nearly INSIDE the y12 plant. those ppl dont play nice lol.
Aaron
That could be cool!
other than front neck (vertical) seatpost, and rear wheel mount. those are the only straight lines there are. everything else is curved. two-toning it will be fun. but can acquire the materials as funds permit, and do it when im able to do so.
Aaron
hmmm white over purple or vice versa, thinking of 2 toning it like a 57 chevy. thinking purple over white. purple being main colour. a pint of each, a pint of primer, and clear as well. ill photochop it using autodesk sketchbookx. as funds permit will acquire the supplies. thinking midsummer should complete it. (after final procedure on L ankle is finished.) will post the pic at some point tomorrow.
Aaron
wound care cleared me, next step is new ortho fusing ankle and cleaning it up. it scares me somewhat. ( with the recent mrsa incident.) but it needs to be done so i can safely bear weight on it. its bent almost 20deg to outside. he might have to shorten it an inch. that i can deal with.. need to get back to work if possible. anyhoo moving on to better things, the scooter im planning on white being dominant colour. but will use eggshell white. with fat purple striping. and purple steering knuckles. kinda lookin fwd to this. will photochop it to show you the idea im thinking of.
Aaron
:woohoo:
Hooray for progress!
Boot didn't arrive today, so ill go in next Monday for that. This Friday I go in and see what ortho is going for do.
Aaron
Friday of last week i was in the ER, thought i was in DKA i.e. Diabetic Keto-Acidosis. which thankfully i wasnt. got out at 01:30. so i was able to make the church temple trip at 7am in nashville. my insulin pump im having trouble with, mainly because ive hardly any body fat. so somehow have to add the fat back to my body so ive more places i can use the infusion sets. ANYHOO, this friday i see my ortho, to get the arthrodesis procedure performed on the left ankle. he wants to put a long pin up inside the tibia. i dont want to have this surgery. but ive got no choice. its either do it or i lose the ankle. my body cant handle much more in the surgery department. but if it doesnt work i lose the ankle. ( about 50% chance of success due to bone disorder. am thoroughly scared tbh. but i have to have one or the other done so i can recover and try to get back to work. have no choice in that dept. have bills that need to be paid. hadnt been able to work since july 3rd. when kept stumbling due to the neuropathy. and fractures the following month.) must get back to work. heck going nuts following docs orders. ie doing nothing. i make a few $ repairing comps, have a job lined up at old workplace installing a POS (point of sale) system. this i can do while seated. but in 2 weeks or sooner the ortho will perform the survgery. i find out friday. he may put me in hosp that day. will be there 5 days or so. wants to put a LONG screw inside the tib. which combined with bone graft, will give me the best shot at success. hoping this works so i can get back to work. no choice there either. anyhoo ill find an xray pic of that procedure showing what it will look like. anyhoo wish me luck Eh?
Anyways, wish me luck, ill need it. another matter i will discuss it with someone here. ( covering worst case scenario.) will update many more times my friends , your friend,
Aaron
You're in my prayers, man. I hope things take a sharp turn towards the better. . . :cry:
Very much appreciated my friend.
Aaron
Basically he wants to put what's called an IM nail inside the tibia from the bottom of the ankle joint err bottom of the foot. Its roughly a foot long with holes in side for Ti screws to anchor it. Odds of success with the severe deformity aren't the greatest, but no choice there. He rebreaks Any fusion already happened, flattens I.e.. Grinds flat both the bottom end of tub and top side of the ankle bone, then uses a piece of my hip bone as a graft, also removes the shattered end of fib, and the medial (inside side) of tibia. And then nails and screws. I could just say naah. But then my ankle will remain deformed as well as probably worsen. The hardware. Will give me a better shot. If it doesn't begin to fuse after a month, they MAY be able to redo it. But usually cannot be done. Usually ends up as a BKA ( below knee amputation) if prefer to be nailed and screwed versus being rendered a monopod. But I put it in GODS hands. Ill take whatever is best. Hell ill be out of commission for 6mos min. After 3mosill try to find some sit down work. That's a must. If health holds up. Hoping this is last surgery for a while tbh. Ink if I can handle anymore crises upstairs. Been sitting on my arise since mid August. With a 2 week break late sept.
Aaron
For sh*ts and giggles , I may ask him to let me keep the pieces of my leg bones he removes. Ill keep them as a reminder to follow his instrux to a T.
Aaron
This is what I'm up against. This is a right ankle but same planned procedure. Ex ortho should have done something sooner. CContemplating malpractice in this case tbh anyways this may help or it may it may fail.
(https://faoj.files.wordpress.com/2008/08/imnailingfig1b.jpg)
Now ill have enough metal in me if be able to run through a metal detector nekkid Lol and set it off
Aaron
Quote from: yamahonkawazuki on April 19, 2016, 02:15:11 AM
This is what I'm up against. This is a right ankle but same planned procedure. Ex ortho should have done something sooner. CContemplating malpractice in this case tbh anyways this may help or it may it may fail.
May be a good idea. . .
I called because of pain levels, and asked if they had anything sooner. they called back about 11a today. said they had a noon and a 2:15p. i took the 2:15 after arranging a ride. ANYHOO this doc almost cursed Daaaaang, offered me a choice. do nothing and live with it. or have the procedure performed. i chose the latter. IF it is succesful it will strengthen the ankle. it will be fused at 90deg. but ill have motion in foot. until that goes out. i fear the OR because of decembers incidences, but ive no choice. got to fix it so ive a chance to get back to work, or apply for disability. may wake up with both feet or only 1 or may succumb toit. but im going to ask doc for the pieces of my leg bone.. weird? yes indeed. but having something on my comp desk that ONCE SUPPORTED ME lol.
Aaron
A MINIMUM of 4 mos before i can even consider looking for work. provided there are no complications. im dreading the cast at week 2. everytime i get a cast i end up with an infection. id be happier if they keep me in a backslab. i.e. a splint on backside of leg and under foot. if an infection sets up im screwed. this kinda frightens me tbh. will have to let him know ahead of time. about my casting history. or i can show him the pics. the ONLY ones i didnt post here. theyre definately NSFW OR APPETITE. i go next monday and pick up my crow boot, and also have labs done for surgery. ( i.e. anasthesia types and amounts, also to see if the mrsa is still there ( it will be internally. its in remission).following week my left ankle will look like i jumped into a barrel of screws at ACE hardware. with a Ti rod up my lower leg on inside, plates and screws on outside. yay fun
:(. no choice though. will see what happens. btw ty janx. ill be in touch MYSELF hopefully afterwArds. specially when pain meds hit. will postwhore like nobodies business. i hope this is successful so i can look at getting back to work at some point. (if possible)
Aaron
Think of it this way, if the worst ever happens (we all hope not), they make custom things for bikes for amputee riders. . .
Morbid? Yes. Technically a silver lining to a very dark squall line. . .
Do a shadow box with the bone pieces! Background can be xray of repaired ankle, couple LED powered by 9v battery and little rocker on/off switch for backlighting! :thumb:
or make a keychain out of it. it would totally weird someone out. or for extra weird points, make a ring out of it lol. and say only that "this ring once held up a percentage of me." and nothing else. (for a while) let them guess. id say hed do it. if he grafts bone it will be either artificial or a piece from my hip..
Aaron
Always remember that older British bikes had the gear change and rear brake reversed. so you could probably ride one of those with suitable modifications to the brakes. As for the other, I'm sure your doctors are doing their best, and you just have to be (a lot more) patient and hopefully it will all be over soon.
Good luck.
Hes talkin plates and screws and an IM nail/rod and more screws. i just want the removed bone. ill place it beside my mastodon tooth. and other fossils lol. 2 weeks from yesterday after the anaesthesia wears off life will suck unless the painkillers are good. got a feeling ill be on self admin trigger. i.e. push a button get dosed. cant push again for at least 15 mins or something like that. only thing that worries me is the cast. my body and casts just dont play nice together. if i gotta have one i guess ive no choice. but an infection developing under neath it could be lethal this time around. will just have to let them know about it.
Aaron
I wonder if ii could use my crow boot im picking up monday in place of a cast? ehh if not will just have to ask them to allow a tiny bit of extra room on both the medial (inside) and lateral <----------------especially outside, this is where he said hed be doing most of the work from.
Aaron
thing keeps swelling. then going back down. but i go in monday to hosp for a CBC (complete blood count) as well as anaesthesia testing. ( to find out what workss best) then to figure out what to put in the post op pain pump. (depending on outcome, whether i have the metal put into ankle or worst case, i lose ankle.) also find out the extent of the damage to ligaments and tendons. may ask doc if theyy can run a CT scan on it. radiographs/xray, usually dont show this. just fractures. if/when i survive this, i WILL lodge a formal complaint maybe even a malpractice case against former ortho. ( if attorneys think ive got a case.)
anyhoo that is the latest update. after this, i go pick up my crow boot. which MIGHT allow me to not have to use a cast. hoping lol. an infection there is the LAST thing i need right now. anyways heres looking forward to climbing out of this hole, recovering and moving forward.
Aaron
"How am I supposed to drill if you don't keep sucking?
Suck please!" (an attending who was getting fed up with
the med student not paying attention to the field)
Getting my affairs in order on the slim chance it doesnt end well for me. im asking my surgeon to also repair any ligament or tendon damage the ex ortho didnt even check for. 3 things will happen. well one of 3.
1. ankle is salvageable. they call it limb salvage for a reason. a Ti plate and screws takes care of shattered fib. and a Ti nail called an IM nail ( Intra-Medullary) is put in THRU the talus ( the ankle bone itself and into the Tibia) and secured with Ti (titanium) screws . surgeon removes a segment of 3 bones the tib, the fib, and the talus to make a flat surface along with remnants of cartilage and bone fragments. and this is called ankle arthrodesis. i.e. it fuses ankle at 90deg. will no longer have movement at ankle. but will retain movement of foot bones for a few years. this is by far the best outcome. the desired outcome. the hardware also strengthens the bone and grafting allowing a stronger fusion. barring infection or non union ill be able to walk in 6mos.
2, is second worst outcome. a below knee amputation.. if he decides its not salvageable at this point. BUT id end up with a prosthetic, i COULD with either an airshift conversion, or a jockeyshift/handclutch, or a heel-toe shifter conversion, i could ride on 2 wheels again.
3. i dont wand 3rd option. AT ALL this would be that i dont survive it. as i said heck no !. 'nuff said.
now after i survive this, im going to check with a malpractice atty. if ive got a good case, my next move is a malpractice suit against former ortho. who had months to do something yet didnt. if this happens and i win, EJ will be repaid tenfold. and gstwin will benefit too.
if they say i dont, thats life. i will still figure out how to repay EJ ( will let him set terms on that. i promise i wont put myself in any deeper of a financial bind im already in. ANYHOO, IF worst case happens, will have someone here post last message from me. this arrangement has already been made.
will send message and details a couple days beforehand via pm. BUT ive no intentions of checking out. heck im as stubborn as my mother GOD rest her soul. anyhoo love yall. more updates to come ibpromise.
Aaron
I know it sounds weird, but im looking forward to this. almost excited. because barring anything unknown being messed up this will repair anything wrong physically with me. then i work on rebuilding. the unknowns are the muscles and tendons and ligaments. those usually dont show on xrays. old ortho never checked this. hell never did anything for it tbh. new guy is going to remove the pieces that are loose, and clean it out before preparing it for fusion. ( im asking for the bone he takes out. a souvenir if you will. to make something out of it. or to set beside my mastodon tooth. or may keep it in formaldehyde. idk. heck idk if hell let me keep it lol. but if he does..... then or if it succeeds i spend a few mos rebuilding what was destroyed. and am able to put this behind me and move on with life. :)
Anyhoo thats it for now. more to come.
Oh bonus if they will allow it, i want to video myself as anaesthesia takes effect. may youtube that lol.
Aaron
Being under stress over worrying about this procedure (risky/kinda major) i decided im going to make at least 2 maybe 3 youtube vids about it. using the kneescooter, when rolling in, i play the darth vader theme, then if allowed i want to point camera at my face, as im iv'ed and the anaesthesia is administered, and recording until it takes effect, the doc or whomever would shut it off. ( hoping this is allowed. sometimes the reactions are funny.) and finally if/when i leave, i play the theme from the great escape, as i leave via the parking garage. maybe doing a vlog as the pain meds take effect in recovery.. ( this usually results in all things hilarious.
Aaron
Going to have surgeon check tendons and ligaments as well while hes got the thing open. got my first bill from this. wtf. lol , when did ins. impose a deductible. there wasnt one before. but wth, borrowed the 970 from father. thats taken care of. all things move mwd with testing tues, and the procedures following monday.
Aaron
:2guns: here is to keeping the thread going again! >:( :technical:
Did the pre op labs ekg shows a bit of left ventricle enlargement. but other than that and a visit to the stab lab, that was about it..
Aaron
Quote from: yamahonkawazuki on April 27, 2016, 08:04:21 AM
Did the pre op labs ekg shows a bit of left ventricle enlargement. but other than that and a visit to the stab lab, that was about it..
Aaron
That's pretty good then, so here's hoping for success!!! :cheers:
i cant explain the enlargement though. not a major issue at this point. high bp not even an issue, times it was 140/90 which was borderline. unless its in relation to the (at times) rapid heartrate. (120+) idk . whether ankle is fused or removed monday, ill at least know where i stand and move fwd from there. i asked for any bone he removes, weird ? yes. but funny when displayed with my fossil collection ( especially the mastodon tooth) should be out by wed/thurs.
Aaron
Quote from: yamahonkawazuki on April 27, 2016, 10:23:23 AM
i cant explain the enlargement though. not a major issue at this point. high bp not even an issue, times it was 140/90 which was borderline. unless its in relation to the (at times) rapid heartrate. (120+) idk . whether ankle is fused or removed monday, ill at least know where i stand and move fwd from there. i asked for any bone he removes, weird ? yes. but funny when displayed with my fossil collection ( especially the mastodon tooth) should be out by wed/thurs.
Aaron
wishing you all the best of fortune. . .
Got a call 'round 3pm from surgeons nurse. the MRSA has relapsed it seems. so she called in the antibiotics to try knocking it out before monday. wth lol id rather spend 5 days at home vs 5 days there. tbh. C'est La Vie lol. plus with the weather fronts moving thru tn, its aggrivating the arthritis :technical: monday cant come soon enough.
Aaron
Jeeze, man! Sounds like your body is at war!
Eat more broccoli! :icon_mrgreen:
Couple extra days in recovery. no big deal, room to myself, hoping it overlooks the helo pad, can shoot some great video that way.
Aaron
One can only hope. LOL!
I get one of the isolation rooms. To reduce risk to myself. A few of which overlook the lifestar pad. Ill ask if I can get one Lola. I can scan lifestar radio to know when there arriving or departing. And can put tablet in windowsill
I am scared . Because this can complicate the surgery. Hoping for the best Eh?
Aaron
ill take a pic beforehand. prolly best way to show it ( the deformity currently) is while its inside the crow boot. pending succesful surgery it will be straigtened out. if not it will be amputated below the knee. the surgery involves a LONG im nail going thru ankle bone into the tibia almost to the knee. secured with a few screws sidewards. a plate to repair the shattered fibula, and a few screws thru it, thru the syndesmosis and into the tib. since there is no cartilage, he will remove part of the tib, part of the fib, making a flat surface, and remove part of the ankle bone. body will treat it like a new fracture and fuse it solid. this is a limb salvage procedure. if it fails, its gone. hoping body doesnt treat the nail as a foreign body and go to war on it. but if it works ill be able to ride on 2 wheels again. id have to either put an air shifter onto a gs ( bike of choice lol) or use a heel toe shifter from a harley. ive got one from my 03 sportster. OR ik could rig a jockey shift. remounting clutch lever onto it. theres a few ideas. OR using a 400ex ( honda quad) swingarm, i make a trike. im kinda liking this idea. it will fit with minimal modification.. anyhoo back to the procedure. whatever the outcome, excluding not surviving lol. ( i WILL survive this. pending making sure there are no other issues, at least ill know where im at and can FINALLY BEGIN healing/reconstruction. OH lol i found something at adv auto. ( was there to get a belt for riding mower.) i found a set of cordless strobe lights. when funds are avail, ill grab those for the scooter. i want badly lol. those things are BRIGHT lol.
Aaron
Quote from: yamahonkawazuki on April 28, 2016, 11:05:41 AM
OR using a 400ex ( honda quad) swingarm, i make a trike. im kinda liking this idea.
*cough* sidecar rig *cough* :wink:
Hope it goes well, man. We're all pulling for you!
That's another idea I was considering :€)
Aaron
Quote from: yamahonkawazuki on April 28, 2016, 02:13:47 PM
That's another idea I was considering :€)
Aaron
Do it regardless. Then you could ride while healing. . . :wink: :icon_mrgreen:
that wont happen. ( a medical suspension on my DL) . plus i dont have the bike or anything. BUT time i get it together, maybe a year or so, by then ill be healed or close to it. but still will get it all together first.
Aaron
Baby steps! You'll get there! :thumb: :cool:
at least ill know where i stand. [pun intended) on one leg or two. tbh with the bone density issue , i wonder if being a monopod might be the better outcome. naah prolly not. that IM nail placed inside my tibia from ankle to nearly knee, the lower leg will be metal lol. STRONG. ohh i found at auto place a strobe kit for 40 lol. cordless. +12v powered. which i can do with a drill battery. ill try and grab that when i can. will prolly be last bs item for the scooter.
Aaron
Since ill have the "happy button" in recovery, ( self admin usually fentanyl, on a timer) anyhoo, ill start consolidating the 3 word game. if ive enough time, i may be able to catch it up. granted it WILL be a monster post, but funny as heck. ( read from beginning youll see lol)
Aaron
In pre up. Labs done. Awaiting knockout IV. Will catch all on the flipside Eh?
Aaron
Quote from: yamahonkawazuki on May 02, 2016, 06:28:39 AM
In pre up. Labs done. Awaiting knockout IV. Will catch all on the flipside Eh?
Aaron
Praying for the best. . .
If I knew it would have hurt this bad postop is have not done it. Im beyond the Mrsa in december episode painwise. Beyond 15 out of 10which was in Dec. A good 20/20 now. Honestly if this window opened up fully is consider testing my wings out. Im being honest now. I skipped dinner. Which was served early. 430. Pain this severe I will not eat. even morphine in the happy button , plus a perk 10 no effect. Well no i digress, enough effect for me to update y all. I. Owe you that much. Much appreciated on the prayers. I did after all survive. So will do my best to not waste the survival prayer. Trying to change the happy button mess. Fentanyl perhaps. IINC.Unless its aDVT or a clot ink. Nothing should hurt that much. NOTHING. Love all,
Aaron
Glad you made it through. Now comes recovery! You can do it, man! I'd avoid the Fentinol, though. . . that's some baaaaaad sh*t. . .
Just think of your bike!
My happy bujtton is set to 10 mins. i had fent. when i had the spinal surgery in dec. yes it worked. from insertion point jdown i was numb. felt NOTHING. ITS STILL RAGING. i hit it on 10. they try different combinations of oral. still working on this. either fent via iv in a temp picc line or a perm one. but i agree. its hard enuf. with perks. if anyth ing hell prescribe rox. 30, to go with something iv. or rox along witk perk.. the rox tho, will only be ttemp. or vice versa. this pain however if its permanent, that window will be quite attractive tbh. because arthritis and this sh*t wont mix. im safe because im only 3rd floor. with room 1 lvl below me. this trembling cripe must stop tho.
Aaron
No worries i wont "quit" but if it keeps raging ill have it bkamped i.e. cut off. but ill end up errm nvm. major update tomorrow. i promise &"<D
Aaron
I take 2hr . . Dr mcmahon naps lol 15 scale of 10. If I can get a 10 scale there, I could own rats arise. I will video the violent wakeup and take to court. I'm doing my best to follow orders. At least their goons. Can be spotted.
Aaron
The meds are working a bit bro! ... I'm not sure what your sentence above means!... not all of it anyway!
You know it hurts when the post regarding the pain requires a few minutes of deciphering and thought to ascertain its meaning. Jeeze, man, that's rough. Keep the faith, man! The body is a strange thing, but not always easily understood. I'm not a doctor, but I do think the continuous pain is concerning. I would, however, remind you that you have a very long screw running through your bone, so its probably not going to feel marvelous. . .
Quote from: Janx101 on May 03, 2016, 04:56:09 AM
The meds are working a bit bro! ... I'm not sure what your sentence above means!... not all of it anyway!
my phone is dying. But meds are almost working. Wtf I've ad 2 folly catheters put in today. First was put in long enough to empty my bladder. My god, the pain. I moved 650ml . am unable to pee. I use a rolled up cloth to bite into. Pain. I hope it isn't permanent θ😢
i needed to have 2nd one put in. which im using overnight.. it will be removed at some point this morning. if i fail this one, i get referred to a urologist. things are painful to insert. even more so when the RN is pretty. SHE is the one inserting it. you can see where im going with this Eh? lol
:technical: technical
Aaron
Youngest daughter had her gastric sleeve surgery today, she on a 5 min fentanyl button overnight.... she is fairly out of it this evening! Lol
Get them to TENS your junk Yama ! ... less pain from catheter!
You be nice to the pretty nurse! ... she could twist that catheter in deliberate ways to de-frisky you! Lol
i went thru 6 vials of morphine. was the mighty morphine power ranger. got out this am. am at home. got a significant pain pill prescription, waiting on pm doc to ok me filling it. wished i could have emptied it earlier this am. that way it would have more to go through while waiting on ride. but alas no 8<S. dad was like you know your bleeding all over your papers? im like wtf? i dont see much of anything....... then i opened the folder. dear GOD blood everywhere it glued everything together. plus all over floor etc. my yama is working fine. ;) was a comp from the anaesthesia. told norse to give me a washcloth. shes like um why? i said for a bite block. i rolled ut up. put it in mouth and bit down upon it. then motioned to her to begin. dear GOD that pain was nearly as bad as post op. my ortho god bless him nearly gave me a heart attack. shook me lightly " HEY you okay? you ready to go home? i screamed and tried to climb over the back of the bed. followup is fri. normally its 2 weeks away. guess theyy found something. will find out what it is on 6th. but if pm doc wont ok me filling this prescription, im contemplating doing it anyways. because what ive got left ill burn thru QUICKLY.
got to dig thru stuff at house, find stuff to sell. got bills to pay. but taking catnap first.
Aaron
:o :o :o :o
What's with hospitals giving men pretty nurses when they have to have catheters? LOL! Its cruel. . . :icon_lol: :icon_lol: :icon_rolleyes: :icon_rolleyes:
THAT was the subject of my next posting lmao. the one inserting the second one. was QUITE pleasing to the eye. raises the bed up and grabs a handful. saying " you need to relax" " whats going on, i replied, "biology" i said im sorry i would elaborate but prolly not a good idea but finally i can pee lol. cept the foley, stretched it out a bit. so im peein every 5 mins. it should return to before status before too long. hoping dr mcmahon doesnt have to do anything else to it. but if he does ill bring/use the washcloth biteblock. cause i KNOW everyone heard me when first foley was inserted lol. anyhoo ill get the xrays from this on fri after followup and post pic here.
Aaron
Quote from: yamahonkawazuki on May 04, 2016, 10:25:13 AM
raises the bed up and grabs a handful. saying " you need to relax" " whats going on, i replied, "biology" i said im sorry i would elaborate but prolly not a good idea
And they always say that! LOL!
Us guys are pre-programmed to react to a lovely lady grabbing our bits! LOL!!!!! :icon_lol: :icon_lol: :icon_lol: :icon_lol: :icon_mrgreen: :icon_mrgreen:
Yama liked it, (cept for the caathing) but honkaw and azuki felt left out. :technical:
got to change the dressing later this eve. it was a bit bloody day of, post op so hosp. put alot of gauze and ace bandages over that.
Aaron
Getting ready to unwrap it to see how dodgy it looks. will update. got to change dressings anyways so might as well. besides peein every 5 mins i cant sleep lol.
Aaron
At least you appear to be doing better!
Quote from: Daeouse on May 04, 2016, 01:45:00 PM
At least you appear to be doing better!
Unfortunately maybe not. i went to change the dressing which covered the splint. i wanted to maybe grab some pics for the thread of doom here, BUT pics were bad enough where an nsfw warning werent strong enough. sure post op there will be some bleeding, but a few of the stains were fresh. also found a 1.5x3" blister which popped. fluid went everywhere. i called orthos office, nurse got me in tomorrow at 8am, my followup for fri is still on but may not need it. nurse was concerned. BUT ill be next door to hosp. so if he throws me back in i dont have far to go. damn i hope not. foot was swollen as well. course it had surgery on it and such so that i doubt will be an issue. but who knows. frig im scared. was wanting to heal so i can work on getting back into the workforce . that blister was HUGE. this is how the Mrsa issue in front of that blister began we believe. also pm doc wouldnt allow that pain med prescription to be filled. BUT allowed me to make an appt with her. i go in there on the 11th. meh just a week. but post op pain blows. but sooner i can get this fixed sooner i can return to work. sooner i can pay my bills. meh enuf of that, ill be stuck in oak ridge all day lol :"(. but cqan pick up records. (copies of xrays. i want to see how much metal ive got in there lol. more updates to come. my friends
Aaron
could be just a frac. blister. the blood stains were almost black ( right over the incision site.) some of them were nearly fresh as well. when he cleans them off tomorrow may grab pics of them. also been running a low grade fever (99.1f) normally mine are 97.5f or 96.7f anyhoo wish me luck Eh?
hitting sack now. exhausted for some reason. going to try sleeping.
btw janx hold on to that message for a few days longer :( thank you.
Aaron
here in 2 hours i find out whether i come home today OR i kneescoot across st to hosp. what concerns me is idk if myy body can handle another surgery so soon. but thats what they pay the docs the big bucks for. to keep patients alive lol. (unless doc would be Jack kevorkian lol.
Aaron
Well it went off better than i thought it would. a fresh bleeder but its to be expected, the blister , again to be expected ( basically fracture blister) most of leg below knee has them, i figured out why it hurt like hell to rest heel on ground. theres a screw there. a hole ( stitched closed of course) through which the foot long IM nail and required drill bit, was inserted. 2 incisions on medial (inside) the longer one used to saw bones flat, shorter one to insert screws to secure IM nail through the tibia ( which is INSIDE the tib)on the lateral (outside) one incision through which the Ti plate and screws. btw no xray copies at hosp. ill see if theyll let me "see" the pic of it. but will find an example pic of this. he (surgeon) was like your ankle was a f...... mess he edited himself. THEN i go pick up the walker boot, and bill collector calls raising hell. i had to hobble outside cause i got LOUD. i said ive got at least 8 or 9 screws and 1 rod in my ankle would you like pics? what charge acct off? go for it. you cant squeeze blood out of a turnip, my ankle sure, and i cursed for the first time in a LONG time, i put on my happy face voice, said "F**k you very much" she was "your welc......" heyyyyy frig im TRYING TO FIND WORK but literally theres nothing i can do for prolly at least a year. ( possibly indefinately longer) if this fusion fails, legs gone. but accd to surgeon, everything is great.
Aaron
The following i insist has absolutely NO sexual meaning in summary : i was nailed, screwed and quite stiff.
but xrays appear normal as does the repair work. however i must have pinched a nerve or popped something loose on foot/metatarsals. got pain going through the roof. i wont even eat tonight. tbh. this level of pain im not thinking like i should be.:( never hurt this bad EVER. SCREAMING IN PAIN. Er wont do anygood. convincing docs that this is FAR from typical. cant handle this musch longer tbh.
Aaron
>:( :technical: Keeping threads going :icon_twisted: :cheers:
Not much to comment on currently. other than the nerve issues lol. thats a conspiracy between the ace bandage ppl and my foot i fear lmao.
Aaron.
p.s. Heya jim
Still got 4 ace bandages wrapped up on this so i can ambulate/walk per doc orders. the im nail was 12mmX150mm got a pinched nerve or something in there. (between ortho and myself we'll figure it out. anything less than the 4 bandages, walking wont happen. going to try repurposing a pad from wheelchair so walking wont hurt as much. will see.
Aaron
Looks as tho i may have a revision surgery soon. theres a screw trying to pop thru skin. tbh it wouldnt take much. will post pic later on tomorrow. tip is RIGHT below the skin. meh sh/uff happens lol. anyhoo more updates later 8"<(
Aaron
:o :o :o :o :o
Basically a fluid buildup looking for a way out. i stood to use the and sanitiser and it let go. looked down like Welllllllllnow that wasnt sposed to happen. so i raided her supply stash 4 layers of gauze pads. and i wrapped it. so far so good. i see ortho tmrw am anyways. will deal with it then. dont see too huge of an issue. floor was a mess tho lmao. did my best to clean it. everything will be fine. it happens sometimes. blood and clear liquid. not even gross ( but not really postable tbh. i consider it mildly nsfw.) the nail shot tho will post that tomorrow via wifi. kinda cool looking in a weird way. you MILDLY press around it you will know its metal. besides i think its one of the anchor pins for the IM nail. cause accd to reports that is where it would be. will update today and tomorrow.
Aaron
https://en.m.wikipedia.org/wiki/Seroma
Aaron
ah. . .
Im going to be optimistic and say it was nothing more than that. just a seroma. more concerned about the screw. will get the verdict today on both in a few hours. if all is well, ill be happy :)
Aaron
Been gone for a few days, just got back to Ohio from Arizona, so I decided to do this > :cheers: >:( :technical: Keeping threads going :icon_twisted: :cheers:
I ( and janx ) elected you to the position of 71 hour guardsman. we do appreciate the bumps my friend :).
anyways i return to doc tuesday, to plan what hopefully will be my final surgery. both doc and i was concerned about one of the anchor screws holding the IM nail in place. one of the screws is too long. its pushing against the outer skin layer. it will push through to outside with little effort. the xrays tues. will decide whether i keep the leg or not. also a shorter screw will have to replace this one. hes concerned the bone isnt fusing yet. but im praying it will. either way i will have to be opened up to remove and replace the screw. im keeping that screw and making a ring out of it. its titanium. will make something out of it. will upload a pic of the screw pushing against the skin. its safew for work. but ill be in my office at church. will use their WIFI to do it. love yall, take care and may GOD bless yall. more updates to come.
Aaron
Going to look for work. may try to land a position at orthos place handling computer duties. ( data backup repairs etc. im broke as hell. maybe even coding and such if i pass the test. would be ideal tbh. heck hes needing the comps replaced. data backed up beforehand. this i can handle. bored sh*tless sitting here. also lined up setting up a point of sale system install at pizza place. i wont be lifting anything. just directing where things go and then i network it all. hoping i can land something :). need to. BUT i wont risk the left leg. if it fails i lose it. so i MUST be careful. anyhoo love yall and take care Eh?
Aaron
following orthos orders. i CAN walk short distances i.e. bathroom or kitchen etc. but i have to walk using a walker AND using only the front of my left foot. ( from ankle forwards) this is unnatural for me but thats only option. heck that hurts lol. pain meds dont help after that. but i spend most of freetime sleeping. ( 16hrs a day) swelling is gone, the leaks have mostlyy stopped. but the elimination of swelling exposed the anchor screw problem. that and incision sprung aa leak at his office. i tried to clean it up. ( anyone whos had surgery will have this issue at some point usually.) i need to find a stash of butterfly bandages before tuesday. pending xray results, the stitches come out. for peace of mind i want to use those for another week JUST to be sure it holds, then after this revision surgery to remove the IM nail anchor screw which is trying to poke thru skin, 1 im asking for it to make something out of it, but i want him to put a shorter screw in. the nail is a stryker G3 half inch wide by 6in long. or 12mm x 150mm. anchored by 2 screws. oh lol i will get a copy of the xray showing this. ( kinda cool tbh) if this holds i GUARANTEE, this ankle will never break again lol :) anyhoo pics coming tomorrow. an example of the triple arthrodesis and the alien screw trying to escape. next on my list of bs things to do is go to courthouse to aggrivate metal detector ppl. lol.
Aaron
Da*n. the fusion has failed. i want to cry. was examining the ankle and the screw. i flexed my foot ......the whole thing moved. including the poking screw. :"( this isnt good. i had plans for this week. including singing at church talent show on the 21st. which if worse comes to worse, i can video that, and have it played. but the fusion seems to have failed. the only part that should be moving is the front half of my foot. as it was this AM err as of sat AM. now its moving as it was pre surgery.. dang i want to give up :"(
anyhoo will post pics while at church today. but tbh may not go. will see. may call his answering svc. but idk i have an appt tues with him. that fusion is what is mostly called a "last ditch effort" they cant re-fuse it without surgery again. anyhoo will call the answering svc later on. and see what they say.
Aaron
:sad: :cry:
C'est la Vie ( thats life) going to try keeping off of it until my appt tuesday. things that shouldnt be moving are, and things that are moving shouldnt. had to possibly schedule a revision procedure for that darned screw anyways. now this. hoping he can salvage this. if not, im a monopod. no biggie ill get thru it one way or the other. but damn this hammered me upstairs. i almost wanted to give up. but no. im stubborn lol. it will work out i hope.
Aaron
This is the screw, well its under the skin but it will have to come out.(http://i84.photobucket.com/albums/k2/yamahonkawazuki/Mobile%20Uploads/0511161002_zps8jcs2pxj.jpg)
Aaron
Romorrow @ 10am i find out the verdict on this ferked up ankle GOD this hurts lol. seriously. @&^%$$ !¡¿O?!
Here's hoping for the best!
I go in friday to get screwed again. one of the screws is too long its trying to push out. gave me a wait option if i desired. i said " normally i do my best to stay OUT of an OR. BUT IF SCREW POPS THRU ive got problems. so that one will be replaced with a shorter one. he agreed with this logic. plus im getting him to allow me to keep the removed hardware as a "souvenir" lol. normally alot of places wont do that anymore. course i really dont see ppl asking for this on a regular basis Eh?
Aaron
This one should be fairly simple eh bro! ... positive thoughts coming your way! :thumb:
Yep :). getting de screwed then re screwed. the only time i can say id been screwed and nailed and quite stiff following it, and not mean anything sexual lol.
Aaron
Ah come on bro! .. let the innuendo flow! ....
Hey.... I can rhyme... anytime!
plus ill get to meet another "Dr. i love you" anyone whos ever had surgery knew of at least one. ( USUALLY the anaesthesiologist. i.e. the meds hit and you think " i love you" lol. some actually say it lol :(
Aaron
As they say in the south, " well hellllll, that waddnt sposed to happen" i figured out why the pain decreased. it was waking me up and such. but late yesterday it lessened. some blood and plasma and such on ace wrap. i unwrapped the christmas present, and as i figured, the screw popped through. i called surgeons practice, let them know, waiting on a callback from him or his nurse. either i wait til tomorrow afternoons planned surgery or they may do it today. will see. concerned cause the mrsa if in area has a DIRECT pathway to the bone now. i covered it. will post pic ONLY if i can deem it sfw/or safe for appetite lol. or i can get a bitchin macro of the screw tip.
Aaron
Here's the alien screw the Ti. Oneif its too gnarly lmk ill un hotlink it
Aaron
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/Mobile%20Uploads/0519162256_zpsv9zb1qrz.jpg)
:icon_eek: :icon_eek: :icon_eek: :icon_eek: :icon_eek: :icon_eek: :icon_eek:
This one i cleaned as much as possible, to render work safe, and abide by rules as much as possible. Dr. Mcmahon promised me the salvaged hardware ( i asked) if he was successful there will be a pic of that screw in its entirety. foots numb. and it bled too. ALOT. which is why i WONT show that pic until i judge it worksafe. or if not ill convert it to a url explaining things ;). went to church talent show. but was in too much discomfort to sing. all stitches were removed. EXCEPT for the revisions stitching. this SHOULD be the last procedure. ( hoping) cause theres nothing left that can be done. but im too stubborn to become a monopod willingly. ANYHOO, more updates tomorrow. as well as mon and tues. :). Heres hoping for good news Eh?,
besides me finding a new pain doc, theres not much i see in near future :). painful ? very much, :"(. but looking fwd to PT and mending.
Aaron
i semi stumbled today. but it worked out. doc said not to TOUCH dressing/bandages , but it would NOT hold any more. now THAT IS a pic that will not be posted. calling it NSFW would be giving it aqq compliment. but following safety5 protocol, those got bagged so he can see it. as much hardware thats in there it SHOULD be sturdy & work. other than the drainage issue ( should figure out whats up @ the F/U appt.)
Aaron
This is the screw in its entirety. He didn't put another one in due to bone softness, just tightened everything up.
Aaron
:)
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/Mobile%20Uploads/0524161923_zpsqodeeddd.jpg)
That's a heck of a screw!! .... :o
almost 3" end to end. imbhoping thats the end of it.
Aaron
Good lord! :o :icon_eek:
not quite the end....yet. back in hosp in CCU infection is affecting my heart. ill be here for a few days lol :S :(.
but hey i can postwhore lol
Aaron
Quote from: Daeouse on May 26, 2016, 07:07:12 AM
Good lord! :o :icon_eek:
My thoughts exactly!
You're in my prayers Aaron, for sure
if it werent for me getting sick yesterday eve, .......''''''''Nuff said.
but hey ive got cable tv and wifi
Aaron
Had cardiology stress test canceled today due to low bp. Instead I get a heart catch tomorrow midmorning. They thought I might have had a mild heart attack due to some a mb normal labs. Idk. Tomorrow will know. Can't wait to get out to b begin working on rebuilding Lola.
Aaron
Lol just got finished with heart test. Turns out it WAS a mild heart attack. And 4 blockages. Which he says they should be able to handle with medication.
Aaron
Y'all take it easy and do what doc says yeah!?
DEF. the ticker i wont mess with. was my ADSS (Aint Dat Some Shiite) reality check. saw 4 occlusions which can be managed with medications. cant eat like a 20yo anymore lol.
Aaron
just now got home. got something to eat. friggin exhausted. ill end up sleeping 2 or 3 days. lol. will have to make appt with cardiologist as well
Aaron
2 or 3 days off your feet!? ... good stuff for ankle! :thumb:
Will have to put off employment search indefinately MAIN reason is the cardiac issue. literally had no clue until yesterday morning. well minimal clue. i couldnt handle a stress test, so they CATHed me. saw 4 blockages. i presented with a mild heart attack cardio theorises, which combined with the recent surgery threw me into DKA. i tried to sleep it off. arms hurt like utter hell. the iccu doc said your diabetes almost killed you. i said i partially agree. said i h adnt had a DKA in a LONG time, and until the DYE CATH, I had little clue. my hypothesis was that the surgery combined with the heart thing, threw me into a DKA fit. cardio says it doesnt require intervention....yet. we can try to handle it for a while with medication.
im all up for that. will get copies of these films thurs when i see my endo, and then make cardio appt and show that to him. so ill be sidelined for a LONG while lol. i could work around the ankle. but ive only got 1 ticker. this COULD partially explain the swelling in the heart the ecg/ekg detected. along with the rapid heartrate. kept setting the apnea alarms off. my resp would go to 0 at times. i was relaxed and would breathe slowly. the machine didnt like this. i could hold breath for 20 secs ald alarms would go off in my room as well as at the station. i found this out while doing my breathing treatments. id HAVE to hold breath. and every so often this would happen. so they adjusted settings. so it didnt alarm nearly as often.
Aaron
Setting knee scooter build aside MOMENTARILY. with the recent cardiac event, ive a choice. since its now part of my history, and future too, i save about 20bux or so and either pick up a medic alert bracelet to cover this, OR i make an addition to my medic alert tattoo on wrist/forearm ( says diabetic now, but add heart or cardiac to it also.)
Aaron
So far was put on lipitor 40mg 1x daily picked that up today. was on a heparin drip since day 1 until day before going home. will see what cardio plans. hoping something OTHER than lipitor. ( i do like grapefruit and thTs a NONO) AND we figure out whats next. also have followups on my ear tubes, along with my ankle. looking fwd to the end of this mess. the heart issue will be going on, but can live with this.
Aaron
>:( :technical: Keeping threads going :icon_twisted: :cheers:
¡ Danke ! i royally pissed off a b*tchy woman today following a doc appt. shes going off (undeservedly) against the receptionist. i have a widget that sounds like a PISSED off cat on my tablet. i hit that and you hear her exploding down the hallway.
priceless. idk what set her off but venting on someone without reason just aint cool. tomorrow i have the stitches pullled from my revision. still trying to get a copy of those images along with the imaging from the heart incident. THAT i can do after the surgeon appt tmrw.
Aaron
Frackin DKA, at risk for it every time ive been hospitalised. was in may 2nd or so for the fusion procedure, may 20 for the revison procedure to remove that screw (pictured). developed DKA may 27, got out jun1 ( DKA and the minor heart attack troponin levels suggest cellular damage.) ANYHOO it tried to happen again. Blood glucose levels over 600. for 3 hrs. last ditch effort gave 10u of R insulin along with 10.6u from my pump infusing humalog. its down to 531 which is still high. but its going down now.
Aaron
Glad you caught it fella! ..
Was talking with the missus other evening... one of her work colleagues busted her hip/femur (just below the actual hip joint) last September, had a plate and screws put in..
Has had the devils own job of being able to have the bone knit properly and also the wound to heal all the way... kept on getting minor infections and whatnot. ..
Lady was talking with a medical professor a few weeks back... about the dramas and so on.... he suddenly asked her if she ever had dramas with nickel earrings and jewellery? She said oh don't even get me started on that! Had troubles for ages/years with cheap jewelry...
He said so you're allergic to nickel and that plate in your leg is mostly nickel or nickel plated.... no wonder the healing is wrong! Body is fighting allergic reaction the whole time!
They are now looking into the situation with renewed interest! Whereas before it was 'oh but you're a bit older and it takes longer sometimes! '
Just thought I'd pass the concept along Yama-bro... you have had similar issues yes?
all hardware i have is a titanium alloy. the 12mm x 150mm (1/2 " x 6") calculated it was 5.97" so 6 is close eenough lol.. that one is INSIDE my anklebone and tib. the plate on other ankle is on the outside , also a titanium alloy so far no issues other than pain. ( on the left nail job) plus its still draining. sutures pulled yesterday. OH a correction, it was high levels of troponin theyy found its level on the 27th was .533
upon discharge it was .284.
>0.100 indicates myocarial injury
i was diag. with coronary artery disease. (basically i have been eating tasty food. i.e. if it tastes good its bad for you.
i made appt with cardiologist. will figure out plan on 13th.
Aaron
because of the cardiac issue ill have to obtain one of those medic alert systems. theyy run about 40/mo. but would b ei deal. blah, i dont need the extra expense but in this casei t would work
Aaron.
couldnt sleep. pain in L armpit area. took an 81mg aspirin. it subsided. ironic. the heart will probably kill me before the diabetes. hey as long as its one of those massive ones. i.e. im dead before i hit the floor.
literally had no clue until the 27th. had chest pains before. but thought nothing of it. as im only 41
BUT if play my cards right ( proper foods etc. eating the tasty bad ones with moderation) i should be able to postpone this indefinately or a long while if anything.
oh since i couldnt sleep, i cranked up the yamaha rx v665 (ht receiver) set the volume to -10 (ranges -80 - +15) and jammed my playlist. specially pink floyd/comfortably numb. had it to +15 ONCE. blasting bach brrandenbug concerto. my god that was painful but wow sounded amazing. at those levels the chimney from my franklin stove harmonizes with it becoming a defacto external speaker. got 2 speakers ive got to put in proper places it will sound even better. ( have to get a roll of wire first.)
Aaron
Anyhoo back to the jam ;)
I have what hosp cardio called " diffuse coronary artery disease" i find out monday what i will have to do to treat it.
Aaron
:o :sad:
besides eating right of course lol ;) . i wonnt give up the feel good foods. NEVER lmao but will have to practice the longstanding idea called moderation. :(
Aaron
saw the endo today GEEZ shes adolf hitler in drag. but VERY highly recommended. wasted -5 seconds in pointing out what i was doing wrong. i find out ive 4 blockages. point being go ahead and eat the feelgood foods but do so in moderation. then went to cardio, put me on a blood thinner ( plavix) then i knee scootered down road 1/4 mile to the stab lab. then had to hustle back to catch my ride. in 92f heat lol (blockages at 25%, 40% ,15%, and 70%. ) he said wed see how this does. try to delay stenting or bypassing as long as possible.
Aaron
Ummmm ... Ok they are the docs... But delay stenting? Because of risk?
Friend of family had a heart/blood thing going on... He wanted thinners..doc took one look and said we doing it today!! He felt better even by next morning!
Each case is different of course..... But I hope you did ask why delay that stuff?
wanting to see if the meds will work first. the cold shills at 80f were weird. but most of time those subside. ( side effects) im tired of all of these meds lol.
Aaron
:o :o :o :o :o :o :cookoo: :cookoo: :cookoo:
the cold chills are okay. as long as i dont get spontaneous nosebleeds im good. between the plavix and the lipitor, the heart has a chance to form its own bypasses. he seemed confident, and his opinion mirrored that of the hosp cardio. id be willing to take chance.
Aaron
I Found out it wasnt a definitive Myocardial infarction aka heart attack. but hosp. cardio said it was certainly acute angina. ALTHOUGH a heart attack could NOT be ruled out. the statin/lipitor is helping out to bring the GOOD cholesterol up.. the HDL. the bad aka LDL cholesterol never really was that far out of whack. my potassium was high. heck it was bouncing about.. Oh, i was able to locate another huffy kids bike for $5. using 2 of the wheels for the front. i cant use one of the other wheels since theve got an angle to them. brakes wont workk too well. but i can find a straight sidewall wire wheel for that. the weight savvings will help me out greatly. the plastic wheels were HEAVY. durable but heavy. structurally the project is almost finished. except for acquiring a straight walled rear wheel and the bicycle air horn i want. but in meantime, im taking it easy on my ticker until we figure out best plan of attack on it. the feelgood foods ive cut back on greatly. i.e. moderation.
Aaron
a potential crisis developing with the ankle. its moving where it shouldnt etc. i had to go pick up dinner along with a load more of gauze. i placed a call to ortho, and his nurse. she seemed a tad concerned. specially with my plavix wreaking a slight havoc. ( awaiting response) will photo the pitting edema . its safe for work.
Aaron
The first one is under the cast sock. The EXACT spot where that It screw came through skin.
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/Mobile%20Uploads/0616161543_zpsu8nzm7am.jpg)
Type second one is the pitting edema on ankle and foot. Its swollen like it was when it was broken in August.
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/Mobile%20Uploads/0616161544_zpswwtamrjj.jpg) this shot was 10 minutes AFTER I made the test impression. Now am starting to get worried. :angel:
Aaron
I have to go in the AM. to have my leg examined. PLUS I CANT PEE. this may end up putting me in the hosp. i really DONT want to be cathed again. have a feeling ill need am beyond scared. since my fused ankle isnt fused anymore. 8<"(
Aaron
Not good bro! :(
You have been following their instructions to the last letter full stop?
Wasnt able to make the doc visit got violently ill, also the pitting edema has worsened. I've got a feeling ill end up up a monopod. Things that AREN'T supposed to be happening, ARE. Oh, I ordered a 115db AirZound airhorn for my knee scooter. Here's one of them in action
Aaron
I examined both the anterior and posterior ( front and back) and i notice a DEFINATE angle again. another clue is my crow boot fits again. ill give them a yell monday plus the bleeding along with fluid leakage. the angles would explain the significant almost severe pain. there WILL BE YET ANOTHER surgery. now whether its a major revision/repair OR it will be amputation. whichever way it happens im ready. i will post pics of the ankles. awaiting daylight for better light.
Aaron
Got the pictures taken. ive tried to edit out the NSFWness. however this isnt possible. so what ive decided to do is to host via photobucket, and modify the url so it will contain the needed warning. will do this after a bit. going to try a bit more photochopping. may end up calling my ortho to figure out the next move. which probably will be the ER.
Aaron
Quote from: yamahonkawazuki on June 19, 2016, 08:48:50 AM
Got the pictures taken. ive tried to edit out the NSFWness. however this isnt possible. so what ive decided to do is to host via photobucket, and modify the url so it will contain the needed warning. will do this after a bit. going to try a bit more photochopping. may end up calling my ortho to figure out the next move. which probably will be the ER.
Aaron
:icon_eek: :icon_eek: :icon_eek: :icon_eek: :icon_eek: :icon_eek: :icon_eek:
Turns out leg is structurally sound and non infected so it stays lol.
Aaron
Yay! ... you worry too much! ;) ...
Did they say why flex/movement tho?..
Just a thought but extended light or no use and your muscles (main/joint holding) may allow more joint movement than normal?
Hooray for bipedal!
use is sposed to be minimal. ( no heel use) and basically for now, more of the same. ( keep elevated, use minimally)
Aaron
The air horn arrrived today. did something kinda stupid, i squeezed trigger on it thinking it MIGHT be pressurized........it was lol.
ill shoot a short youtube of it once install is complete.
Aaron.
115db is LOUD when only 3ft from ear lol blast was MAYBE 1/10 sec.
:o >:( three days again? :technical: :2guns:
2 weeks or so before next doc appt. goin batsh*t crazy sitting idle. the airhorn i put on scooter is WTF LOUD. will have to youtube that on porch. lol
Aaron
:o >:( three days again? :technical: :2guns:
Almost, except for a few hours lol
Aaron
:o >:( three days again? :technical: :2guns:
not yet but close :) lol.
Aaron
everything still attached?
so far cept the heelbone pops when i have to walk on it. (sounds like youd be popping a knuckle) keeping an eye on this. but other than that, all is well.
Aaron
Quote from: yamahonkawazuki on July 04, 2016, 07:00:40 AM
so far cept the heelbone pops when i have to walk on it. (sounds like youd be popping a knuckle) keeping an eye on this. but other than that, all is well.
Aaron
Sounds like improvement! :thumb:
indeed. the heel thing ill try to hold off until the 19th. (follow up)
Aaron
Quote from: yamahonkawazuki on October 28, 2015, 12:26:22 PM
I seem to be boring people with this thread. although no ones said anything. its a feeling i get. i know its true because id update it, with relevant info and id look at it from someone elses POV and think Wtf okaaay? im reading this why?
Well I'm just up to this post atm, so I thought I'd answer. I started reading it this morning because of the title, drs advice, heed it. I thought it was prescient for my situation as I had a small (7mm) suspicious thing in my prostate, discovered a year ago after a high psa reading, 10. Doc wanted to do a guided biopsy but I thought, 'f%$k it' what's the worst that can happen. I don't really mind dying, but I could end up paralysed which would be no fun. So the Doc really implored me to go back to the specialist. That is why I read it anyhoo.
But even if no one reads it, who give a f anyway. It's interesting, if only to keep your sanity. I noticed that you have had lots of boring moments, so I thought I'd suggest to you the concept of audio books, personally I listen to stuff all night, but they are mainly scientific lectures which will go into my dreams and I listen over and over. They might not be to your taste but there are normal audio books that are an absolute delight, especially if read well. Off the top of my head something like Bill Bryson's "A short history of nearly everything is fun".
If you have some way of listening to mp3 files, I could send you a bunch of stuff. Just a thought.
that would be cool. ive got ways to listen. i do the same thing alot of the time :)
Aaron
almost done with the knee walker build. it will end up like patricks :( huhsky gs. ( purple and white) ill paint the frame purple and white 2 tone, put wire wheels with whitewalls on it. going to try to have it finished in 3 mos. ( when budget allows, will get enough purple and white, 2 coats each, then 2 coats of clear on it. got the delta airzound airhorn (115db) installed. (also trying to figure out how to motorise it. no info on that. so this will be a first on that. looking fwd to finishing this aas a tribute to patrick. :(
Aaron
Jeez foot swollen up huge again. ( due to the charcot) ive been the definition of lazy. so activity isnt to blame
:technical: lol. ahh well C'est la vie Eh?
Aaron
Quote from: yamahonkawazuki on July 09, 2016, 04:16:50 PM
--snip--. ive got a rant but its going on the doc thread. --snip--
Aaron
:icon_question: :dunno_black:
Had to calm down a bit. my pm doc discharged me due to "erratic levels" in my whiz quiz. so now im going to be forced to do it sans pain relief. i had plans on kicking a nearly decade relationship with pm docs ( mostly diabetes problems related but recent fracture issues as well. , had plans on kicking this toward end of summer. this as of saturday forced my hand. ankles raging but i figure its only a 2mo premature start. maybe go into a rehab type of place ( outpatient if i can swing it) cause ive been prescribed those like i said close to a decade. will see how it goes :)
Aaron
Good news and GREAT news. ive decided to get off the pain meds. (prescribed for nearly a decade) i got into a "rehab" facility. thats the good news . the GREAT news is its on the beach in san clemente California. sooooooo ill be postwhoring ( when able) with a view. insurance covered it. i will be there Wed. the 13th at 430p their time.
Aaron
Excellent! ... a sunny change of scenery and some chill time!.... :thumb:
Is it near Orange County? ... drop in to see OC Choppers! ;)
Its IN orange cCo.I fly into orange county airport err John Wayne airport lol. But it seems i may not have net access. Or not permitted to use it. Sooooo possible I may be scarce.
Aaron
Put your hacker deck in the suitcase and blow thru their web security! Lol ;)
False alarm. I'm out for a week. From then onwards during midday
Aaron
:o >:( keeping thread alive :technical: :2guns:
:o >:( still keeping thread alive :technical: :2guns:
Hoping Yama is getting thru his "holiday" with minimum drama! :thumb:
working on leaving southern california. broke as a whore in a convent, nothing is being done. closing on 2 weeks. funny thing , other day saw an aston martin vanquish ....WITH FART CAN EXHAUSTS.
aaron
:o >:( Keeping thread going. :technical: :2guns:
:o >:( Keeping thread going. :technical: :2guns:
:o >:( Keeping thread going. :technical: :2guns:
Fart cans on an Aston?!.. say it isn't so! ;)
:o >:( Keeping thread going. :technical: :2guns:
Hope Yama is okay. :icon_question: :dunno_black:
Have received no word thru back channels so have to assume he is fine but still incommunicado. .. these detox things take time! :thumb:
:o >:( Keeping thread going. :technical: :2guns:
:o >:( Keeping thread going. :technical: :2guns:
:o >:( Keeping thread going. :technical: :2guns:
:o >:( Keeping thread going. :technical: :2guns:
:o >:( Keeping thread going. :technical: :2guns:
flew from so cal to dallas. now leaving dallas via bus. 17 hours of hell awaits. med stuff unccertain. have to locate new docs upon arrival in knox tn
Aaron
now leaving little rock AR. NEXT STOP MEMPHIS. home of elvis the pelvis. frig the ac on this bus is wreaking havoc on the fracture lol :"(.
Aaron
Yay! Yama is back! Welcome bro! :thumb:
geez ark is flat lol. jamming bach "cello suites prelude by yo yo ma, along with beethoven / brandenburg concerto. trying to keep awake. they seem to like putting the bus terminals in the hood. :technical: will grab a pic when i hit memphis youll see. got to call surgeon for followup today as well.
Aaron
If you think Arkansas is bad, avoid Kansas! The redeeming qualities of Kansas are the little signs that say "Now entering Colorado" or "Now entering Oaklahoma". Well, that and the absolutely stunning view of a "Super Moon" I got many years ago as I was driving from Indiana to Arizona.
in memphis @ new termm. no dodging bullets here...yet lol
Aaron
some semi good news :) ortho said its trying to grow together. so as long as i stay off of it as much as possible, ill be good. i see him again in 2 mos. do need to get my paws on another set of bars for the knee scooter, and bar ends too. then that end will be ffinished :). searching in the parts bin for those things. ( hoping against hope lol).
Aaron
:o >:( Keeping thread going. :technical: :2guns:
Okay, now I'm in a hospital till next week, maybe Tuesday, can someone pick up the slack on keeping these threads alive for a while?
Please?
Thanks.
Jim
you got it my friend. may i ask whats up? :(, hoping and praying for a good outcome ;).
Aaron
Reckons he's got carpal tunnel or rsi fracture around wrist from all the extra keyboard work while thread saving! :thumb:
that and the hammer swingin emotes lol. baah he deserves some time off. :) ive been trying to clean my house up. hard to do on a recovering fused ankle. but i was searching for my bt speaker (808 canz) i used it alot along with an old smartphone/app for a back up beeper. = LOUD lol. was searching for it whilst cleaning. but ankle complaining so quittin time for now. after all only want good updates not oops i screwed up again lol. although btwn now and nexxt ortho appt, i might Buddha Loves You about the weather fronts aggrivating it.
Aaron
YAY found the 808 speaker. at 4 effin 30 AM. THEN II MISPLACED THE MP3 PLAYER a friend of mine gave me. i had to locate it. found at 5am. i have to use it to tune fm radio. too much electrical noise. its affecting the yam rx v665` s tuning ability. FINALLY got 93.1fm to come in. (80s pop). once ankle calms down, going to try running a piece of coax to my franklin stove. (hadnt used that in a while) but it would be great if that works. cause the mp3 players tuner works great when set on top of the franklin. ANYHOO lol will give a summary of my 6 week hiatus maybe later on today.
fun trying to live on a level 8/10 pain scale. but wth goin for iit. doing my best to stay off the pain meds. (wiill cover all of this in the summary later today :)
Aaron
If i were a betting man, id say a front is coming through soon. ankle is burning. im guessing 24-36 hours from know ill know. just hoping the healing continues and this barometer sh*t minimises.
Aaron
Good to hear you are at least partially on the mend mate!
its a slow process, and i am a tad impatient at times lol.
Aaron
Mentally im at my wits end. am tired of hurting. on the pain scale im at a solid 7 to 8 on a normal day. btw the scale is 1 to 10 err 0 to 10. when the weather fronts come through i hit a 9. i made the decision to quit opiates because ive been on them since 2009. i.e. my tolerance has built up to the point where theyre largely ineffective. had 3 shots of dilaudid christmas eve when i got hit by mrsa on the fracture site. my pain scale was close to 15. mrsa/staph is a multiplier of pain. i can handle 8 and talk to you and youd not know. that night i was crying. anyhoo, i had planned on quitting at the end of august because of that incident. i had been prescribed 3 percocet 10/325 per day. for perhaps 5 years. really cant get much more without going to a patch ( fentanyl) or an implanted pain pump. and i dont want to go that route ( either one) i know fracture recovery is a slow painful process....
but due to my tolerance i have to stop. i WANT to stop. i must reprogram my brain to where i was before 2009.. i took that first step in july when my pm doc dismissed me for erratic levels of pill usage. ( well sh*t woman, fractures will do that. having a major surgery on the ankle lol.) i put myself through rehab beginning 4 days after wonderb*tch dismissed me. dismissal on 9th, i call facility on 11th im there on the 13th. in southern california. 2 weeks later im in dallas/grand prairie tx. where i was until aug24th. im home on the 25th. but still in significant pain. cant handle it any longer. :technical: i may have to go against docs orders ( only mild weight bearing at least until nov, and return to light work. 1 im broke as a whore in a convent, and 2 i need to get around ppl to get my mind off of the pain.)
im going to outpatiend counseling 4 days per week. to basically figure out a way to handle this mess. i set up an appt monday with a new general prac./ pm doc to figure out a way to handle my diabetes AND pain issues sans opiates. ive been opiate free since july. but that fight alone is hell lol., at bus terminal in dallas, a guy tried to sell me drugs, i declined. at terminal in texxarkana, same thing, same answer. then in little rock, a guy offered to give me a pain pill for a half dozen cigs. i gave him 5 bux told him i didnt want the pill. ( that 5 came from the sale of a bic lighter i found in tx lol) another guy tried to sell me crack in memphis. geez wtf. literally W...T...F maybe it was karma for farting on the plane and making that little girl cry. heck i thought the little boy with major BO on the bus was payback. idk how i can deal with the discomfort much longer. ( unless i draw) but i have to return to work somehow. i figured out i can do my old job sitting most of the time. anyhoo am sorry about this pity post. but i owed for my absence and had to vent/ lay my soul bare. please forgive me. the ankle IS healing though. but at this rate ive got several mos. more to go. then the PT will happen. anyhoo this covers pretty much everything my friends. im doing the alphabet with my ankle. i usually make it to j before i have to lay down. will update again soon.
Aaron
D*** Yama, the whole situation is a b****, but remember, there ARE people out here that are keeping you in our prayers.
btw, I finally got out of the VA hospital Saturday afternoon, had to take a nap when I got home, just woke up.
Oh, sorry about the mystery, just didn't think about saying what I was going in for.
They put in grafts to replace my left femoral artery from my groin to half way down my calf.
When I woke up after the surgery they wanted to put me on a morphine pump that I could activate every 15 minutes if i needed to, but I told them NO NARCOTICS, they then tried to push Oxy, and again I refused. I did say I would take Tylenol though. (It did NOT help much however.)
I stuck to that decision, but, if I EVER go through anything like that again I WON'T be that stupid a second time.
That s*** still hurts like a b****.
id ssay it does. in april when i had ankle fused, i was on the morphine pump/ happy button.. which i could hit every 10 mins. working on alternatives for next time. hoping i dont need stents for the coronary blockages. will know in a couple mos. still feelin the fusion though. i get relief when i lay down/ elevate it. but when i do that, i sleep. so i try not to do that often, otherwise id screw my sleep schedule lol.
good to hear youre alive and kickin ;)
Aaron
Quote from: yamahonkawazuki on September 10, 2016, 09:30:38 PM
...snip...
good to hear youre alive and kickin ;)
Aaron
Oh trust me when I say, it's going to be a while before I voluntarily kick anything. :o :nono: :cry: :oops: :cheers:
Yama.. screw your sleep schedule? ... right at the moment, with no real pressing life items on your schedule. .. why not sleep when you feel the need? So what if you fall asleep in the recliner?! ..
Sleep is good for recovery too brother! .. lets your body rejuvenate what needs it... without extra demands on your system! ... apart from monitor/medicate your diabetes and rehab exercises. .. what exactly do you need to schedule sleep patterns for? .. not taking a shot mate but I'm puzzled here!
ive perfected the art of the cat nap. just sometimes if i do it at the wrong time, it backfires later on. (when it truly matters)
Aaron
:o >:( Keeping thread going. :technical: :2guns:
vielen dank my friend, going to talk with doc tomorrow about vivitrol injection. there are nno surgeries on the radar. this will help with the withdrawals. will see.. just will have to HTFU. AND DEal with that. but something i must do.
Aaronn
If anaesthesia is needed for whatever reason it can be reversed. had the ankle fusion not happened, would have quit these things A LONG time ago.
Aaron
:o >:( Keeping thread going, again. :technical: :2guns:
:o >:( Keeping thread going, late again. :technical: :2guns:
thank you my friend. approqching daay 20 sans pain meds. ankle appears to be solid. jjust takin it easy on it. only LIGHT weight bearing thusfar.
Aaron
:o >:( Keeping thread going. :technical: :2guns:
vielen dank jim :)
i need to replace this phone soon. keys wearing out. double typing at times lol ( all of this postwhoring i guess lol) but bes 99cents i spent at verizon lol. time to replace it. anyhoo
the ankle appears to be strengthening. the gabapentin and mobic helps with pain. doc said "light weight bearing" so i walk little on it .. i find out more oct 26th. monday i see the cardiologist. to find out if the heart is bypassing its blockages, or if stents need to be put in, or bypasses. (hoping it does its own repairs tbh. the plavix helps with that.
Aaron
:o >:( Keeping thread going. :technical: :2guns:
Danke jim :)
doc told me light weight bearing. i kinda over did it today. but still kept it light. ankle told me " ok thats enough, my turn"PAIN plus that of the passing cold front. lol i was not happy. spent rest of day on scooter. i goosed someone with the airhorn lol. for some reason i was considering furring the scooter. if i do that, considering purple and white for addy. or orange and white for local team (ut) idk trying to talk myself out of it. ive half the funds avail. to order the supplies. someone talk me out of this madness lol.
Aaron
:o >:( Keeping thread going. :technical: :2guns:
vielen dank my friend :)
Aaron
Going to fur the knee scooter. in the colours of the local favvorite university. will be orange and white ( ut knoxville) dont particularly care for the team tbh ecept for the ladies division, ) but flying the favorite flag, specially on game day has its benefits. going to attach it using auto grafe velcro so it can be removed and changed on a whim. the other colourscheme will be purple and white. in tribute to addy. :(
talking father into spotting the funds to cover materials. may have this done fairly soon :).
Aaron
Had tubes pulled and ears ccleaned sans anaesthesia. stung and hurt but was tolerable. next on list is the heart. will see what he wants to do next monday. now the ankle, feels solid. been walking on it LIGHTLY. today damn it hurts lol. but its still solid mostly. i find out its status on 24th i believe. doing PT sans anaesthesia will be fun lol. but strangely am looking forward to it.
Aaron
:o >:( Dang :icon_exclaim: Late again :icon_rolleyes: :technical: :2guns:
i feel like death warmed over today. almost flu-ish . yet got vaccine over a week ago :technical: unsure about ankle. swelling has subsided for now. which is a good thing. cept sandal falls off easily lol. i dont see ortho for i believe 2 weeks from monday. will know then. i see cardio on the 10th.
Aaron
:o >:( And again, keeping. :technical: :2guns:
updated in rant thread. :(
Aaron
:o >:( Late again and still keeping. :technical: :2guns:
:o >:( And again, keeping. :technical: :2guns:
and thus begins yet another week of doc appointments :/ have to call and confirm ortho appointment for following week. and set up endo appointment as well.
Aaron
I go friday to the surgeon. will try to get a copy of the xray. ill get the status of the fusion. and see what happens next.
will get ahold of dr bunick as far as the fffollowups to the recent bloodwork. will report back. friggin tired of this tbh lol.
Aaron
FINALLY got a copy of fusion x-ray. Doc says although it looks good, still unsure of ultimate outcome. So take it easy for now.
(http://i84.photobucket.com/albums/k2/yamahonkawazuki/Mobile%20Uploads/PicsArt_10-21-06.37.08_zpsphgyuikq.jpg)
Aaron
baah heart skipping beats and then pain in left arm along with numbness. wish this shiite would cease :technical:
Aaron
next doc visit is 7th of dec..
unless i have to deal with it sooner.
Aaron
:o >:( Late again and still keeping. :technical: :2guns:
got until the end of year to have the im nail removed. been averaging 9 on vas scale painwise. like the irs its quite taxing. and thhen theres a front coming through early this weekend. :technical: btw danke jim :)
Aaron
:o >:( And again, keeping. :technical: :2guns:
Danke jim :)
going to call ortho monday and see if he'll see me sooner. vs dec 7th. hurtin like utter hell. quite taxing :"(
Aaron
:technical:
:o >:( Oh well, I tried. :technical: :2guns:
sorry :"(, dealing with problems with pin. may have to get it removed if it doesnt ease up. last few weeks have been hell. :technical:
Aaron
just got back from ortho. odds are ill be a mono-pod first week of dec. :technical: doc was rather frank about this.
Aaron
Going to see my doctor tomorrow! First time since 2011 lol !!
Mom's been after me to get a check up finally... so here I go :)
definately. i may push to have it done sooner vs the 1st wk of dec. to make use of the insurance. anyhoo i digress, heres hoping all goes well with yours Eh?
Aaron
Thanks yama!!! all should go well... had my bloodwork done last Friday and they should have faxed it over to my doctor by now. Will be interested to see if it shows why the hell I'm always so frozen cold. I know my iron is always lower than dirt but I'm thinking thyroid issue maybe too. :dunno_black:
iron deficiency anemia ill bet. been dealing with this myself. if thats the case, iron pills will help. doc will tell you for sure.
Aaron
I'm sure all the beer I drink on a daily basis doesn't help :icon_rolleyes:
Ehhh, as long as your liver aint complaining ;)
going to call ortho in am and get this process started.
Aaron
Dark beer or Guiness is good for iron IIRC?
so i hear :)
Aaron
trying to getg it done monday. ( seeing if i can get that opening)
Aaron
monday by noon im a monopod.
Aaron
its weird, the finAlity is setting in. in 36 hours i will be a monopod. my goal is eventially with a prosthesis, to rride a moto again. a gs preferrably. normally wsithout converting to trike. sounds weird, but im looking forward to it. to being mostly or almost pain free ( after recovery ) 1st step is grab a set of toe clips from amazon or walmart and relearn how to ride my bicycle.
Aaron
20 hours from now...
Aaron
12 hrs and 15 mins from now ......
will post again when im going into prep room. (before they snag frankenphone) lol
Aaron
6 hours til go time
Aaron
well its go time !, lets get this sh*t done. will update in a few hours when finished iif all goes well.
Aaron
been a monopod since middday monday. will post pic (the CLEAN pic) i..e. with jammy bottoms on. may have to get it worked on again if it springs another seroma (blood pooling underneath the skin. i had to have a babysitter lol because i kept trying to get up. that sh*t was painful. i need to save funds to purchase a big butt seat ( a BBS lol) so i can use my scooter from a seated position. ohhh and mr foley had to visit, along with his catheter. when they said that, i asked if i could pick the nurse to do it. they agreed. so i chose that gorgeous filipina we had on staff. been flirting hard with her lol. to beat all she didnt seem to mind.
Aaron
(http://i.imgur.com/AiCARWOh.jpg)
ive fallen twice at home. (both today) 3x at hosp. hence the need for a "baby sitter" mr foley and his catheter came calling. i asked if i could pick the nurse who pput it in they said sure np. so i chose patricia a 5'5" 115lb filipina i thought i was dirty minded. she said behave aaron, ill have your di*k in my hands, i could cause yoj all sorts of grief. i asked her to grab a washcloth so i could use as a bite block. anyhoo zhe got it in quickly, i blurted out " whoa heh i love you" she blushed lol. this phantom limb pain im dealing with now. oh funny thing was they caught me standing in the buff, ( with gown on) they said "why are you standing? NO ! i blurted i um uh cant find my pants, or my underwear. plus i got to pee BAD. they said " umm lol 1 your wearing a hosp gown, and 2 youve got a catheter. ( they had to tell me 5 or 6 times i had a catheter. lol. anyhoo they want me to enter a physical rehap centre until the stump heals. idk, but it might be a good idea. anyhoo more to come.
Aaron
goin in tuesday for followup. its bleeding from that seroma. i SHOULD have told doc i use scooter from a seated position. he freaked out lol.
Aaron
Going in for follow-up Tuesday. Its been bleeding, still is. Its soaked through the padding. Of it goes through the ace bandage ill. Go to Er. Btw found some battery operated Christmas lights. 7 dollars got these and 3 other strands. Right now live got 2 red, 1 blue, and 1 white mounted. I've 2 whites and 1 red left over. May use those on my Christmas hat. Anyhow here's a pic. Will take another tomorrow during day, minimizing glare.
Aaron
(http://i.imgur.com/BCTWD5F.jpg)
got results from pathology @ docs yesterday. there WAS an infection in the bone before the amputation. anyhoo the amputation SHOULD have removed all of the infection as is. have only fallen 2 times since monday. ordered a bicycle seatpost saturday At cedar bluff cycles. will attach my BBS ( big butt seat) to it. to complete my conversion of the kneewalker/s so i can use either one from a seated position. will update.
Aaron
hoping , post stumping, that the bone infection is gone. this is getting old quickly.
Aaron
Keep :technical:
thread :2guns:
going! :police:
ya :embarassed:
bunch :nono:
of :cookoo:
slackers! >:(
indeed lol. just got back from 2 doc visits. a hellish day due to rain. ( and eventual basement flooding lol :( )
Aaron
while checking different styles of prosthesis, i happened upon a socket cup upon which its owner put " i do my own stunts" upon another one its owner put " 1 foot in the grave lol"
Aaron
Lmao
http://www.fredslegs.com/styles1.htm
Sleeve covers for the prosthesis
Was eyeballing the fur look one. Or the treebark one . OR if the powers that be allow it a gstwin.com themed. Cover
Or an idea collect pics of the various gs' here, and work that into a design. Although I did see one saying "I do my own stunts" which made me chuckle.
Aaron
update : i pick up my prosthetic limb tomorrow at 1pm. hopefully soon thereafter im able to get my paws on a set of legos to cover its frame.
Aaron
(http://i.imgur.com/TTSL2hs.jpg)a bit soon being 34 days post-op but insurance is gone midnight sunday am . sooooi it was do it now or indefinitely delay it.
Aaron
so far so good. finally figured out how to use the thing :D .
Aaron
today i go in at 4pm for a length tuneup and hydraulic tuneup as well on leg. ( yay for complimentary lol) i wonder if capt. hook will be there?
Aaron
workin on prosthesis. getting used to using it. had it off this morning, and for some reason involuntarily sat down hard. damn that burned. slowly easing :S
Aaron
Keep the walking stick handy bro!.. Or find a pretty brunettes lap to land on!:thumb:
I'm a Professional Truck Driver.. Get me out of the "circus" i work at!
Indeed. I find women and elderly people holding the door for me. Those I've always held the door for. I.e. a gentlemanly thing to do. Hard to accept for that reason. But I DO use a hand crutch as a walking stick. I still have to modify it with adds piston. Which is still on my cane.
Aaron
giving prosthetic a break for awhile. pain in bone is INTENSE and swelling hadnt decreased in a long while either. :"(
Aaron
Bone in your short leg or other side? Pain in bone bro.. Ask the doc?!
I'm a Crazy MotherTrucker!!
on the stumpy side. got the shrinker sock on it right now to see if swelling will go down. going to give it a few days. took a shower earlier. years ago added a shower stall to a converted linen closet. it was comical to say the least. but i ended up being a straight guy coming out of the closet after it was over. lmao.
Aaron
Gotta be washed bro!... Again from what ive observed in others and on tv over the years rather than real medical knowledge!!... Barring some carry over infection from surgery (not that long ago really) swelling and discomfort post prosthetic fitment 'might' be due to a fitment or movement stump/device issue? .. Make sure when you have your prosthetic follow up that you press the point of if you have noticed your new leg cup slipping around on the stump at all!? .. Getting used to it is one thing but making sure its not being "the uncomfortable sock" causing irritation and swelling is primo important! ... And making sure that you and they are on same page of understanding whats happening. ... "They'd have to realise" just wont cut it! :thumb:
I'm a Crazy MotherTrucker!!
This entire thread made me depressed.
Me too. :( . hoping thks phase of life is over with. i.e. no more losing body parrts lmao. :technical:
Aaron
But I managed to get you back here john! You can check in any time you want, but you can't never leave! :flipoff: (yeah, I know double negative, but I don't know exact lyrics :flipoff:)
Sometimes, life is depressing. No more losing parts we CAN see, no more losing parts we CAN'T but would also sure be nice to still have. Sigh. Suck is life (sic). :woohoo: :woohoo: But it's weekend! :cheers:
love,
pandy :kiss3:
I have hopefully the last flu of the season *snuffle* My excitement will be a third coffee and an extra blanket. Once I'm completely through the delerious phase, it'll be interesting to see what I've done to my laptop. :technical:
greetings oh mighty one just dealing with major pain in good leg bones. as well as knee joint, tight tendons etc. ddriving me batsh*t crazy. da stump aggrivates me too , the nerves iin it. yay phantom limb pain lol. btw loved the hotel california post reply nice work my friend.
Aaron
Seemed a propos. I haven't read every post, so this may have been covered. Have you applied for SSDI? That would be one less thing you have to worry about. I know you're young and I know you have plenty of life left in you. Plenty easy to get off SSDI later when you feel better. Better right now to not have to worry about paying rent, etc. Yeah, I know I'm buggin' ya'. ;-)
(http://i519.photobucket.com/albums/u360/gstwin/afro3.gif)
they "say" ive not worked enough in 10 years to qualify. got to round up ethra (bus) fare to go to ssa offfice in oak ridge to get copy of that denial letter, then go back to atty office, then begin anew. denial was in august.
Aaron
Possible you might have to start over again given the amount of time since denial.....don't give up, though...that's what they hope is that we won't give up. If you've earned the benefits, don't let them take them from you.
not worked enough in 10 years to qualify. my a$$. there are times ive wanted to give up entirely. but i wont do that. tn being a right to starve state. makes things difficult. EXTREMELY. also no medicaid unless i have kids. wth, so ive ncy boy to go create something i cant afford....to save my arse lmao. good logic there guvna. methinks its time to relocate soon. thats a given. but that takes fundage. to get that i have to work, which at this point isnt possible. not on that scale anyways. C'est La vie lol.
Aaron
Hey man, just wanted to chime in and say that there are probably more people than you realize reading and wishing you the best along the way! I think anyone who has been through some s*** knows how hard it is to figure out the right thing to say in consolation that, despite best intentions, is both meaningful and "feels" genuine.
Cheers to your fight and best of luck! :cheers: When life kicks ya in the nads, keep gettin back up just to spite that MFer just like you have been.
Also, just curious, you have any other interests to keep you distracted, like reading/video games, etc? Midday soap operas and Jerry Springer don't count... :icon_lol: If I know anything, it's that there's nothing more maddening than sitting around with nothing to think about other than how much pain you're in! :2guns:
wished i did have video games to wear out, but since my internet is off on a big scale, i cannot download my games i own off of my steam account. ( files are HUGE :( , averaging 10+gb each) tv wise ive no cable. just over the air tv. so ive seen pretty much everything 3 plus times lol. except for maybe 3 episodes of m.a.s.h. beyond that not much to get into lol. goin stir crazy lol :/
Aaron
That would be maddening... I can empathize with that much for sure. All my work travel these days tends to be as far from civilization as possible :cookoo: The outdoors and national parks are great until it gets dark too early to enjoy wherever you're visiting by the time you finish the job. And yet... I am still not tired of the beer and wings routine that travel lends itself to! :cheers:
Being a huge enginerd, my fall backs were always pre-downloaded audiobooks from the library and my RetroPi kit to keep the boredom at bay... never very practical to take anything Steam-capable with me. Get a lot of reading done too, which I suppose is a good thing!
thought at some point in future,. building a pc case making it wood or wood grain, using analog vu meters for audio levels. if wood id have to make sure cooling was up to snuff.
Aaron
What is a RetroPi?
(Yama, PM'd)
I've been trying myself to draw up plans for a PC-built-in desk in SolidWorks, but I doubt I'll get anywhere with it :D My Fractal Design R4 will hold up for the time being. My plan for now is to just buy a 9-10ft wood countertop from IKEA or Home Emporium and weld up a base for it. Been acquiring woodworking tools for some time now under the premise of "saving money" by building most of our furniture, but who knows when the hell I'll have time for that!
Janx, RetroPie (turns out I misspelled that) is basically a small Linux-based OS with a bunch of built-in emulators for all the classic consoles--NES, SNES, SEGA, N64, GB, GBC, GBA, etc. (and even things like the Apple 2 and Commodore 64). Buy a $40 Raspberry Pi (mini PC), a 16GB+ micro SD card, and some classic USB controllers for cheap and you can play hundreds of old games... Mario, Zelda, Battletoads, Double Dragon, Street Fighter, you name it. Just gotta know a guy with a large ROM (game file) library... :tongue2: Lots of guys build theirs into custom arcade cabinets or bar tables, but I keep mine in a 3x4" case for work travel and vacation.
https://retropie.org.uk/
https://www.youtube.com/watch?v=g4LFhbPmChs
due to rules here, i cant post links to the roms. but theyre EASILY found. ;) jus sayin lol. anyone remember atari 2600? just about every game they released including the emulator would fit on a 3.5" floppy disk. ( yes i know im old lol) the games are TINY in size.
Aaron
Ha! Guess that didn't come across too clearly: I'm the guy with the library :icon_twisted: my friends and I started stockpiling those things up before the C&D orders went out to the more popular sites, though they're certainly still out there. Another option is one of those sketchy ebay download-link sellers. I've had luck with them in the past; also bought a service manual for my XT225 so I had a searchable pdf version handy on my phone at all times. Guess it'll come in handy when I get around to rebuilding it...
I gotta say, as much as I love my GS, opening the Yamaha up to find those adjustable valves the first time was like Christmas morning.
i know ;) , was just saying the roms are EASY to locate if one knows where to look. ;) i wanted to say more, but that was as far as ii couldd go pretty much :)
Aaron
Ooooh. C64 emulator! ... Wizball.!!!
Damn right we're pulling for you here, Yama. And when you *DO* feel like giving up, come to your family. We'll cheer you, kick your butt, whatever is needed in the moment. But DO NOT GIVE UP. That's what they want. Gather the necessary documentation and shove it right up their tailpipe. I'm going through the same thing myself. :technical:
Once you shove it up their tailpipe and get the ball rolling again, it will be time to start thinking of how you're going to get back on a beautiful GS500. :thumb:
"Right to starve state" I want to laugh and cry at THIS gem at the same time. Don't give up!!!!!!!
(http://i519.photobucket.com/albums/u360/gstwin/afro3.gif)
ill end up back on a gs. whether trike or 2 wheels. but i figure ill install an hd type heel toe shifter to facilitate easier shifts with a prosthetic.
Aaron
Slackers. :technical:
naah my friend, we do that to keep ya goin ;) lol. not much i can do about the stump/prosthesis until i can swing physical therapy. if that doesnt work, either i have it removed at the knee or i do without. or i have him relocate the tendons if possible. but i am uninsured though so its all on the maybe to do list eventually. ive got MILES literally on that knee scooter ej sent me. it went with me to the west coast and back via dallas. my right leg is massive now lol. rather funny tbh compared to the other one. its been my sole source of propulsion :). first things first will try to work out a cash arrangement with pt doc.
Aaron
:dunno_black:
lol thats my day in a nutshell. trfying to configure the prosthesis for use with a bent knee. think i figured it out. 2 options 1 either i get my paws on a knee pad for a crutch, OR, I UNLEASHED BY BACKYARD engineer and tried making use of the sole for my old crow boot. not ideal, BUT IT WOULD WORK. idk lol.
Aaron
Going to try and get my ortho on the 7th to examine my good leg. its developed issues. knee pops like crazy plus hardly any bendability in it. should be nothing major.
Aaron
(https://i.imgur.com/qq1he8H.jpg)
Hello again my friend
:dunno_black:
Really not much to report. Except for leg pain in my dominant leg now. C'est la vie.
Aaron
Get some massage into that good leg Yama!
when im sitting and use the dom. leg to pull forwards i get burn in the right fib. where the plate resides. pluss even with all of the muscle in it now. have difficuly standing on it like i did even 2 mos ago. idk. but as long as the tib is still solid im good :) ( but will have it checked next chance im able ) just to be safe.
Aaron
(https://i.imgur.com/qq1he8H.jpg)
They cut it off r AKA (right above knee amputation) Aug 23. :sad:
I can't get anyone to tell me when they are going to start to fit a prosthesis. :dunno_black:
Heeding Doctors advice would be fine, IF I could get a Doctor to respond to me with some! (Advice, that is.) :mad:
you jim? damn didnt know. you dealin with it okay? you CAN adapt a kneewalker (what i use) to make mobility a tad easier vs a wheelchair (which i have but dont use). a seatpost from a montain bike and seat works. (see battlecow thread) anyhoo, its been just 2 mos how is stump looking now? doc may be waiting a bit for this. but if there is a hanger clinic in your area theyd be the folks id suggest. i fell in shower and did something to my right (dominant) leg yesterday. jus saying try not to fall if you can avoid it. anyways feel free to keep posting up here. and pm me if you wish to talk in private.
Aaron
How does a kneewalker work for an above knee amputation?
on the battlecow (kneerover all terrain) and the roscoe unit a mtb seatpost and a schwinn zero pressure seat. converted a kneewalker into a butt roller. doesnt turn as easy as my wc but allows you to maneuver over obstacles..
Aaron
:technical:
wecmoe back jim, nthing new to report yet, other than arthritis on dominant leg and muscle pains etc. once i can afford a visit to an ortho will check into this. you of all people know how we take a simple thing like walking, for granted. then you have to learn to do it all over again. if you wish theres a facebook group out there for amputees, ill find its link and send it to you via pm
Aaron
:technical: :mad: :sad: :dunno_black:
Keeping thread going. :whisper:
Indeed sir tyvm. Mweting cardiologist monday to plan whats next.
Aaron
:technical: thread not going :confused:
Everyone give up? :2guns: :technical:
since im on disability for now... ( i promise) i went and saw my doctor for an eye checkup. im 43 almost 44. and a diabetic. she says i show no signs of diabetic retinopathy..... YAY. i said, "but" shes like ? i said theres a but in there isnt there. she said well, yes, you do show signs of glaucoma. :technical: this explains the headaches lol. but ehh C'est la vie. going to schedule appt with opthamologist and see what or where its at.
Aaron
Update on the peepers. They passed inspection. Pressure on optic nerve was higher than normal but still in range :woohoo: sooo all is well for now and hopefully for years to come.
Aaron
Everyone give up? :2guns: :technical:
Keeping thread going. :whisper:
Keeping thread going. :whisper: :2guns: :technical:
Keeping thread going. :whisper:
Glad to hear that you've got disability income coming in now, Aaron. SSDI hopes we die while they spend years denying us. The back pay they owe me is huge, and it'll hit my bank account any day now. After having subsisted on cheap food for almost 4 years now, my body is going to be SO HAPPY to get a decent meal. I'm hoping things are looking up for you, too. :woohoo:
Keeping thread going. :whisper: